Where would you say is the best headache center in the states?

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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2023
   Posted 6/7/2010 1:44 AM (GMT -6)   
I have suffered ten years with severe bilateral temporal headaches. This pain has been present 24/7 for the last two years so I have been in bed pretty much all that time keeping ice on my head trying to remain sane. I have seen tons of doctors, taken all kinds of meds and nothing has helped and done all forms of treatments. Now we have no money left and still no answers to why I have these horrible headaches. I am at the end of my rope if you know what I mean. I am in Canada and all the doctors I have seen have told me they have tried everything they know and sorry we can't help you is all I hear. I was wondering if I went to the best US headache center if it would be possible that I find out something the doctors here have not done??? What do you think? Where would you recommend I go to ??? I'll answer any questions you might have. Thanks in advance for responding. I am trying to find some hope.
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 6/7/2010 4:36 AM (GMT -6)   
Hey Suzane. I keep hoping that one day I will sign on here and you will have some good news. I am so sorry for your pain, and I know what you are going through. I responded to the post you wrote me in chronic pain. Did you see it? I am beginning to think that there is no end in sight. I am lucky at the moment that I am getting some relief from the oxycontin. Just don't know how long it will last as I am already noticing that it doesn't seem to help as much or for as long. Did you have any luck with the ketamine infusions at all? I sure wish something would work for you. Head pain is the worst pain I experience. It completely consumes me, I cannot even think about anything else and end up in bed with an icepack the same as you. You are in my thoughts and prayers everyday. I hope you can find some answers and relief soon! Please keep in touch and take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2023
   Posted 6/7/2010 10:03 AM (GMT -6)   
Hi Shannon, thanks for your response. I am not sure about the other post you are mentioning. Sorry, but I have lost all my memory pretty much. Can you send me your email address so we can correspond. We need to talk girlie!!

Hugs
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


less wise
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/8/2010 12:46 PM (GMT -6)   
I suggest David Buchholz's book "Heal your Headache" I fillowed is diet suggestions and changed my dinner time beverage to zero, but little help. Regardless Dr. Buchholz's book is an excellent resource on medication and other advice. Other wide I have been treated at the Cleveland Clinic and University Hospitals in Cleveland, had PT, TMJ treatment, accupuncture and lots of meds. It is almost laughable the money we spend on a desease that has no known cause, and no known cure. Last treatment was a nerve block. Waiting for the bill on that one, with a number 8 on the pain meter the next night. Next doc is signed me up for Botox coverage under Medicare. Buchholz says limited success on that one.

Now, a friend of a friend suggests Curamin. Anyone with luck on this one. Same question on marajuna. My UH doc has had patients with relief and others without. Ohio has legalized a synthetic made by Pfizer. Very expensive and my UH Doc would not prescribe it.

I'm about to suggest a sitcom on headaches and hope to laugh my self well. What else is left?
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