PLEASE DOESN'T SOMEONE JUST HAVE AURAS WITH NO HEADACHE

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mickeym
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Date Joined Dec 2004
Total Posts : 2
   Posted 12/17/2004 10:35 AM (GMT -6)   
THERE HAS GOT TO BE SOMEONE OUT THERE THAT JUST GETS AURAS AND NO MIAGRAINE HEADACHE. I CAN'T BE THE ONLY ONE .
IF THERE IS SOMEONE WHAT ARE YOU TAKING AS MEDS? I FEEL LIKE I'M THE ONLY ONE WITH THIS PROBLEM I'VE HAD 53 AURAS IN ALMOST 6 MONTHS WITH NO HEADACHE AND THE NEUROLOGIST CAN'T FIGURE OUT WHY!!!!!

tysmyboo
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Date Joined Dec 2004
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   Posted 12/17/2004 3:45 PM (GMT -6)   

Hi!

I just wanted to let you know that you are not alone. I am a member of another message board/forum and there are several people who deal with the same thing. I'm not sure what they take as far as meds are concerned...

Hang in there


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yellowrose
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Date Joined Mar 2004
Total Posts : 123
   Posted 12/22/2004 1:38 PM (GMT -6)   
Yes, there is someone else! My Grandmother has these all the time. She thought SHE was the only one! Her doc. tells her that it is just a migraine without the pain and she is one of the lucky ones. I wish I could have just the auras.

krom
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Date Joined Jan 2005
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   Posted 1/18/2005 8:46 PM (GMT -6)   
I just found this site.  For the past 30+ years I have had infrequent auras without the migraine pain. The incidence of the auras started to increase when I went through menopause (age 50).  I had started hormone replacement therapy, and subsequently ended up quitting HRT, and the incidence of the auras declined.  About 3 months ago, the auras started up again, some days as many as 3-4 times, some days nothing.  Again no pain to speak of.  During the same time frame, I have been experiencing "dizzy" type spells - nothing to make me faint or fall over, but disconcerting.  I have been to my primary doctor once regarding these spells, but with no clear answer.  I had begun to think it had something to do with all the artificial sweeteners I ingest in the various diet pops, sugar free products, etc. I have pretty much stayed away from these products for the last 3 weeks, and unfortunately I'm still getting the auras.  So scratch that theory.  So if anyone else has any input, I would appreciate it also. 

tysmyboo
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Date Joined Dec 2004
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   Posted 1/19/2005 12:08 PM (GMT -6)   

Krom~

I have read some 30+ books on migraine and headaches. There was one that went into pretty good detail on migraine with aura and no pain. I am going to dig through the books and see if I can find it for you. I know I have seen it in at least a few of the books I reviewed.

give me some time...but I will post it here as soon as I find it.

Hang in there...


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LaurenB
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Date Joined Aug 2004
Total Posts : 101
   Posted 2/2/2005 4:31 PM (GMT -6)   

Yep, they're called ocular migraines.  My complicated migraines turned to ocular for about 5 or 6 years, but now they're back to their old tricks again.  I was on aspirin therapy and it helped.  If I took an extra dose of aspirin when I saw the first signs of distortion, it would decrease the length of the attack.

Hope this is helpful.

~Lauren


Shifty1
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Date Joined Feb 2005
Total Posts : 3
   Posted 2/3/2005 2:24 AM (GMT -6)   
I dont know if this helps, Im not a doctor either, but when i get unbearable migraines i go to the chiropractor, and usually that fixes the problem! after an adjustment i can even see better, and that pressure you cant get rid of usually is gone, the reason for my migrains is tense muscles in the upper middle back and the muscles in the neck.

dizzym
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Date Joined Feb 2005
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   Posted 2/7/2005 4:02 PM (GMT -6)   
:-)  Mikeym. In response to your auras with no headache yupppp me too. Except I have a gp that thinks its psycological. But my auras are like black diamonds and squares danceing around sometimes they shoot in and out or seem like they dance over my head sort of.I know it sounds weird but try explaining this to a neurosurgeon.Im on topamax but its helping with the headaches and vertigo but the depression is horrible,are you taking anything?I also take maxalt if they get really bad. confused

LaurenB
Regular Member


Date Joined Aug 2004
Total Posts : 101
   Posted 2/8/2005 11:12 AM (GMT -6)   

Dear dizzy,

I get dancing diamonds too... only they appear after a grey blob obscures one entire field of vision.  Then they dance up and out of sight in the upper right quadrant.  My neuro says that's classic.  Isn't it interesting how one doc gets it and one doc doesn't?  I HATE the whole psychosomatic dx... BTDT, but finally found a neuro who takes me seriously.

