daily migraine with tremors,nausea,vomiting,speech problems

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wickedcrazy
Regular Member


Date Joined Mar 2011
Total Posts : 40
   Posted 3/13/2011 11:37 PM (GMT -6)   
Hi everyone, nice to meet you. New here..I am a 37 y/o with new onset of daily migraines. I've had them off/on my whole life. I've had every test, awaiting referral to Ryan Headache Clinic in st charles, missouri. My dr is supposed to put a rush on it and get me in very soon. I have a question though-has anybody had a problem with increased migraines,up to full body tremors (muscle spasms) very painful, problems with speech, problems with balance and walking, facial pain and numbness, dilated pupils(sometimes just one)....with taking a seizure med as preventative and paxil...I've questioned 2 neurologists now and they both say no, not a problem...but theses got sooo much worse after they put me on depakote and then topamax. I'm off all meds now, including daily paxil. I for sure thought I had a sponatenous spinal fluid leak by my symptoms that majorily increase if I'm not laying flat-all tests of that sort have been inconclusive, "we're not sure but we aren't going to do a blood patch to fix it yet." I am going to lose my job and I'm a nurse to boot....sigh, all suggestions appreciated!! Thanks again! (Also non smoker, non drinker and no other meds of any kind, no herbals, nothing)

jewishmother
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 3/14/2011 1:38 AM (GMT -6)   
Hi.......I am so sorry you are having to deal with such a wide range of symptoms - so very frustrating! Are the aura-type symptoms new since you started on the meds or just an increase in frequency? I think I have tried 6 or 7 preventive meds and all of them increased my pain and severity of my symptoms. I think the drug I had the least amount of trouble with was neurontin though it did not help either so for now I have decided to be drug-free and just trying to focus on identifying and minimizing my triggers though there is not much I can do about the weather changes! Now that you are med-free have your symptoms calmed down?

I have had basilar-type migraines for the past 30 years but 2 1/2 years ago they became daily. I experience all the symptoms you listed except for the dilated pupils though during my daughter's migraines one of her pupils is dilated - her neuro calls it a springing pupil. She takes elavil as a preventive which seems to help cut down on the frequency. I hope that the headache clinic can see you soon and that they are creative enough to understand that sometimes the meds can make things worse instead of better! Please keep us posted!

wickedcrazy
Regular Member


Date Joined Mar 2011
Total Posts : 40
   Posted 3/14/2011 2:02 AM (GMT -6)   
Thanks Jewishmother! I only quit taking the paxil 3 days ago, I probably have a week of without it before it is out my system...I thought they were getting better, but I was wrong. I have been on bedrest for 2 1/2 wks because it's the only thing that keeps my head from wanting to explode. Yesterday I was upright for 3 1/2 hrs, been working on spending more time that way...today it was back with a vengance-i pissed it off! Lol I have been researching copper toxicity as well, because it is so close of a resembalance...I will be taking vitamin B6, magnesium with a full supply of zinc and vitamin c 1000mg a day. By what I read, the only true way to tell if it's copper is a hair folic test (most chiropractors will do those). Most importantly make sure the lab does NOT wash the hair prior to testing it. It would be interesting to see what it shows for myself, yet alone you and your daughter-the research says it's a genetic flaw...very easily fixed with balance, hence the vitamins. Once I'm on my feet-haha! I want to improve diet/exercise anyway-nursing as a career offers little time for both, most times not even enough time for a pee break-lol! Thanks again and I will keep you posted, in the mean time you guys ought to try the vitamins-the worst that happens is you would pee the excess off...I'll keep you posted-ty!I'm really scared these will disable me and I am way too active for that, it would kill me...

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 3/14/2011 10:17 AM (GMT -6)   
Hi Wickedcrazy,

Welcome to Healing Well. Sorry to hear about what you have been going through. I know what you mean about being active, as I have a very active job (Pre-school) and over the years have had to take far too much time off sick!!

I am no Doc, but I tend to agree with you that this may be a CSF headache, but you may even have two types here! So pleased you are going to see a Headache Specialist as most Neuros don't know enough about headache as they deal with so many other things. Hope this gets pushed through quickly for you.

I think it is a good idea to be rid of the meds you have been trying to give your system a break, it will help the HS (Headache Specialist) see more clearly what is going on without any masks! I am sure I don't need to tell you to be careful with any pain medication you do take to abort your attacks in case you start with rebounds/medication overuse headaches. If you haven't already done so take a detailed headache diary when you see the HS, stating level of pain what you have used to treat it, how long each attack lasts, as this is what will help the HS to make a good diagnosis.

Please let me know how you get on?

take care

Ann
Co-Moderator of the Migraine/Headache Forum

DX: Hemicrania Continua, Chronic Migraine, IBS, Allergic Rhinitis and Heart Murmur

Meds: Imigran Injections, High Flow Oxygen, Mebeverine, Lansoprazole, Nasonex and Clarityn
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