Daily chronic headache and pressure in head

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bollyb
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/10/2011 2:24 AM (GMT -7)   
i have a chronic daily  headache and pressure in the head for a year nw.it all started with lightheadedness and dizziness alongside burning sensations all over my scalp and face.Later i started having pressure in my head.the feeling is so bad that i feel am carrying a heavy load on my head.Sometimes i feel there is water in my head.
      I av visited 12 Doctors  including neurologists.i was told its anxiety.Av had brain CT which came out normal.Av taken Amitryptiline and paloxetine,no improvement.I sleep and wake up with this stupid feeling and its driving me crazy.Ifeel am not normal and as a matter of fact,am not enjoying life anymore.Am so scared!!!!Can somebody help me!

mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 7/10/2011 5:49 AM (GMT -7)   
Sorry you are dealing with so much pain. I can relate to what you are going through. I have daily chronic migraines. I feel like I have so much pressure on the right side of my head. I had brain surgery 9 years ago to remove a damaged part of my brain due to scar tissue that was causing me to have seizures. After all this time I am seizure Free! and it feels great!! Now my problem is these chronic migraines that will not go away! I also have neck pain with my migraines, throbbing shooting pain, and burning pain. What does you neurologist say about the pressure you feel in your head?? I have tried so many drugs for my migraines, just a few are topamax, fioricet, zanaflex, amitripline (sp), toradol, imitrex, maxalt, relpax, frova, zomig, botox injections, dhe protocol in the hosptial, and a few other drugs that I can remember right now. None of these things have helped me. I am seeing my family doctor on July 13th and am going to get him to refer me to a new neurologist in hopes that he might have another approach with dealing with these migraines. I know I'll probably have to have another MRI of my brain and neck. Have any of your neurologist ever mentioned intracranial hypertension? meaning fluid in the skull that pushes on your brain causing all that pressure?? I'm not sure if the MRI would show that or if they have to do a spinal tap to measure the presure of the fluid. Just a thought. I hope you get some answers, and no it's not a good thing to deal with on a daily basis. There are days I think please God don't let me live with this pain the rest of my life! I'm not giving up on Hope.

Many Blessings,

Mercyme


Am I allowed to give you my email here on this site??

Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted 7/10/2011 9:52 PM (GMT -7)   
There's several folks around here who have pressure in their head, myself included.  Mine has been 24/7 for seven years, though I don't have pain or migraine with it.
 
I had an MRI and MRA which were apparently normal.  I was prescribed Topamax.  I started with 25mg and slowly got up to 75mg of it.  I was on that dose for a little more than two weeks.  It didn't bring any relief, and the side effects were personally challenging.  The neurologist thought that if 75mg didn't help, 100mg wouldn't suddenly start helping, and so I tapered off the drug.
 
I'm supposed to try Depakote next, a drug which has an even worse reputation than Topamax.  I'm starting to doubt the idea that anticonvulsants can benefit me at all in this.  Then again, who knows.

bollyb
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/14/2011 10:35 AM (GMT -7)   
Many thanks to you .I seriously hope we get a solution to this head pressure someday.

bollyb
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/14/2011 10:50 AM (GMT -7)   
Batman55 hw av u been feeling for 7 years?

bollyb
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/14/2011 10:52 AM (GMT -7)   
Mercy me,you can give your e mail

Lucyemma
New Member


Date Joined Aug 2011
Total Posts : 1
   Posted 8/1/2011 5:35 AM (GMT -7)   
Bollyb, it sounds like you have exactly the same problems as myself. my headaches started 18 months ago and since then i can count on one hand the number of days i have been without pain. i have also seen numerous docs and, although sympathetic, they do not seem to have any explanation for the causes. i have had a mri scan and that came back clear and have had various blood tests which also came back clear. i was on Amitryptiline and Paramax along with Sumpitripan but found recently that they are no longer being effective (even when i have been taking them, the pain is only ever eased rather than taken away). the last doctor i saw a week ago has stopped me taking Amitryptiline and has prescribed Gabapentin. i'm unsure of this as having looked up the info, this medication seems to be more for epilepsy sufferers or for people who have aches and pains in their limbs rather than head. also, it is causing me to be very dizzy and lightheaded. does anyone else know anything about this medication? on another note, i have been wondering if a hormone inbalance could be contributing to my headaches- i mentioned this to my doc and although she said hormones had a common link with headaches she didn't go into any more detail.
any info would be much appreciated! thanks

ChrisAnne
New Member


Date Joined Feb 2013
Total Posts : 1
   Posted 2/16/2013 7:58 AM (GMT -7)   
I also suffer with chronic head and facial pain every day, I have had this for seven years now. Have had every tablet they can throw at me including Botox, none have helped still hoping there is something out there to help?

xrunnerx08
Regular Member


Date Joined Aug 2012
Total Posts : 91
   Posted 3/22/2013 12:46 PM (GMT -7)   
Have all the same symptoms as you...

It is LYME. See an LLMD. Chronic all of the sudden head pressure=lyme/co-infections.

k8t11
New Member


Date Joined Mar 2013
Total Posts : 4
   Posted 3/31/2013 3:44 PM (GMT -7)   
Hi,

Everyones symptoms with migraine are different. Some people don't even get pain with migraines, its called an optical migraine. Your pressure cld be just a symptom of your migraine and they can be transient therefore the facial tingling or numbness u experience is not uncommon.

Chooch
Regular Member


Date Joined Mar 2013
Total Posts : 30
   Posted 4/3/2013 7:16 PM (GMT -7)   
I have had my migraine since Nov 12. Before that it has been on and off..My system is extremely sensitive to most medications so I get 99% of side effects...I have the following migraine symptoms dizziness, tingling of the scalp, face, nausea, light sensitivity, extremely sharp pains shooting through my head, pressure in my face and sometimes it feels like a dropping feeling in my head oh and I do get Vertigo as well. MRI was normal. I am now leaving work early or missing work altogether because of the darn headaches. I am trying to get into a new Neuro who is supposed to be the best in my area....We will see...Good luck all and if anyone has any suggestions, let me know!!!

Wireless Headache
New Member


Date Joined Sep 2011
Total Posts : 11
   Posted 4/11/2013 2:09 PM (GMT -7)   

Its a vicious cycle, your anxiety is triggering your headaches, then your headaches are triggering your anxiety, so your anxiety feeds the headaches, and the headaches feed the anxiety. I know it must be hard to try and do things when you have a headache, but are there times where your headache feels a little less painful? You should try going out for a nice long walk then, then from there see how it goes, then go for a jog, then go for a run, just a smooth progression, don't try and start running immediately. Why I suggest this is because doing this kind of physical activity can release endorphins which relieve stress, anxiety, depression, because I hear that you are experiencing that.

Try it and see how it does, you should keep track of your headaches and your progress to. If you have an iPhone, there is a study that is being conducted by researchers at the IWK Health Centre to test a headache diary app. This app has a pain diary that allows you to keep track of your headaches whenever they happen and provides helpful reports to help you to identify your headache patterns. Its an electronic study, so you can participate no matter when you are, just follow this link to find out information about the study and how you can participate: https://oak.mywhi.ca/


abbb326
New Member


Date Joined Jan 2013
Total Posts : 3
   Posted 4/17/2013 6:38 PM (GMT -7)   
has anyone found a relief? I have been dealing with this tightness in my head since Aug. First they thought tumor. I've had mri and ct scans everything normal. thought it was chiri malformation it's not that. thought it was my spine and neck. been to the chiropractor numerous. hasn't help. thought it was vitamin deficit. not that. my optic nerve was swollen. now they say that was sinus. I have no sinus problems. had ct on that to prove it. blood work everything checked. everything is normal. just got my wisdom teeth removed to see if that would help. it's still there. I have been to see an allergist. not allergic to anything. had a pituitary mri. that's fine. been on lexapro 20mg for the past 4 months. that hasn't helped either. I'm going crazy. I have tightness through my ears and on top of my head. feel foggy and real out of it all the TIME. I'm so tired of feeling like this and everyone thinks I'm crazy.

Kathykhatiza
Regular Member


Date Joined Apr 2013
Total Posts : 24
   Posted 4/18/2013 8:57 AM (GMT 0)   
bollyb said...

<font color=#800080> I av visited 12 Doctors including neurologists.i was told its anxiety.Av had brain CT which came out normal.Av taken Amitryptiline and paloxetine,no improvement.I sleep and wake up with this stupid feeling and its driving me crazy.Ifeel am not normal and as a matter of fact,am not enjoying life anymore.Am so scared!!!!Can somebody help me!
Are u any better I feel like Iam going crazy only 22 and want to die do to this feeling

Kathykhatiza
Regular Member


Date Joined Apr 2013
Total Posts : 24
   Posted 4/18/2013 2:01 AM (GMT -7)   
I have head pressure feeling hot inside head burning inside ears headache and this symptoms are 24/7it drives me crazy dealin with it fOr 2 years want to kill
Myself bexause I feel like I won't get better Iam only 22 so I do not know what to do the doctors did everything they can but no improvement i want to die please email me on khatiza6@aol.com need help Wat to do

Kathykhatiza
Regular Member


Date Joined Apr 2013
Total Posts : 24
   Posted 4/18/2013 2:01 AM (GMT -7)   
I have head pressure feeling hot inside head burning inside ears headache and this symptoms are 24/7it drives me crazy dealin with it fOr 2 years want to kill
Myself bexause I feel like I won't get better Iam only 22 so I do not know what to do the doctors did everything they can but no improvement i want to die please email me on khatiza6@aol.com need help Wat to do

Kathykhatiza
Regular Member


Date Joined Apr 2013
Total Posts : 24
   Posted 4/18/2013 2:01 AM (GMT -7)   
I have head pressure feeling hot inside head burning inside ears headache and this symptoms are 24/7it drives me crazy dealin with it fOr 2 years want to kill
Myself bexause I feel like I won't get better Iam only 22 so I do not know what to do the doctors did everything they can but no improvement i want to die please email me on khatiza6@aol.com need help Wat to do

Kathykhatiza
Regular Member


Date Joined Apr 2013
Total Posts : 24
   Posted 4/18/2013 2:09 AM (GMT -7)   
bollyb said...

<font color=#800080> I av visited 12 Doctors including neurologists.i was told its anxiety.Av had brain CT which came out normal.Av taken Amitryptiline and paloxetine,no improvement.I sleep and wake up with this stupid feeling and its driving me crazy.Ifeel am not normal and as a matter of fact,am not enjoying life anymore.Am so scared!!!!Can somebody help me!
I need help same feeling i tried killing myself because the doctors think its anxiety does that mean i have to live like this

xrunnerx08
Regular Member


Date Joined Aug 2012
Total Posts : 91
   Posted 4/18/2013 8:16 AM (GMT -7)   
YOU ALL HAVE LYME DISEASE. Same exact symptoms. Went 1 year un diagnosed. You most definitely have co-infections. Nothing is helping because you aren't being treated with antibiotics. Go to the Lyme forum and start your journey. TRUST ME.
Doxy 200mg x2 daily, Mepron, Zithromax 600mg at night, Bactrim DS twice a day, Valtrex 1 gram 3 times a day, Artemisinin, Cryptolepsis, Vitamin C 2000mg 3x a day, 4000mg Vitamin D3, Resveratrol, Green Tea/Liver Detox Support, Samento, Cumanda, Pinella, Mora, Ginko

abbb326
New Member


Date Joined Jan 2013
Total Posts : 3
   Posted 4/18/2013 9:51 AM (GMT -7)   
but i have no spot where a tick would have bit me..? wouldnt you see a spot and wouldnt it be inflammed and red?

Kathykhatiza
Regular Member


Date Joined Apr 2013
Total Posts : 24
   Posted 4/18/2013 8:04 PM (GMT -7)   
I
Had antibiotics for a week with no relief so Wat should I do

Kathykhatiza
Regular Member


Date Joined Apr 2013
Total Posts : 24
   Posted 4/18/2013 11:53 PM (GMT -7)   
I
Really want to
Die I have pressure burning on my head inside I barely could
Work I have and barely go to school I rather die

tami1961
New Member


Date Joined Aug 2011
Total Posts : 1
   Posted 4/20/2013 9:07 AM (GMT -7)   
I have had frontal forehead pressure for 16 years. This is daily. I get up and it builds. I am up only a few hours before I need to lay down to relieve pressure. The headache never changes with the exception of intensity. Some days are better than others. I'm going to respond to some earlier posts also while writing this.
Alchohol...I used beer for about 12 years to numb the pressure and pain. It worked well on the pain and pressure (after 3) but caused some migraine type headaches the next day. After my last sinus surgery (lothrop procedure) I can't tolerate alchohol at all. Fentanyl patch worked well at first but I had to go higher in doseage ever six months or so plus I had breakthrough pain every two hours. Off the fent. patch and now I've taken tramadol with Fent patch and was rebounding from taking too much tramadol. Now I am on oxycodone...which helps but I'm already adjusting to it and will need stronger dosage.
Chewing gum and laying my head over edge of bed: The one thing that has been constant for 16 years is chewing food always relieves the pain.. Lying down always relieves pressure, not completely but greatly.
I've had 8 or 9 sinus surgeries, saw two neurologist, done the migraine method and am on botox now. Trying migraine path again now. I personally think this is csf leak but my brain doesn't sag on mri. The pressure came on out of nowhere.
I quit my job 13 years ago and work from home and don't make much money. Life has been hard and this pressure is enough to drive me insane.
I'm sorry for all those who suffer with constant head pain. It is so life altering.

nspeedracer
Regular Member


Date Joined Feb 2013
Total Posts : 161
   Posted 4/21/2013 2:23 PM (GMT -7)   
i have to second testing for LYME! most likely co-infection BABESIA
i have constant headaches. im in my 4th month of treating w antibiotics. u need mepron/malarone for babesia antibiotics wont kill it, its a parasite.
i never saw a tick or bite but im lyme positive.

tami- can u get a second opinion, had a spinal tap measuring csf pressure? does sound pressure linked if lying down relieves pain

abelieverpm
New Member


Date Joined Apr 2013
Total Posts : 4
   Posted 4/23/2013 6:02 PM (GMT -7)   
Kathykhatiza,
I can empathize with your constant pain and suffering! I have had a 24/7 burning headache for years, also. Though I hope the advice given above will be helpful to you, I want you to know that there is HOPE for you!
Though this forum is not religious in nature, because of what you are going through, I must write that God is able and willing to help you! Through Jesus, God has made available healing for every aspect of our existence- spirit, soul AND body. Along with the other advice offered you on this site, I encourage you to call on Jesus for help. In his name God offers countless miracles! I also encourage you to read the New Testament to learn for yourself the great news that God wants you to know! God has made Himself real to me and if you WANT, He will make Himself real to you, too!

Sincerely, Patrick
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