Post Edited By Moderator (Annuk) : 6/21/2010 4:31:15 AM (GMT-6)
JYP hi there, definately not overreacting as anybody suffering with a hemiplegic migraine or even a normal migraine will tell you! Andybody suffering with a hemiplegic migraine is advised to wear a medical wristband explaining the condition incase you are one of us sufferers who does lose their speech during an attack and have an in case of emergency number on it and if that means 999 or 911 if of course you're in the states then do that because you can never be too sure, I had a stroke due to this illness in my teens so it can be fatal!
I'm really struggling with this condition at the moment, i've even been allowed to up my dosage of topamax to 400mg which is unusual for the uk treatment of this condition, they usually stop at 100mg. It's lasting 5 days at a time then leaving me with a days tension headache then bam! it's back again for another 5 days and so we go on like this. I officially have zero life, i weigh about 6 stone so that's 84 lbs and there is absolutely nothing I can do about it because I have the best in trade doc here. So what to do next? I would love any ideas absolutely any you have all been fantastic so far.