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ALgirl
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/9/2010 4:16 PM (GMT -6)   
Has anyone tried this for migraines? If so, how long did it take to start working and how well did it work?  My dr started me on this.  I have tried just about everything else so I am hoping this helps. 
Diagnosed w/ Crohn's 2010
Diagnosed w/Hemicrania Continua (variation of migraine disorder)fall 2009
Current meds: Pentasa, prednisone taper, Prilosec, zonisamide
 


mindstyle
Regular Member


Date Joined Aug 2009
Total Posts : 62
   Posted 5/13/2010 12:09 PM (GMT -6)   
I am wondering what other medications he has tried for your migraine. This (http://www.ukmi.nhs.uk/NewMaterial/html/docs/ZonisamideNMP0805.pdf) says that its primarily to control epileptic seizures.
Male, Diagnosed with Ulcerative Colitis since 2006, at the age of 30 years

Currently taking
100mg of Azathioprine, twice a day
2250mg of Balsalazide Hydrochloride, 3X a day
1mg of Vit. B12, once a day
500mg Salazopyrine suppository once a day.

250mg Neproxen as and when required for migraine (usually twice a week and I don't know if this is side-effect of Salazopyrine or IBD)


ALgirl
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/13/2010 4:19 PM (GMT -6)   
I can't even remember all of the medicines I have tried, but no triptans work for me.  I have tried verapamil but it caused my BP to go down too low.  It is a fairly common practice (at least in the area I live) to use anti-seizure medicines for migraine prevention.  I tried Topamax also (another anti-seizure medicine) but it did not work.  Neither did amitriptyline.  Neither did Botox injections.   
Diagnosed w/ Crohn's 2010
Diagnosed w/Hemicrania Continua (variation of migraine disorder)fall 2009
Current meds: Pentasa, prednisone taper, omeprazole (Prilosec), zonisamide (Zonegran)
 


crittersaplenty
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/18/2010 12:41 PM (GMT -6)   
I have not tried zonegran, but when I was first starting on topamax, my coworkers friend was taking zonegran b/c she couldn't tolerate topamax. It was working for her. That coworker has left so I don't have any information on how it's doing but I've always kept it in the back of my mind. It's been about 5 years and now I'm on 400mg of topamax and I think I've outlived the usefullness of it. bummer. I renewed my rx b/c I'm too busy to go to the doc right now, but I think next time I'm gonna ask about something else - LOL, hopefully something that doesn't require lots of blood work and doesn't make you gain weight! And zonegran fits that picture I think. I know depakote makes people hungry and makes you gain weight! yuck!!!!!
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