I have been browsing your forum for the past few days and have finally decided to post my story. Its kind of long and kind of convoluted, but it sounds like thats a lot of people here... so i'll try to keep it as concise as possible!
I am currently 23 (almost 24) but experienced migraine headaches first when I was about 11 or 12, just a few times. These were pretty classic... I would get a visual aura (a blank spot in my vision) then 20 minutes later I would get an excruciating headache (they almost felt like what I have now read is an "ice pick" headache). They would last about 4 hours, and I would vomit and have to lay in a cold dark room until I felt better. These headaches only happened maybe 4 or 5 times then eventually went away.
Jump about 8 or 9 years in the future and I start getting some really weird headaches. They are not unbearable like the ones I used to get, but I got really scared when I first started getting them, especially because they are so different. When I started getting headaches again I would get a myriad of different types of pain and symptoms. Many times the pain is localized to the left and top parts of my head (though it can travel to the right). A lot of times it is almost a quick electric type of pain, and sometimes it is more like my scalp is just incredibly sensitive. I also occasionally experience eye pain, a sort of cognitive "fog", nausea and vertigo in conjunction with the headache.
I started seeing a neurologist once these started again (now about 3 years). The neurologist did a CT scan of my brain and a brain MRI and found no abnormalities, except for an arachnoid cyst (which is a collection of cerebrospinal fluid that is entirely benign, and occurs in about 1/20 people), which he said had absolutely nothing to do with my headaches. I was happy the scans were clear because I have total health anxiety.
I have since moved on from my original neurologist (I moved) and have now seen two new neurologists who both like to classify my headaches as migraines. They are not severe enough for me to consider treating them with meds right now, but because they scare me I visit the neuro about twice a year just for a check up and status update.
I guess I am not really asking any specific questions other than whether or not anyone feels like they have had a similar experience. Anyone ever used to have migraines that went away and came back as a completely different type of headache years later? I am glad I found this forum, any feedback is appreciated.
Also, just as background, in addition to the arachnoid cyst, I also have benign fasciculation syndrome (I twitch all over for no reason), and I also have Undifferentiated Connective Tissue Disease, neither of which any of my doctors believe has anything to do with my headaches.