 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 2/11/2005 3:54 PM (GMT -6)   
Hello All,

I am a regular in the Lupus forum here at HW.

I get (rarely) a crescent shaped starry pattern with no pain (can't see out of that eye) and the doc calls them "ocular" migrains . . . but its not exactly an aurora. I am happy to report that my lifetime of painful migrain headaches came to a long lull . . . but has recently increased again . . . am hoping they will go away for good.
In His grip,
AlwaysRosie
Psalms: 139


DePiro
Regular Member


Date Joined Nov 2003
Total Posts : 435
   Posted 2/11/2005 4:35 PM (GMT -6)   
Im just passing through here from the UC section,..I would get many aura attacks while on Prednisone but the migrane would always show up 30 minutes after I would see crazy colors (when I shut my eyes),.and blurred vision . I would always get to a dark room and take a painkiller and a sleeping pill (Tamazapam) and I would sleep it off. Otherwise it felt like my brain was on fire. I am now off Prednisone and see a chiropractor and so far my migranes are gone.
31 year old male Debary Florida U.S.A
Diagnosed with Ulcerative Colitis in 1999
Had first step  J-pouch procedure Jan 4 /2005
Joke :   When I was sick with UC, my Dr. told me to avoid any unnecessary stress,..
                                      so I never opened any of his bills.
                        
 
 


Jen L
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Date Joined Feb 2005
Total Posts : 23
   Posted 2/14/2005 11:03 PM (GMT -6)   
Yep, I've heard of it, when talking to my family doc. about my migraines, my doc. said he just gets the aura, I think its called ocular or something, I can't believe your this would be something new to your neurologist, weird.... 

billp896
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Date Joined Feb 2005
Total Posts : 1
   Posted 2/20/2005 5:23 PM (GMT -6)   
You are not alone. I have had ocular migraines for years. Beware that a year and a half ago I woke up with one in the morning. It didn't clear up. The perifrial vision in my right eye disappeared. It was diagnosed as NAION. That stands for (Non arteric Anterior Ischemic Optic Neuropathy) This a sudden, painless, and permanant stroke of the optic nerve. I don't know if they are related but they both started the same way.

Wolf10
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Date Joined Feb 2005
Total Posts : 2
   Posted 2/20/2005 5:49 PM (GMT -6)   
 
 
  :-)   :-)     All I can say is try to take it day by day I do know that it makes you feel worst when a doctor tells you I sure you heard this befor.
 
I going to try this meds are change to that med , are the best one yet is I going to send you to this doctor and that doctor sends you to a different doctor, are just gives you more meds.
 
Sometimes the side affect a lot of time the side effect is a lot worst then the pain cause you hurt have bad headach take all this pain meds and that puts you in bed which causes more pain are different kind of pain.
 
I new at this I will say I understand my headach are not 100% migrands they are what you call mix headach which are 4 different kind of headach in one.
 
hope this helps everone but I take it day by day and do the best I can and that is all anyone can ask of you.
 
 
What to here what realy makes me mad are UPSET is these people that do not ever get heachachs they get a headach and say that took 2 aspens and it went away...
 
that is what so funny
 
thanks
rdixon100

krystina
New Member


Date Joined Feb 2005
Total Posts : 1
   Posted 2/24/2005 12:55 PM (GMT -6)   
I have had auras but the migraine ususally follows. However, I wanted to help you. So this is what I did today when my aura started. I took one capsul of feverfew herb and downed a small bottle of gatorade and had a half a cup of coffee. I massaged my forehead, temples, eyebrows, neck and the back of my head. I had already had breakfast which was healthy and complete with protein. I have a mild headache now with no auras, no sesitivity to light or noise like a migraine. I was getting the auras every month right before my period. I do not take any prescriptions, not even the pill. Someone told me they took feverfew every day to prevent their migraines so did it for a few months. I don't have to take it anymore preventitively. I get an aura followed by migraine maybe once a year. I don't know if feverfew works after the fact, but you know what it's like, you're desperate! So I hope something there can help you. I know you mentioned that you just have auras and no migraine, but still something seems related to me and maybe some of this could help. Gatorade for electrolites, coffee for caffine - pain killer, feverfew herb for whatever it does I don't know, and massage to help with circulation and tension. Good luck.

