Thank you everyone that has posted. I too have been having the same symptoms and have been going crazy not knowing what's going on. Any updates would be appreciated.
My diagnosis to follow the list if symptoms below. Maybe this will help. ( 36 year old female, 130 lbs)
-Icy feeling running through vessels in head
-uveitis (pain behind eye) also severe dry eye
-numbness on side if face and shoulder ( tingly sensation as if I were having a stroke?)
- joint pain. (mainly thumb and first digit on each hand and sharp pain in the knees)
- massive headaches that hung around no matter what I took
-numbness of hands and sometimes arms as (if it were carpal tunnel symptoms by merely sweeping and mopping or holding in to something for longer than 5 mins with a firm grip)
- lack of energy
- sleepless and/ or restless nights
-heart palpitations ( as if my heart would beat out if my chest and thumped so hard it literally ached
-fatigue. Probably due to lack of sleep but still felt tired even when I did get to sleep plenty of hours
-burning sensation above shoulder blade/ area between that and my neck
-feet ached to walk when I first stood up. Took 20-30 min to work it out
-became clumsy and forgetful.
These may not be all but as you can see there are so many symptoms many doctors have to sift through. I was told it is highly possible that my diagnosis is Lupus. Autoimmune disorders are so difficult to diagnose and all the tests I have been given still left me with only "possible unconfirmed diagnosis". My doctor is the best rheumatologist I have yet come across and he told me this " just because we are unable to pinpoint as of now what you have , I guarantee the symptoms are very real and are the beginning of something yet to fully surface" basically he's telling me, I'm a ticking time bomb for the confirmed future diagnosis.
*My recent MRI also shows I have nodules on my joints in my hands. Since my hands continue to ache and my eye as well ... He wanted to run a different screening for possible RA although I had an RA blood panel done which were neg. turns out I do have Rheumatoid Arthritis after all. :(
My Doc did tell me that once you have one autoimmune disorder it is easy to get another. Unfortunately he seems to be correct on the matter.
He still believes I am going to be diagnosed with Lupus eventually when I have a flare up which will show better results in the blood work. I usually see him after my flare ups ( takes a while to be seen. 3 months at least) by the time my flare up is over there is less chance to see exactly what it is since it seems to be in early stages. I hope he's wrong. I won't fret over any worries but sure dislike feeling bad and tired. I feel for anyone who suffers even a fraction of what my symptoms sometimes are. I hope this helps with any info. Get checked for autoimmune disorders. And start taking isotonicOPC3. Best stuff he ever recommended. It lasts 60 days and takes two bottles before you really notice a change. Good luck in finding out what you all suffer from. God Bless.