From your post it sounds as if you have been diagnosed with PH? I work on a helpline for sufferers of Clusterheadache which is very similar to PH! I have often been able to assist sufferers of PH to find a way forward! I would be happy to answer any questions you may have!
I would point out that I do not suffer with this myself! We all experience 'Headache' of various sorts I.E each migraineur's experience will differ as will each sufferer of PH will have differing experiences!
Co-Moderator of the Migraine/Headache Forum