Sincerely,
Krystina

JackHarrison
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Date Joined Feb 2005
Total Posts : 1
   Posted 2/26/2005 1:08 PM (GMT -6)   
Wow. This is interesting! I just came here for the very first time in search of migraine info. I have been having what I believe to be migraines without headache for some time now. Only recently they have become very frequent and bothersome to the point of beginning to seek help.

I have had exercise induced auras for years - mine show up as black and white pinwheels dancing around in my field of vision. I am a triathlete and swim practice almost always produces one - but no other symptoms.

For the past few years though I have had also had bouts with dizziness, and have had brain MRIs and other things done to try do determine the reason - with no improvement.

For about 2 months I have been having regular auras - both yesterday and today upon waking I had an aura, but I am also dizzy and nauseous. Recently I have been noticing a bit of vertigo, and computer games make me dizzy when they never did before, and last evening my wife and I went to a movie and the movie made me dizzy - first time ever for that.

It is 1pm and I'm still nauseous - I rose at 5am. I was looking around at migraine trigger info today and found that dairy and cheese can be triggers - here is an interesting coincidence - I've been lactose intolerant for 20 years, and about 2 months ago I discovered a product that with 1 pill per day allows me to eat dairy like a normal human - so I've been going crazy eating milk, cheese, and other dairy items! I cut out the coffee a few weeks ago and am on no other drugs or alcohol.

My mother has been a lifelong migraine sufferer. She gets the debilitating headaches, too. Hopefully I don't have that to look forward to. She told me that sometimes her migraines make her feel exactly like she has a virus or a cold but she knows she does not. THAT IS EXACTLY HOW I FEEL! No one could have described it better. She also told me my grandmother has had aura without headache for her lifetime as well.

I guess I got migraine, eh? Looks like I'm not alone. I'm going to see her neurologist soon.

If it turns out that this is what has been causing my odd symptoms for the past few years, it will actually be a relief.

Daisy1962
New Member


Date Joined Feb 2005
Total Posts : 1
   Posted 2/27/2005 12:49 PM (GMT -6)   
Auras,numbness,nausa and words that came out of my mouth that made no sense,symptoms similar to a stroke.  The next day if I had been numb on one side the day before I would have an ache on the other side of my head the next day or so. But, no major headache, just horrible symptoms. That put me in fear. Thankfully I came across a great neurologist who told me I had complicated migraines which in deed puts me more at risk for a stroke. I stay away from: M.S.G , Hot dogs, Smoked meats ,You have to find your triggers and you have to read a lot of labels. My meds and doctor have been a god send for many years now. I take a combo of Inderal LA and Zoloft which a doctor has to adjust slowly until a right does is came up with and I also take a prescribed water pill the week of my period to reduce any swelling in the brain that may occur. I still may have a complicated migraine once a year or so and have samples of the stronger migraine meds on hand just in case I need it. I have my life back and being on meds sure beats going through that fear every couple of weeks. Always see a doctor and always keep your follow-ups up to date. I hope this has helped someone.

starry eyes
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Date Joined Mar 2005
Total Posts : 1
   Posted 3/11/2005 10:43 PM (GMT -6)   
eyes   yeah i was just recently diagnosed with ocular migranes through my retinal specialist.im 26 and have live with macular degeneration since birth and they had believed that my lose of perifial vision and black outs in my left eye were signs of another diesease.its good to know they werent but my doc said they were caused by spasming blood vessels in my eye.if there anything anyopne else can tell me about it????i have enough problems with my eyes already!!!!!!!!!!!!!!! thanks, starry eyes

tigertiger
New Member


Date Joined Mar 2005
Total Posts : 10
   Posted 3/18/2005 9:45 AM (GMT -6)   
Hi, I have suffered with these since I was 11 and my periods started. I get a crescent shape in one eye that grows, its rather like looking through a diamond, inside are so many angles of the prism shape. It grows and then I cant see. It seems to be linked to hormonal changes with me. When I got my periods in my teens I got this, then when I went on a certain type of pill, the same happened.
I got my last one an hour after having an emergency c-section in September,,,,,yuck!
Parcetamol gets rid of it, and cooling down!
Take care everyone!
tigertiger from UK xxxxx

PaulR
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Date Joined Mar 2005
Total Posts : 1
   Posted 3/23/2005 1:06 AM (GMT -6)   
My aura's are perhaps similar to tigertiger's.  I am a 64 year old male.  I have almost no headaches - maybe one a year.  No migraines.  I take only a blood pressure medication, but the auras started before my blood pressure problem started.
 
