First, I am so sorry that you are going through this, but I do know what you are going through because I have been dealing with the same thing for the last 3 years 4 months and 1 week and 1 day. It depends on who you ask if I "technically" fit the definition, since I had migraines before but most of my doctors agree (and yes that is plural) that I have New Daily Persistent Headache with Migraine. I can honestly say that I have not had a pain-free day since Sept. 22, 06. If the doctor doesn't want to be fit into a box, they usually just call it a status headache. The key to the NDPH is remembering the date that it happened or what you were doing that day, basically having key memories of something that happened years ago. I still remember that day at work and how the migraine lasted two weeks. If it is not NDPH it could be Chronic Daily Headache in Migraine.
I just have a couple of questions for you? First, have you been able to do a little research on your own? I know it is super hard when you’re in so much pain, but I want to recommend the book: Mayo Clinic on Headache published 2004. While it is a little out of date, not much has changed in the headache research. I first found a copy at my library, but then I bought a used copy off Amazon for super cheap (like $.27 or something silly like that). I have found it to be useful. (That is where I got most of the information I listed in the prior paragraph).
Second, have you seen a headache specialist or a neurologist that specializes in headaches? Or have you thought about going and seeing a doctor at a headache clinic? I posted a list once on the forum giving information on headache clinics, but it might be out of date by now. I have personally been to the Diamond Headache Clinic in Chicago and Thomas Jefferson Headache Clinic in Philadelphia. I am currently with Diamond and with a local neurologist to try to manage my pain.
If you have any questions headaches, clinics, etc, I shall do my best to answer them. Or if you just want to vent, I am here for that as well. I hope the doctors find out something soon. Best of luck to you and feel better soon. Take care.