One sided headache/tingling/ice cold sensations & more

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Caraboo2003
New Member


Date Joined Apr 2010
Total Posts : 1
   Posted 4/5/2010 6:37 PM (GMT -6)   
I am new to this site and tried to read as many different topics i could that seemed to fit my symptoms. But after finding that somewhat matched, i thought i would try my own thread and see what happens.

I am 36, Type 1 diabetic, migraine and ice pick sufferer. For the past two weeks (following a cold) I have noticed a pain on the left side of my head usually where i get my migraines. The pain is different than a typical migraine though. It is not extremely painful, but constant. But i have also noticed other odd symptoms. All of these only on the left side of my head and face. Feelings of an ice cube being trickled down my head, sometimes settling in behind my eye or beside my nose. Eye weakness, but not to the point of losing vision or the ability to open and close. (I should mention that i had Bell's Palsy 3 years ago, which lasted two weeks, with full recovery.) Tingling slightly in my upper lip (again left side only). I have been having multiple ice pick attacks per day (sometimes upwards of 20 a day).

I am pretty sure it is not dental related as I am a Registered Dental Hygienist and know the signs of an abscess and so on. I have no pain in my jaw and there is no time of the day that is better than an other.

Four months before i was diagnosed with Bell's Palsy i had a Grand Mal Seizure. The doctors "chalked it up to" a low blood sugar (my sugar was tested at 2.9, which is low yes but not as low as i have been before and been able to get myself out of it.) An MRI was done after i requested, as i had pain above my left ear and what seemed like a lump. The Doctor at that point (after the MRI showed nothing) said that he thought it was a bundle of damaged nerves left behind by the seizure and the hitting of my head on that side during it (he gave it a name but to this day i cannot remember it!!!)

I visited one of our local clinics this past Thursday and was told by the dct on call that i presented with a low grade fever (almost 38) and my left appeared clogged. Therefore, since anything neurologically would not cause a fever, he was going to treat the symptoms he did see. I was put on antibiotics and sent home.
4 days later, i have no fever (nor did i at any time i checked myself), and the one sided symptoms are still present. I am getting very scared as to what this could be. I have read up on Trigeminal Neuralgia. Is it possibly that? Any help would be greatly appreciated!!! Thank you!!!

LuluMarie
New Member


Date Joined Mar 2011
Total Posts : 1
   Posted 4/8/2011 2:37 PM (GMT -6)   
I started having similar symptoms approx 10 years ago.    It started with the sensation of icy cold water running down my brain.  This was not constant, but every so often it would happen and it was the strangest sensation.   I would even reach up to feel if my head was wet.    Then I started getting pressure in my head.   Not painful.  Just pressure.    I mentioned this to my doctor and she thought it was maybe perimenopause symptoms.   After a few months, I started to get muscle twitches/spasms.  My doctor said this was probably due to having a severe pinched nerve in my neck.  Possible nerve damage.  But because of the drippy water head issue she decided to have me get an MRI.    Nothing abnormal in the results.   I lived with these symtoms on and off for several years. 
 
Then about 16 months ago, the icy cold water sensation dripping down my brain was much more frequent and other symptoms started happening.   The entire left side of my face became numb and was icy cold.   My nose and left ear felt like they were frozen.  There was so much pressure in my head that I could barely stand it.  I also had extreme pressure in my left eye and my chin was numb.   I went to my doctor and she thought they were migraines "without the pain".   It was getting unbareable.   Around the same time I thought I had a kidney infection and my doctor prescribed CIPRO.   I took it for 9 days and the 10th day woke up and felt like my head exploded.   I started getting violently ill.   Ended up in emergency.   Had a spinal tap and MRI.  Both negative.   Again, I was told they were migranes.   My doctor decided I should have a more extensive MRI.    Made an appt with a neurologist.   My results came back with 2-3 brain lessions.   I had a series of tests for various diseases.   The last test I had was a lumbar puncture.   Came back negative.   Neurologist diagnosed me with "benign MS".   I'm still not quite sure what that is.   It didn't make sense to me.  Within approx the next 4 months I could barely walk, think, talk...etc.  New symptoms were coming on like gangbusters.   I had NO idea what was wrong with me.  I knew I didn't have MS because how quickly all these symptoms were coming on and also, the results of my lumbar puncture.   My health completely spiralled downwards.   I was now living a nightmare.   I ended up in emergency for the second time.   The emergency room doctor thought it was a good idea to call my neurologist.    He came back in the room and said "you probably have MS".     He wrote a prescription for "vertigo" medication.   I left thinking "it's time for a second opinion". 
 
