Breaking up with my neurologist....

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blossombags
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/8/2010 7:54 PM (GMT -6)   
I think I want to break up with my neurologist. :) I'm not thrilled all the prescription drugs they keep trying on me. I'd like to visit our local migraine/headache clinic. However, I need a referral. How do I ask my neurologist for one? I've already upset my general practitioner because I didn't want the topamax. So he sent me to a neurologist.

caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 7/9/2010 2:15 AM (GMT -6)   
Sorry you are having a bad experience. My primary care doctor sent me to a neurologist as well. He was fine with treating my occasional migraines, but when I started having 10-12 serious ones per month, and the preventives he tried for me failed miserably, he said he felt my migraine frequency exceeded what he was comfortable trying to treat. He is actually the one who mentioned topamax as a treatment, but said he did not have experience prescribing it so he would let a neurologist handle it.

What have you tried for prescriptions? I honestly think that the only thing that they can do is cycle you through the available prescriptions, from preventives to abortives in hopes that something will help. I notice you say that you think your GP is unhappy because you didn't want topamax? Have you tried it before, or are you wary because of things you have read? I ask only because I had read things that scared me silly, but because I was suffering so much, I was willing to give it a chance. I had tried many other prescriptions with terrible results. Turns out that Topamax has (so far) been a little miracle pill for me. Side effects are minor and pain relief has been major. So in my case, I'm glad I didn't let what I read keep me from giving it a chance. My neurologist is a migraine specialist though. I take it yours is not, based on the fact that you want to go elsewhere? I take 125mg daily of topamax and maxalt as an abortive, usually needed about once per week now, which is a major improvement.
Fibromyalgia, High BP, Migraines, anxiety
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin


blossombags
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/9/2010 2:13 PM (GMT -6)   
I was on the topamax that my GP prescribed (for 3 months). He kept wanting to up the dose, but really wanted to be chemical free and try herbal, and diet changes (to rule out food allergies). He got mad and said, "Well then I just can't help you anymore." He referred me to my neurologist. She put me back on topamax for 6 months to see if it restarted (as she put it) my system. To get me off the advil, and exedrine and the possible rebound headaches. Made sense. I just don't like the memory loss, the numbness, and tiredness. Not to mention that I had to change to an IUD for birth control...that doesn't agree with me and must come back out. So she switched me (after the 6 months) to the antidepressant as it won't interfere with the birth control. I hate the antidepressant, and really want to go back to my original plan of as chemical free as possible.

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 7/11/2010 4:50 PM (GMT -6)   
As a medical proffessional and one that suffers from migraines, you need to express yourself more. Make an appointment with your neurologist and ask them these questions:

Where are my migraines coming from? Is it neurological or stress or what?
Can you help me find my triggers for my migraines?
Is there anything natural we can try to help ease my pain?
Would accupressure help?
Given the fact I suffer from ___ migraines, in your medical opinion what is the best treatment to allevate the pain?
What tests do I have to do to aid in my diagnoses?
Why am I getting migraines?

If you find your triggers (reason of what starts your migraines) you can avoid them. In 1/3 of people migraines are caused by heart problems. You don't know why are getting these migraines. So perhaps, you should stick with a doctor specializing with migraines and let them run the tests and try the medication so they can find the cause of the source. For me, migraines are caused by stress, allergies, heart, heat, some foods, caffine, etc. I know what my triggers are. I went from having a migraine 16 to 18 times a month to 1 every couple of months by avoiding my triggers and taking a preventive medication, topamaz.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem


blossombags
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/12/2010 10:28 AM (GMT -6)   
I have tried to be more open, and communicate my wants and needs with both the GP and neurologist.  Both have "poo-pooed" my thoughts and wishes.  My GP basically told me he couldn't help me anymore and good luck and walked out of the room.  His nurse returned with the neurology referral.  I've had a CT scan that I guess was fine.  I never heard.   When I do ask for a more holistic approach I'm told they don't work and I need to stick with the prescription meds.  I really think I need to find new doctors.   That's where I am now.  I have been trying to weed out foods, I know that the sun, and smells can lead to a migraine.

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 7/12/2010 1:18 PM (GMT -6)   
By law, one is entitled a "Second opinion." You can ask your doctor for a second opinion. Now you said sun leads to migraines for you, there is a trigger. Drink plenty of water. Sounds like a dehydration headache almost. Write down or type everything that you eat and drink for a week. Review it and look for common factors: IE: Milk everyday don't drink milk for two to three weeks and see if your migraines improve. Only take one thing off your list at a time. That way you are sure to find your triggers. You can ask your doctor for your CT results. By law, they have to tell you them if you request it.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem

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