Has Anyone tried Cambia for Migraines?

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MamaHen
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Date Joined May 2011
Total Posts : 3
   Posted 5/5/2011 8:18 AM (GMT -7)   
Hi everyone!
 
I have had migraines for years.  I have been pregnant/nursing for the past ten years (I know. . . .but they are worth it!).  Anyway, I am now in a place where I am finally able to try new medicines for my migraines!!!  Hooray!!
 
My history was that I have had daily headaches that go from mild to debilitating attacks that send me to bed for days to back to mild, but never completely gone.  I have tried various things, from extreme diet changes, chiropractic care, herbal remedies, prescription drugs--you name it, I've tried it.  Except, I was limited in what prescriptions I could take because of my pregnancies.
 
So, now I am able to try new things and they are working!  I am on Topamax and it has been life-changing for me!!!  I know it does not work for everyone, but has ended my daily headaches and I now only have a few migraines a month.
 
I still don't have an answer for the few bad migraines I get each month.  Unfortunately, Triptans do not work for me.  My doctor gave me a prescription for Cambia to try. 
 
Has anyone else here tried Cambia?  I am hoping this may be the answer!
 
It would be so amazing if I had something that would actually work!

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 5/5/2011 10:47 AM (GMT -7)   
Hi,

Not come across 'Cambia', are you sure that is the right name??? Have you tried Indomethacin (indocin)??? I ask this as your headaches sound similar to mine and Indo will wipe mine!!!!

I have a very rare form of Headache called 'Hemicrania Continua'. It only responds to Indomethacin (Indocin). It takes the form of continuous pain that fluctuates with excrutiating exacerbations of the same pain.

I tried Topomax myself - couldn't tolerate the side effects, it made me very depressed!!! Although it took away most of the continuous pain - just felt like something still there, and the exacerbations were fewer.

However, one defining feature of HC is during an exacerbation the eye on the affected side droops and or waters and possibly the nose is blocked on the affected side.

Hope this helps, take care

Ann
Co-Moderator of the Migraine/Headache Forum

DX: Hemicrania Continua, Chronic Migraine, IBS, Allergic Rhinitis and Heart Murmur

Meds: Imigran Injections, High Flow Oxygen, Mebeverine, Lansoprazole, Nasonex and Clarityn

MamaHen
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Date Joined May 2011
Total Posts : 3
   Posted 5/5/2011 11:01 AM (GMT -7)   
Your headaches do sound a lot like mine. That is very interesting. I am going to have to look into that.

Cambia really is the correct name and spelling of the meds. I am looking at the package right now just to be sure. It is "Diclofenac Potassium for Oral Solution". It is a NSAID powder that you dissolve in water and drink. It is supposed to work in 15 minutes. It is flavored like licroice and mint (yuck!). I think it was originally designed for a European consumer base, not american. That is why it has the anise (licorice) flavor.

It is an FDA approved migraine medication and I have never heard of anyone else using it. I couldn't find it mentioned on this forum either.

I'll let ya'll know if it works for me. It does say on the packaging that it is "indicated for the acute treatment of migraine attacks with or without aura in adults 18 years of age or older. Cambia is not indicated for prophylactic therapy or for cluster headache."

My pharmacy did not have it in stock, but was able to get it in one day.

I hope it is going to help!

Annuk
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Date Joined Jan 2006
Total Posts : 1308
   Posted 5/5/2011 11:38 AM (GMT -7)   
If your headaches are anything like mine, the 'Cambia' may help for a time. I do know this med as Diclofenac, which I have tried, it is a NSAID, which is vaguely related to Indomethacin as Indo too is a non-steroidal anti-inflammatory med.

Sadly the Diclofenac only worked for a short time for me, it soon lost its efficacy. It has a powerful effect on the digestive tract so make sure you take this following food.

If you do try Indomethacin at any time, please make sure you have a 'tummy protector' such as Lansoprazole or Omeprazole to counteract any effects on the gut!

I look forward to hearing about your experiences with this.

take care

Ann
Co-Moderator of the Migraine/Headache Forum

DX: Hemicrania Continua, Chronic Migraine, IBS, Allergic Rhinitis and Heart Murmur

Meds: Imigran Injections, High Flow Oxygen, Mebeverine, Lansoprazole, Nasonex and Clarityn

kkrn
New Member


Date Joined May 2011
Total Posts : 1
   Posted 5/7/2011 7:17 PM (GMT -7)   
I was recently given a sample of Cambia for my migraines. When I used it, my headache was gone within an hour. it worked WAY better than the vicodin I have been taking.

That being said, i will not be asking for a prescription anytime soon. I checked with my insurance company regarding the cost.... $200 per packet. Ridiculous.......