My first aura was maybe 15 years ago and I've had an average of one or two a year since then.  Only a few have occurred as often as daily.  At the time of the first one, I had no idea what was happening or what the cause was.  A nurse at work found a book with a 1-paragraph mention of visual auras.  After my third aura, I kind of figured out that they were associated with my eating perhaps too much of one particular type of onion greens.  A few days ago I had one shortly after eating a 1/3 pound microwaved onion.  Maybe I just like onions too much.
 
The aura is difficult to describe.  Mine have all been visually similar, identical for both eyes, and sometimes I get a mild dull ache in the back of my head near the end of the aura, lasting maybe 1/2 hour.  All of the auras start out as a blanked out place just to the left and below the point I am trying to focus on.  The blanked out area is medium gray.  On my computer desktop, the icon I focus on is just not there, but all the icons around it are visible and perfectly readable.  Within maybe 5 minutes, the blanked-out area has about trippled in size, but now has some features.  The main feature is a bright white line, kind of C shaped.  The top of the C is kind of horizontal and the left side is kind of vertical, and the bottom is kind of horizontal.  The whole line of the C is very crooked - kind of jagged all along its length, something like lightning, or a sawtooth wave.  The crookedness seems to constantly be changing, and but I can't see what exactly is changing.  The top and left are well defined and the bottom is less-well defined.  The blanked out area is the area close to the C-shaped line.  Over a period of about 1/2 hour, the C expands and becomes less well defined, until it is out of my field of vision.  Since the blanked out area is a narrow area near the line making up the C, about 10 to 15 minutes after the start, the icon I focus on is perfectly visible and the jagged C is around it and the icons outside the C are perfectly visible.
 
Because I am a procrastinaor and the aura's haven't upset my life much, I have not had them medically diagnosed or treated.
 
-PaulR

RVB3D
New Member


Date Joined Apr 2005
Total Posts : 8
   Posted 4/29/2005 3:56 PM (GMT -6)   
THE AURAS ARE THE GIFT. CONGRADULATIONS. I THINK IT'S REALLY VERY SIMPLE, & ANYONE CAN DO IT. AFTER 5 YEARS OF PAINFUL & DEBILITATING MIGRAINES, I HAVE EXPERIENCED 35 YEARS OF THE MOST BEAUTIFUL AURAS. I'M GLAD TO KNOW OTHER PEOPLE ARE HAVING THE SAME EXPERIENCE. GOOD LUCK.
-RVB3D

RVB3D
New Member


Date Joined Apr 2005
Total Posts : 8
   Posted 5/1/2005 7:04 PM (GMT -6)   
my auras are similar to others on this page. usually cresant shape, but simetimes full circle. diamond shapes, shimmering colors of bLUE, yellow, red. last abour 20 minutes. i'm glad to know other people have similar experiences. i haven't talked about this for 35 years, since i gave up on the doctors.

ANY RESPONSE WOULD BE APPRECIATED.

bsulier
New Member


Date Joined May 2005
Total Posts : 1
   Posted 5/12/2005 12:39 PM (GMT -6)   
I too have had auras and migraines for over 35 years - they started when I was 11. Over the years I have used the auras to predict migraines and to pre-medicate to stop them. I have also had auras without the migraines.

I too feel blessed to have the auras. 1st because I prevent migraines and second because I have fortification auras which are absolutely beautiful. I wish I was an artist and could draw them because they are sometimes stunning. I even hate to take my meds because I don't want to lose the beauty.

I have always wondered if Pueblo Native Americans have auras and migraines because my fortification auras are often repeated in Pueblo pottery art.

Having2LeftFeet
Regular Member


Date Joined Feb 2005
Total Posts : 472
   Posted 5/13/2005 10:12 AM (GMT -6)   
Mickey,
When you say "aura's" please explain. There are a lot of different signs and symptoms of migraines. If your head doesn't hurt, how can they be classified as migraine? (scratching head)
 
"Lefty" smurf
There is no such word as can't. Can't simply means wouln't. Grab as much as life as you can. Future is a long way away for those who don't believe. Don't build a foundation of life on sand. It will take it away with the tide. Love a little more, be unkind a lot less.


tysmyboo
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Date Joined Dec 2004
Total Posts : 921
   Posted 5/14/2005 10:28 PM (GMT -6)   
Lefty-
There are several types of migraines....
 
You can have the type where you have aura and no or very little head pain...you can also have what they call abdominal migraine where the majority of your symptoms are gastrointestinal (vomiting and diarrhea etc)
 
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