Hemiplegic Migraines - Topomax - A Short-Term Cure or Long-Term Treatment?

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Snowy_Love
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 4/26/2010 3:28 AM (GMT -6)   
Hi all!
 
Well, I finally got to see a Neurologist after having numerous suspected strokes that left my right side completely paralysed for days on end & speaking as though I had been on 'the lash' with copious amounts of vodka (even though I am t-total).
 
My partner & I were obviously relieved at the prospect of getting to the bottom of this problem & I went in, still suffering with the paralyisis etc. effects of a previous day's migraine.
 
I attempted to explain, during the examintaion, that I was suffering with post-migraine paralysis etc., and he kept holding his hand up to me in the most derogatory manner and telling me to "shut up" as he "knew everything that he needed to know about me from what the doctors had written".
 
My partner & I were, to say the least, constntly looking at other (to put it politely) bemused.
 
At the end of the consultation, he stated that he thought that I was not suffering with hemiplegic migraines - as I was still suffering from paralysis & severely numbed reflexes of the right hand side of my body, which was not consistent with such a diagnosis.
 
It was not until I put my hand up timidly, like a little school girl, with trepidation - and said that perhaps it could be attribuatble to the fact that I had experienced a severe migraine the previous day & he shouted at me as though I was a naughty little 9 year old school girl who dared to question him - that he shouted at me again & berated me for not telling him that I had experienced a migraine the day before!
 
The upshot of it is, is that he is still recitant to definatively diagnose me with hemiplegic migraines, but has placed me upon Topomax - with me getting the distinct impression that this is purely a short-term script.
 
I am positive I am suffering from hemiplegic migraines - should I be on long term preventative treatment?
 
Thanks
 
 

penguin14
New Member


Date Joined Jun 2010
Total Posts : 14
   Posted 6/15/2010 3:09 PM (GMT -6)   
hi there, i am a long term hemiplegic migraine sufferer and i take topamax as a preventative. unfortunately it has very little effect so im also taking propranolol and due to start a new pill to see if a cocktail will help. after speaking to my neurologist yesterday she informs me hemiplegic is rarer therefore harder to control as the triptans which normal migraine sufferers can take on the onset of a migraine to stop the pain can cause stroke in hemiplegic migraine sufferers (always read the leaflet as when i was 19 i wasnt informed of this and had a TIA). Preventative treatments are your best hope, if one doesnt work you can try another and you can take several at a time. Im 25 now and unfortunately just been told i have to accept that this is me now, nothing more can be done but i dont want to give up, im fed up of lying in bed in pain paralysed talking like ive been out on the lash when i dont even drink. all the best
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