If you are lucky enough to have good rx coverage, I hope it works well for you too! Be warned, the taste is awful: it's a powder you mix in a couple tablespoons of water. I did not have nausea with that particular migraine, but I am quite sure, had I already been nauseated, it would have made me vomit. But it DID relieve the pain!!!!!

Good luck with your migraines-

ShortStory99
New Member


Date Joined May 2011
Total Posts : 1
   Posted 5/20/2011 9:54 AM (GMT -7)   
Cambia works VERY quickly. You are actually supposed to take it on an empty stomach.  This is printed in the patient instructions.  My insurance didn't cover the cost of the  prescription either.  It is actually not $200 per packet, but $200 per prescription.  There are nine packets with each prescription so that makes each dose about $22.  I think that is worth it, considering my migraine was gone in 15 minutes!!!

cookiesbylisa
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/6/2011 4:22 PM (GMT -7)   
I have tried Cambia, but it was short lived. It brought the migraine from level 8 to a 5 but can't take another dose for 8 hours. I have 3 to 4 migraines per week....it sucks!

mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 9/18/2011 6:24 PM (GMT -7)   
My neurologist just gave a Rx for Cambia, but my pharmacy had to order it because they do not normally carry it. That being said it must not be to popular. I have tried just about everything. I had never heard of Cambia until this past week. Kinda of weary of the terrible side effects it list. I found a coupon online that I can use to get it free, so I guess it's worth a shot. I have tried DHE in the hospital for my migraines, but it was short lived. The neurologist told me there is a DHE injection that I can do at home, have any of you tried it?? This has been a very hard weekend for me. I've had a migraine for days now! Picking up the cambia tomorrow guess we will see. :-)

Mercyme

abrahaml
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/18/2011 7:32 PM (GMT -7)   
My neurologist is considering giving me Cambia as well. I have tried DHE in the hospital multiple times and I also have DHE and toradol injections at home (along with daily preventatives, Zanaflex, Zofran, Benadryl, and Valium). Hopefully I'll have more success with the Cambia. We're trying that because aspirin has been pretty helpful for my chronic intractable migraines, however, the side effects aren't very pleasant.

Bhedge
New Member


Date Joined Dec 2011
Total Posts : 4
   Posted 12/21/2011 11:52 PM (GMT -7)   
Mamahen, please post your experience with Cambia. I'm in desperate need for a non-narcotic relief of my daily headaches. Even if I can only use it 9 times a month, if it works, I'd love to try it.

Also, what is DHE? Can someone tell me?
Thanks, I'm new to this site.

Larrys girl
New Member


Date Joined Oct 2012
Total Posts : 1
   Posted 10/30/2012 8:47 AM (GMT -7)   
wink  I have never been so happy to find a medicine. Cambia claims to relieve migraines within 15 minutes and at least for me, it does just that. I have suffered on and off with migraines for about 35 years and have not found anything that works like this.
The only downside with it is the cost. Even with an insurance RX card, it cost me $21 for 9 doses. My doctor initially gave me samples to try first. Knowing how good it worked, I didn't mind paying it.

lab01343
New Member


Date Joined Aug 2012
Total Posts : 18
   Posted 10/31/2012 7:36 PM (GMT -7)   
I was excited to hear about your success with this drug. I see my nero tomorrow and wanted to talk it over with him.... shakehead its an NSAID and of course I'm one of those people who reacts to NSAIDs. Oh well, I'll keep looking.

trekkinjane
New Member


Date Joined Nov 2012
Total Posts : 1
   Posted 11/17/2012 11:10 AM (GMT -7)   
I tried Cambia the other night. It didn't work within 15 minutes. I fell asleep about 30 minutes after taking it and still had the migraine but I woke up feeling fine. I'm a little confused as to why the first inactive ingredient is Aspartame as that has been known to cause many people headaches. I told my doctor that I got headaches with artificial sweeteners so when I saw this on the label I was surprised this was one of the medicine's she gave me to try. She also gave me relpax, frova, and treximet. It's weird, now that I have these meds to try I'm not afraid to have migraines but I'm still nervous they won't work.

Jocharanna
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Date Joined Mar 2013
Total Posts : 2
   Posted 3/20/2013 6:42 AM (GMT -7)   
I have used Cambia for quite some time, if you use it very early in a headache it works well, but once in a while it doesn't. when it doesn't and I find myself in the er, I have to be sure to tell them that I can't take Torodol. They are both nsaids, and I was told not to even take ibuprophen if I've had Cambia. The er docs usually don't know what Cambia is, so be careful there.