I called and made an appointment with my Holistic doctor.   I had seen her a couple of times for small issues/concerns (ie allergies, diet..etc.), but primarily used my western doctor for all other health related issues.    Within 5 mins of my appt she said "I'm 90% sure you have Lyme Disease".   I had heard of Lyme Disease but knew little about it.   Turns out, I do have Lyme.   All my tests came up negative, but this is VERY common.   Within 48 hours of treatment, I felt 50% better.  We have been treating it naturally for the past 6 months.  My current treatment is collidiol silver IV's twice a week for 5 weeks.  We have made GREAT progress but it's a long haul.   Now, with the knowledge that I have, I'm sure I've had it for over 10 years.   Lyme can lie dormant for years.   Lyme can also mimic over 300 different diseases.   My Holistic doctor believe the CIPRO "woke it up" and within 4 months I had over 50 symptoms.    I was symptom free, but another layer of Lymies popped up.   I'm anticpating another few months of treatment.  But whatever it takes!!
 
My advice to you or anyone under similar circumstances is...go see a Holistic doctor!!   It's a totally different perspective and approach.   This doctor and treatment without a doubt... saved my life!! 

stardusty16
New Member


Date Joined Sep 2012
Total Posts : 1
   Posted 9/15/2012 12:49 PM (GMT -6)   
I am currently diagnosed for going on 7 years with MS. an MRI, spinal tap, and many common MS symptoms confirmed a lesion on my brain, right side and I only had one major attack. I have been ok for years, just fatigue and all over body pain with a few bouts of tingling in hands and feet. I recently had our first child 5 months ago and I have now been experiencing head pressure/pain for about 5-6 weeks now. went to the ER 3 weeks ago after having a feeling of ice cold water dripping on just the left side of my brain at the same time I had a sharp electric pain in one spot on my right side of my brain, this happened for about 5-10 mins, stopped then the head pain/pressure persisted. I went to the ER thinking that maybe I was getting a new brain lesion or MS flair, they diagnosed me with a tension headache (complete bs) and sent me home with percocet. it did NOTHING!

I just moved and literally just saw my new pcp yesterday, she is referring me to a local neurologist and I am scheduled for an MRI and an MRA since I am adopted and recently found out both of my grandmothers passed from an aneurysm and one had a brain tumor at the same time. I was just researching the cold water feeling and came across this post. I also looked up the malformation I and Lyme disease, I know that I have MS atleast that is what the tests all come back saying but these weird new symptoms have only occurred since I had my child, I am just curious how many others have had the constant head pressure/pain, bruised eye feeling, ice cold water pouring on brain, hot water pouring on brain, sharp electric shock feeling on brain, all over body pain/stiffness and blurred vision at times?

I am hoping there isn't a new lesion but I will not know until after the mri in 2 weeks, meanwhile they gave me norco 10 which usually works on pain but its not doing anything and I am also having sensations of a million little knives stabbing my hands and feet, more often my hands for 5-10 min at a time, only once it went for 30 mins. I feel like I cant think of things as quickly or find the right wording. and my balance feels off. I just moved to a rural area and I don't feel the medical professionals here are top notch so if anyone has had any specific tests that helped or ideas of what may be happening it would be much appreciated. thanks a million :0)

Petesgrandma
New Member


Date Joined Oct 2012
Total Posts : 3
   Posted 10/19/2012 1:44 AM (GMT -6)   
Stardusty how are you doing? Have u recovered? I too have this pressure in my head and ear pain since May 2012. 24/7....

smilin-eyes
New Member


Date Joined Jan 2013
Total Posts : 1
   Posted 1/3/2013 2:20 AM (GMT -6)   
Thank you everyone that has posted. I too have been having the same symptoms and have been going crazy not knowing what's going on. Any updates would be appreciated.

Brainfreeze77
New Member


Date Joined Oct 2013
Total Posts : 2
   Posted 10/26/2013 2:58 AM (GMT -6)   
My diagnosis to follow the list if symptoms below. Maybe this will help. ( 36 year old female, 130 lbs)

My symptoms:
-Icy feeling running through vessels in head
-uveitis (pain behind eye) also severe dry eye
-numbness on side if face and shoulder ( tingly sensation as if I were having a stroke?)
- joint pain. (mainly thumb and first digit on each hand and sharp pain in the knees)
- massive headaches that hung around no matter what I took
-numbness of hands and sometimes arms as (if it were carpal tunnel symptoms by merely sweeping and mopping or holding in to something for longer than 5 mins with a firm grip)
- lack of energy
- sleepless and/ or restless nights
-heart palpitations ( as if my heart would beat out if my chest and thumped so hard it literally ached
-fatigue. Probably due to lack of sleep but still felt tired even when I did get to sleep plenty of hours
-burning sensation above shoulder blade/ area between that and my neck
-lip twitching
-feet ached to walk when I first stood up. Took 20-30 min to work it out
-became clumsy and forgetful.

