hypnic headaches

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Colorado Springs
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/10/2009 11:36 AM (GMT -6)   
I am eager to hear from anyone suffering hypnic headaches.  All that I have read from the 'net indicates that hypnic headaches are "rare."  I know that my general practicioner, three neurologists have never treated a hypnic headache patient.  I have a headache every night, about an hour and a half after falling asleep.  I have had these headaches for 3 1/2 years.  I have been prescribed fioriset, generic, for headache pain, but i don't know if it works or if the headache just goes away on its own.  Headaches range from mild to severe - from 30 minutes to over three hours.  Any information, advice, appreciated.  Thanks

korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 9/10/2009 1:40 PM (GMT -6)   
I hadn't heard of hypnic headaches until I read your post. From the bit of web crawling that I've done it sounds pretty interesting and I imagine I can find some good information if I have the chance to take a closer look.

In the meantime, take a look at the IHS ICHD2 information page on them: ihs-classification.org/en/02_klassifikation/02_teil1/04.05.00_other.html
DX: NDPH, Recovered(?) CRPS
RX: Lamictal, Namenda, Wellbutrin XL, Oxycodone, Oxycontin, Concerta (Methylphenidate), Clonazepam, Rozerem, Magnesium (1200 mg/d), Riboflavin (400 mg/d).

PRN: Ketamine nasal spray, Toradol IM, Celebrex, Haloperidol, Lodine, Zofran, Phenergan, Ambien CR
rarely: Migranal, Thorazine, DHE IM, Droperidol IM, Reglan, Provigil, triptans (Imitrex, Maxalt, Relpax, Zomig, Axert, Amerge)

I can be contacted personally via email at korbnep:healingwell@gmail.com.


achillea
New Member


Date Joined Aug 2015
Total Posts : 1
   Posted 8/23/2015 10:06 AM (GMT -6)   
It appears the thread on hypnic headache needs to be renewed and enlivened .From what we can find in researching on the net even though it considered rare there are a lot more people suffering from hypnic than is published. One site posted an article and it was getting at least 200 hits a month, so they decided to do an internet study." Hypnic Headache: Causes and Treatment reported by sufferers" by Dr. Raeburn Forbes and Dr. Rachel Kee
My wife has been suffering for 2-3 years, waking consistently at 1AM to 3AM and in pain for about 90 minutes to 2 hours. It was destroying her and our life because of the repercussions the following day, ie interrupted sleep and sometimes lingering pain. We went to doctors and no one had any idea, the final straw being the last doctor saying, "I don't know, what are you going to do?"
So the research began and we have made some huge strides forward. The biggest help so far has been drinking a cup of coffee just before bed. We found that not any run of the mill coffee is adequate because of the molds and micotoxins in most varieties. We found Bulletproof coffee offered by Dave Asprey to be the best as he has had mold problems and loves coffee so he found a source for third party tested mold free coffee and he offers it on his website. http://www.bulletproof.com/coffee-drinks/coffee/?gclid=CPyg3fTLv8cCFYQ8aQod0kIO2Q
As of late she has been adding some Phosphatydl choline and butter or ghee and a dollop of honey as it helps with the stomach and sleep.
The caffeine is the best thing so far but have more to share if we can get this going!
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