Jinnettep
New Member


Date Joined Nov 2013
Total Posts : 1
   Posted 11/4/2013 5:32 PM (GMT -7)   
I'm 53 and a new migraine sufferer. I had 8 in October. The first thing the neurologist did was take me off all pain killers I was taking. He then put me on 20mg of elavil and gave samples of cambria. It's been a week since my last migraine and I've used the cambia 3 times. One of the times I took it during an episode and it took a half hour to go away. The other two it took 10 minutes. My insurance hasn't approved it yet so I'm hoarding my samples. Being such a newbie I feel my experience isn't what you guys have been through. I only just had my first MRI ever today.

Jeh
New Member


Date Joined Feb 2013
Total Posts : 2
   Posted 1/1/2014 12:36 PM (GMT -7)   
Unfortunately, I am not new to migraines. I've had them since I was a teenager and I am now, almost 60.  I've had periods through out my life where the migraines were occasional and other periods where the migraines were chronic. I've tried everything
for relief. For ME, my greatest relief is chiropractic care and life balance. I'm currently on Topamax 75mg two times a day. BRUTAL medication, but it works. It took a year for me to adjust to the side affects of topamax and I am happy to say I have gone from CHRONIC MIGRAINE (20 or more a month) to an average of about 8 a month. This is a huge improvement. The migraines are far less severe in attack too. I also take CAMBIA and or RELPAX as an abortive measure. Now that I am not 100% of the time in prodromal stages, I am actually functioning pretty normally.  The progress has been remarkable and I'm hoping I will finally see the end of these migraines.
 
It also took me about a year to fully understand HOW to properly take the CAMBIA.
 
Always having migraines and always being in a state of recovery, I was so confused about everything. YIKES! This is a terrible way to have to live. Few people seem to know about CAMBIA, my Pharmacy (it's a large pharmacy) orders it for me only. The drug reps need to get out there and promote the product. It works much better than any medication I have taken over 45 years.
 
As for gastrointestinal upset. I wait until the edge is off the migraine, then I eat some crackers or toast. It works best on an empty stomache.

Don't give up
New Member


Date Joined Jan 2014
Total Posts : 1
   Posted 1/14/2014 12:58 PM (GMT -7)   
Cambia is an anti-inflammatory more general on stomach as it is dissolved in water and bipasses the stomach. Unlike neproxin. Pay no attention to my spelling. My wife is trying it now. She is a chronic MG suffer and has about 20 per month. Seeing a new Doc who treats migraines (ONLY). Also trying a DHE cocktail. This Neurologist is one of the best in NY, so we are praying may finally work. It's been a very bad year for my darling.

jbracer007
New Member


Date Joined Jan 2014
Total Posts : 1
   Posted 1/15/2014 9:30 PM (GMT -7)   
I have almost the same story as you! I was pregnant/nursing for a long time and having migraines... I was able to start treating them starting 2 years ago. I tried Imitrex/Maxalt, then went to BP meds, and Topamax but I had side effects on all of them that conflicted with being a mother... and a person in general, lol! My neurologist suggested a combo migraine supplement (Preventa Migraine) that has Butterbur Root (PA free), Feverfew, Magnesium Citrate, and B2 in it. It took a few months but I went from 12-15 migraines a month down to 1-2 a month and I haven't had any side effects.

Mrsderby
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Date Joined Oct 2012
Total Posts : 4
   Posted 2/19/2014 9:39 PM (GMT -7)   
I have been taking Cambia powder for over 2 years now. It is correct that few people know about it so I spread the word whenever I can. I also do not leave the house without a packet. FYI, hospitals only carry the Diclofenec pills and they do not work. I show them the Cambia packet, they look it up, and allow my husband to bring my own supply in to take. Have never had them say no. (besides, I would sneak it if I had to). No, it does not work every time. Neurologist says nothing does. But 99% is better than nothing. And if I am away from home and do not have a cup handy to mix it in I pour it directly on my tongue followed by a mouthful of water (which I always have), swish it around in my mouth then swallow it. Still works just fine. I don't know about you guys but my migraines have no warning, leave me temporarily blind and start with instant, excruciating pain. I have no time to wait for anything to be convenient. I can't even drive because of them. So I will pay the cost and deal with the inconvenience to have the pain gone in 15 minutes. Absolutely a lifesaver. BTW, the 2 times it did not work the Neuro was able to give me trigger point injections which worked just as well.

Nomore Pain
New Member


Date Joined Sep 2014
Total Posts : 2
   Posted 9/16/2014 5:09 AM (GMT -7)   
I am new to this forum but not new to migraines. I got my first one at around five years old and relied mostly on Fiuronol when I was younger and in more recent years Imitrix. I'm now in my mid fifties and experiencing an increase in the frequency of the headaches and finding that Imitrix is not really working. I've now had a headache for about two weeks.

Earlier this summer when I had a one-week headache, the headache center I go to in Manhattan gave me an injection of magnesium and Torodol and prescribed Relpax to use at home. The shots always work to take the pain away immediately, but they are never long-acting.