These may not be all but as you can see there are so many symptoms many doctors have to sift through. I was told it is highly possible that my diagnosis is Lupus. Autoimmune disorders are so difficult to diagnose and all the tests I have been given still left me with only "possible unconfirmed diagnosis". My doctor is the best rheumatologist I have yet come across and he told me this " just because we are unable to pinpoint as of now what you have , I guarantee the symptoms are very real and are the beginning of something yet to fully surface" basically he's telling me, I'm a ticking time bomb for the confirmed future diagnosis.

*My recent MRI also shows I have nodules on my joints in my hands. Since my hands continue to ache and my eye as well ... He wanted to run a different screening for possible RA although I had an RA blood panel done which were neg. turns out I do have Rheumatoid Arthritis after all. :(

My Doc did tell me that once you have one autoimmune disorder it is easy to get another. Unfortunately he seems to be correct on the matter.

He still believes I am going to be diagnosed with Lupus eventually when I have a flare up which will show better results in the blood work. I usually see him after my flare ups ( takes a while to be seen. 3 months at least) by the time my flare up is over there is less chance to see exactly what it is since it seems to be in early stages. I hope he's wrong. I won't fret over any worries but sure dislike feeling bad and tired. I feel for anyone who suffers even a fraction of what my symptoms sometimes are. I hope this helps with any info. Get checked for autoimmune disorders. And start taking isotonicOPC3. Best stuff he ever recommended. It lasts 60 days and takes two bottles before you really notice a change. Good luck in finding out what you all suffer from. God Bless.

Brainfreeze77
New Member


Date Joined Oct 2013
Total Posts : 2
   Posted 10/26/2013 3:05 AM (GMT -6)   
smilin-eyes said...
Thank you everyone that has posted. I too have been having the same symptoms and have been going crazy not knowing what's going on. Any updates would be appreciated.




My diagnosis to follow the list if symptoms below. Maybe this will help. ( 36 year old female, 130 lbs)

My symptoms:
-Icy feeling running through vessels in head
-uveitis (pain behind eye) also severe dry eye
-numbness on side if face and shoulder ( tingly sensation as if I were having a stroke?)
- joint pain. (mainly thumb and first digit on each hand and sharp pain in the knees)
- massive headaches that hung around no matter what I took
-numbness of hands and sometimes arms as (if it were carpal tunnel symptoms by merely sweeping and mopping or holding in to something for longer than 5 mins with a firm grip)
- lack of energy
- sleepless and/ or restless nights
-heart palpitations ( as if my heart would beat out if my chest and thumped so hard it literally ached
-fatigue. Probably due to lack of sleep but still felt tired even when I did get to sleep plenty of hours
-burning sensation above shoulder blade/ area between that and my neck
-lip twitching
-feet ached to walk when I first stood up. Took 20-30 min to work it out
-became clumsy and forgetful.

These may not be all but as you can see there are so many symptoms many doctors have to sift through. I was told it is highly possible that my diagnosis is Lupus. Autoimmune disorders are so difficult to diagnose and all the tests I have been given still left me with only "possible unconfirmed diagnosis". My doctor is the best rheumatologist I have yet come across and he told me this " just because we are unable to pinpoint as of now what you have , I guarantee the symptoms are very real and are the beginning of something yet to fully surface" basically he's telling me, I'm a ticking time bomb for the confirmed future diagnosis.

*My recent MRI also shows I have nodules on my joints in my hands. Since my hands continue to ache and my eye as well ... He wanted to run a different screening for possible RA although I had an RA blood panel done which were neg. turns out I do have Rheumatoid Arthritis after all. :(

My Doc did tell me that once you have one autoimmune disorder it is easy to get another. Unfortunately he seems to be correct on the matter.

He still believes I am going to be diagnosed with Lupus eventually when I have a flare up which will show better results in the blood work. I usually see him after my flare ups ( takes a while to be seen. 3 months at least) by the time my flare up is over there is less chance to see exactly what it is since it seems to be in early stages. I hope he's wrong. I won't fret over any worries but sure dislike feeling bad and tired. I feel for anyone who suffers even a fraction of what my symptoms sometimes are. I hope this helps with any info. Get checked for autoimmune disorders. And start taking isotonicOPC3. Best stuff he ever recommended. It lasts 60 days and takes two bottles before you really notice a change. Good luck in finding out what you all suffer from. God Bless.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, July 22, 2014 10:22 PM (GMT -6)
There are a total of 2,177,436 posts in 242,116 threads.
View Active Threads


Who's Online
This forum has 153437 registered members. Please welcome our newest member, daGIFToPAIN.
459 Guest(s), 17 Registered Member(s) are currently online.  Details
Foxracr1515, Canada Mark, janetlee, momtofourangels, Alsmom, MamaLama, Spartan4Life, Biker Granny, daGIFToPAIN, Chemobrain12yrsout, Gunner34, FLBeachgal, Grace1995, scared 24, Boxermom2, Garden Peace, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer