Please Help! Migraines

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Sammymartin
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/28/2010 1:34 AM (GMT -6)   
Hi I'm a 20 almost 21 year old female, I have been having INTENSE migraines for the past TEN years.
I feel It has robbed me of being a normal college student. I lay In bed in tears because NOBODY has any answers.
this is a list of medications I have used or currently use to try and help my head.

-Topamax
-Paxil
-Calexa
-elivil
-DHE (Never use made me throw up for days)
-Benedryl
-Inatrex injectons
-Zomig Nasal spray and tablets
-Gabbapentin
-Furinol with codiene
-Prozac
-Naproxen
-Steroids
-Demerol
-Torradol
-Chrio
-Massage therapy
-Yoga
-Belladonna
-BOTOX injectons


I am also seeing the best Neuro In arizona and working with a Headache specialist at a migraine center


It's getting to the point where I wake up and don't even see the point of getting out of bed to live with this pain.

I was hoping ANYONE can relate I feel like I am the only person having this much trouble with things.

The doctors did find a small fracture in my skull but said I must have had it for years and shouldn't worry.
I have devolped severe anxiety problems due from the constant pain I'm in.


Can anyone think of any other medication i haven't heard of or something that will help me!

I do not get rebound's because I am very careful to not take too much of anything


--Thank you so much for listening to me rant.
If anyone can help I would SO love it.

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 5/28/2010 7:39 AM (GMT -6)   
Oh Sammy, I am so sorry you are suffering like this at such a young age! I know exactly what you are going through, mine started at age 18 after a rear end car accident in which I knew we were going to hit them and put my feet up on the dashboard to brace myself. Probably the dumbest thing I could of done! I too have gone through doctor after doctor and specialist after specialist. I also can't take any of the classic migraine meds. Triptans made me really ill and ergots did nothing etc, etc. I was recently dx'd with fibro on top of everything else. the only thing that helps my pain is oxycontin and promethazine. When I have break thru pain I go get a pain shot, usually toradol and phenergan will take care of it if I go soon enough. If not then I get demerol or stadol added to the mix. I used to use the stadol nasal spray but found I liked it a little too much, so I gave it up in a hurry! I hope you can get some much needed relief and stick around here for much needed support! Take care hun and hang in there!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Sammymartin
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/28/2010 5:35 PM (GMT -6)   
Thank you so much for replying,I was in a major car accident in 2008 a 56 chevy truck hit me going 60 and I was in a nissan sentra.
Thats where my skull fracture came into play.
I use the triptian but make me feel the same way I get so sick!!!
A friend of mine got the botox injections as well and uses the stadol nose spray for breakthrough I have hear really great things with the nose spray Im wondering if i should ask my doctor about it.
Also I have heard of lidocaine nose drops  I just want to live my life not laying down in a dark room I am getting married next year and would hate to still be having a 24/7 migraine then.

Ugh looks grim but i try to stay positive I really like this blog spot it makes me feel better knowing other people are going through the same thing



BTW I am heavily tattooed and doctors look at me like I'm just looking for drugs.
If it was up to me I would never take another pain pill for the rest of my life but its that or live with the constant pain
It's really getting annoying doctors looking at my tattoo's and think "oh shes just a drug addict"

makes me want to scream!
All i want is some relief!

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 5/29/2010 5:01 AM (GMT -6)   
I have tattoo's also, not heavily but I have some. I feel the same way that they see the tat's and judge me from that. They would be amazed at the amount of bikers I know that don't touch drugs at all illegal or otherwise! Again the stadol nasal spray worked wonders but I felt I could easily become addicted to it. I did have to go in for a pain shot yesterday and because of the severity and the long weekend coming up (I try and avoid the ER if I can cuz I hate to be treated like a drugseeker) I opted for the stadol in the mix. Knocked the heck outta the headache! I think you should give the stadol a try just go into it with both eyes wide open! Take care hun and have a safe memorial weekend! Here's to a low pain day.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/29/2010 4:11 PM (GMT -6)   
Hey hon, have you tried a list of what you eat and drink yet to find out your triggers? Well I think one trigger might be from the car accident injury and another trigger perhaps anxiety/stress. Topamax is a good preventive medication, you know I was on the double blind study when they first came out with topamax and needed to test it out. It should be taken daily. Have you tried ice packs on both the back nape of your neck and on your head? Seeing the neurologist is a good thing. I wish I could take away your pain though!
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


Amax
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/30/2010 8:24 PM (GMT -6)   
Hi! im a 27 yr old male and iv had a long history of headaches dating back to when i was a kid. They started when i was going through puberty and i would start having them in the middle of the day. I remember my first headache attack, I was no older then 11 when i was in class and i felt weird, then sudden pain, so without asking to leave class, I quicky ran to the office for help and when i got there the pain was so bad i fell to the ground screaming, so naturally the princible rushed me to the E.R where they gave me pain killers, im not sure what but it worked, so after that I havnt had another attack like that since. then in my early 20s I got a nasty head injury and from that i got headaches every so often and they where pretty bad. Id discribe the attacks as unforgiving, cus I could hear this crunching sound next to my ears, it almost sounded like rice crispys popping and it hurt so badly and i was dizzy, blurred vision and even after the attack i was so exhuasted. So in responce i went to the doctor and was prescribed 30 Norco 10/325 and 20 1mg Ativan for the attacks, that was back in oct 2001, so as the years went by the Norco was loosing its effect so I got it bumped up to 60, then 75 and by early 2005 i got addicted and I was getting pain meds from different doctors and my doctor found out and terminated my pain contract and I had to see another doctor, and when I did I saw a young female doctor, she was only 25, told her the story and started back at 30 norco again, so that wasnt going to cut it because although I did have headaches almost every single day, I was also dependent on the hydrocodone, the active ingrediant in Norco, so I looked around abit and I finally found Dr.Feel Good, IE a Doctor that hands out narcotics. That was probably the biggest mistake of my life because even though I did need pain releife to get back to life, I also had no self control and this doctor could care less, he was seeing patients every 10 minutes and didnt want to hear about my story or complaints, he was just like "What do you want?" and he would prescribe a reasonably high dose. So i tested him and I said 75 ultram, so i got that, it didnt help as much, went back a second time and ask for vicoprofen and i got 120 of those with 3 refills, so I was back again a month later and ask for oxycontin and norco, thinking I have nothing to loose if he said no, well he didnt, he prescribed me 2 40mg oxycontin a day and 3 norco a day, so thats #80 40mg oxy and #90 10/325 hydrocodone/APAP, Soon I got addicted and out of control until my tolerence went way way up as the months past I decided to go back to him within the same month because I had abused my medication and get another script, well when I asked him for the oxys and told him the maid stole my medication, well that was the end of the gravy train for me. So as i was withdrawling I decided to change my tatics and go in and see another doc and tell her the truth, that im addicted to pain killers, but I seriously need them to fucntion, so she gave me 90 methadone, 3 a day. So I started that and i was very impressed with its pain releiving ability plus it wasnt as addicting as the oxys, but long story short she wasnt interested in helping me, she was just helping my withdrawls, so i stoped going to her cus she wasnt helping and it wouldnt be until jan 2009 until I see my doc I have now, and inbetween those years I almost died from malnutrition, I was extremly depressed from pain, my life was in ruins and I actually had plans for my death, its not like I wanted to die but my headaches got so bad I was using chlorophorm to knock me out so I woudnt feel the pain, I also bought methadone on the street, but that got to be too expensive, so i decided one day that I was going to start out fresh, change my MO and get a completely new doctor, So thats what I Did, I went to go see him and explained my story about the past 9 years of hell with my headaches and head injurys and told him that Methadone works best because it eliminates my pain and I dont have the tendacy to abuse it like oxycodone, and so I said id take 4 a day, which was more then the 3 i got before, and it had been over a year since I was prescribed any pain medication, so I was extremly happy to get 120 10MG methadone, plus I also got propranalol and compizine for neasea. That was back in jan 2009. Today im on 4 20mg prozac, 80mg megace, compize, 80X3 Propranalol, 270 methadone, and norvasc and iv been using the methadone responsibly since and within that year I was able to start dating again, get a job, and live a normal life all thanks to Methadone, So if you dont want to experiment with all sorts of medications and get addicted in the process, I highly recommend you ask your Doc for Methadone because its not only helped me, but its helped alot of other people live their life, however there are some drawbacks, u can die from it if you take too much, so you must find the right dose for your body and what ur tolerence is, I have such a high tolerence that my chances of dying are very miniumal. So I hope this helps you out, Take care -Matt