Relpax definitely worked but I could not deal with the side effects, which for me were extreme fatigue and joint pain. I was also put on a short-term course of steroids and that time the headache stayed away for about a week.

Since then, headaches a couple of days/week, but then this round. I got another injection but it only worked for a few hours. I was prescribed Naratriptan and Nabumetone (the latter is a strong anti-inflammatory). This combo was not very effective and now we are going to try Cambia and start taking Nadolol as a preventative.

At the recommendation of someone in this forum, I printed out a coupon from the Cambia site.

I'm a bit nervous about these recent developments. Although I've dealt with this pain my entire life, it's never lasted this long, and I'm concerned about the amount of medication.

I'll let you all know about the Cambia so that other people might benefit (although we are all different, of course) just as I feel I am for being part of this community.

sanfrangirl1995
New Member


Date Joined Oct 2014
Total Posts : 3
   Posted 10/31/2014 9:38 PM (GMT -7)   
Hi. I am new here and have had at least 10 -12 migraines a month, seems they really started after I hit menopause. Imitrex has not worked too well. I find the Imitrex injections work a little better.. Last summer i went up to the Univ. of Florida and saw the head neuro doc and he gave me Toradol injections--a very strong NSAID. He said take them any time I needed, no limit!!! What a disaster it became. Yes, they relieve the pain but should only be used a few times according to my pharmacist. After having some kidney problems I found out that this was not prescribed correctly. I am not bashing the medical profession-- my ex is a doctor. I started Cambia in June this year and usually do pretty well. I too wonder why there is aspartame in it as it is a big trigger for me. You do need to take it on an empty stomach and being a strong NSAID can not be great on the tummy. I usually have to take a second dose 2 hours later. I have a $95. copay that I don't really love but what can you do. I have been on Depakote for years (for depression) but I don't think it really helps the migraines much. Would like to try a beta blocker or calcium channel blocker next. I used to have a much more fun, active life. Long days at Disney but I fear getting a migraine and being incapacitated.

Chooch
Regular Member


Date Joined Mar 2013
Total Posts : 30
   Posted 11/2/2014 7:02 AM (GMT -7)   
i have tried Cambia a couple times and unfortunately for me within a couple hours the migraine is back. I also have Sumval shots that work pretty well for me. I also just did a 3 day regime for Frova, which really helped..until I was done with it. I have chronic migraines and meunières. . From reading everyone's posts it looks like it works for some of us and not really for others so you should maybe try it you never know you may have good luck with it. My dr game me a box of samples to try. Good luck

sanfrangirl1995
New Member


Date Joined Oct 2014
Total Posts : 3
   Posted 11/3/2014 11:30 PM (GMT -7)   
I know for me my migraines got worse with hormones and tried to gradually go off them this year and just couldn't stand it. I was one who said I would NEVER take hormones!!! I live here in hot, humid, disgusting Florida (sorry if I offend anyone) and the hot flashes were too much to bear. My migraines tend to go 2-3 days I don't know if this is how others are too. The cambia has helped some, some times not as much as I would like.....I get sick of the fight sometimes but I can't give up. I have tried a strict migraine diet as per my neuro doc and being a 30 year vegetarian and mostly vegan i was so lost and missed nuts and soy and all that I had to give up. I may try topomax again, took it for depression a long time ago. For now cambia has been the best but not perfect. it's hard on the tummy though.

SummerBreeze
New Member


Date Joined Nov 2014
Total Posts : 1
   Posted 11/10/2014 11:27 AM (GMT -7)   
sanfrangirl1995...do you live near Gainesville? I ask because my daughter is in school there and we are looking for a good neurologist for migraine. When you said you had a bad experience with the top neuro doctor at UF - I wonder if you have found a neuro you like. Thanks for any info you can offer - she still sees her neuro in South Florida but at some point will need to transition.

BTW...she uses Cambia along with Relpax and it is helpful.

sanfrangirl1995
New Member


Date Joined Oct 2014
Total Posts : 3
   Posted 11/10/2014 2:08 PM (GMT -7)   
Hi SummerBreeze. I live about 90 minutes from Gainesville. I do go up there weekly to see my therapist but don't see a neuro doc there. The one I had a bad experience with is no longer there and of couse there is a huge clinic affiliated with UF' I never saw any one else there though. I see some one now in Ocala about 30 minutes south of G'ville. I think he is ok but not aggressive enough. He will say just let the migraine run it's course... it won't last forever, 5 days in bed is too much for me. Does your daughter takeCambia and Relpax together??? I have not tried Relpax. I have had IBS issues lately and am back on imitrex injections and they
just don't work too well, even with a second dose later. Good luck to you and your daughter.
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