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 5/31/2010 6:29 AM (GMT -6)   
Wow Matt, you have really been through it. I am sorry for your pain and the years of heck you have gone through. I am so glad you have now found a doc that seems genuine in the fact that he want's to help you with your pain and it is wonderful that the methadone works for you! The patient-doctor relationship is so important in a chronic pain situation, I too am very lucky to have the doctor I have. She want's to control the pain but is very careful in doing so. I know I am on alot of meds, but this is finally what has given me some relief. My doc has checked my levels to make sure I am metabolizing (SP?) what I take properly and just keeps on top of things when it comes to what her patients take. I hope you stick around this forum, it is a wonderful place to be! Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


pugluv
Regular Member


Date Joined May 2010
Total Posts : 20
   Posted 6/1/2010 3:42 PM (GMT -6)   
I don't know if this will help but you can try Norflex. I found that that helped the most.

Sammymartin
New Member


Date Joined May 2010
Total Posts : 4
   Posted 6/2/2010 5:12 AM (GMT -6)   
Hey Matt thanks for the story,It really doesn't sound like you are having a typical "Migraine" attack, has your doctor ordered any MRI or CT or done a spinal tap to make sure everything checks out ok? It really does seem like you have had quite the "James Frey" experience

becareful methadone can be VERY risky and its unusual that it would be percribed for pain as It's mainly used to help addicts for a short lenght of time

Is your pain 24/7 without the medication?
have you tried and triptians or another route besides narcotics?

Migrianes are such a tricky thing to manage

I hope you are feeling well soon I honstley know what your going through.

Ursula5
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/9/2010 11:26 PM (GMT -6)   
I count myself lucky that I finally went to a neurologist in my early 40's after suffering from poor migraine protocols from a succession of PCs and their unsympathetic and undereducated office staff. The neuro placed me on beta blocker Inderal and we finally found a dose that worked. I need the time released form. Though I can still have 3 or more migraines a week and breakthrough major migraines (I use Amerge) a few times a month, they are much less severe. I have found taking Alieve 2x a day and treating any body pain symptoms early, to be helpful. I also swear by my Chiropractic treatments. I have more Atypical and Silent (painless)migraines as a result of these strategies, they are still not fun but I can go to work with most of them.

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 6/14/2010 8:31 AM (GMT -6)   
Hi Sammy,

If you Neuro is a good one, you may want to think about GONB (Greater Occipital Nerve Block). This is an injection in the back of your head, which is virtually painless and a walk in the park compared to the headaches.

This can give sufferers from weeks to months of pain free time or reduced intensity and frequency. It comprises of local anaesthetic and steroid, and it can disrupt or block the pain pathway giving some relief.

You can only have them up to 4 times a year, I get up to 3 weeks relief and I know sufferers who get from 6 weeks to 6 months! Everyone is different, and therefore has a different response to this, but it is great to give you a pain break.

take care

Ann
Co-Moderator of the Migraine/Headache Forum


tkg59
New Member


Date Joined Jun 2010
Total Posts : 6
   Posted 6/14/2010 3:11 PM (GMT -6)   

Sorry to hear about your migraines, my husband suffered for years, nearly 40, he also tried almost every medicine you had listed without any relief. about 2 years ago, just by fate, we stumbled across a nutritional product, all natural, no SIDE EFFECTS, you buy directly from the company, after 3 weeks he had no more headaches, that was May 2008. Guess you know our whole family now takes it. I will be glad to give you the name and website if you want to give it a try. Not that you need it, but it has relieved my arthritis pain in both my knees, it reduces inflamation in the body, great stuff, very reasonable price. I feel sure it will help, but the company will give you your money back if you don't like it, just send in the empty bottles, no questions or hassels. 

Hope it helps you as much as it has helped our family.

Tazma

336-605-4721

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