Migraines, eye drooping, numbness in face/head, bumping into walls, PLEASE HELP

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shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 9/1/2011 6:49 AM (GMT -6)   
Hello everyone,
 
I am new to this board, but not new to Migraines. I have suffered what I would call "typical" migraines over the last few years. They all started after a total hysterectomy i had due to way to many female issues. I am 38 and was put on vivelle dot, hormone replacement.
 
On Aug. 4th, this year, i started with a mild headache, then went to fill my frova at walgreens and promtly ran over the drive thru lane dividers. Kinda thought it was weird, but didn't really think much of it. Little bit later, i took my kids to camp and got lost comming home twice, where i turned the wrong way and it took a second or two to realize where i was going.
 
I got home and my sister in law came to take me to the ER. When she got to my house she looked at me and said "what is wrong with your eye?" Come to find that my left eyelid was drooping considerably.
 
At the ER i was seen by a Neuro in my group. They did CT, MRI, and Spinal tap. ALL came back normal so they ruled it migraine. They added Depokate.  I was relased after 3 days. The problem is that this headache has not gone away.  I have at the very least a bad headache each day, i have taken probally between 10-15 frova to stop oncomming migraine in this last month. I have started to go down hill again, eye droops for a few minutes then goe back to normal, left side of face has pins/needles and my headache is worsening each day over the last two to three days.
 
I saw my neuro yesterday, and he was sorta like, "well, everyting came back fine, it's just a migraine" I wouln't worry was his suggestion....he added a fast prednisone taper, and sent me on my way. I really don't know what to do. I can't eat, im sick to my stomach, dizzy, tons of eye lights, ect, have not slept a wink in two nights now....any ideas???????

jewishmother
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 9/1/2011 8:38 AM (GMT -6)   
When a doc says "just a migraine" - it is time to see a new doc. Can you go see a migraine specialist? Have you noticed a pattern to try and identify what your triggers are? Do you have aura symptoms each time before the pain begins? Migraines can have a huge impact on our day to day lives and you need to find a more supportive medical staff who can help you learn how best to manage not only the pain but also the aura symptoms. Please keep us posted. L

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 9/1/2011 10:42 AM (GMT -6)   
All I can seem to find is Neurologists, I live in Miami, so im sure there must be someone.

I do feel like my hormone therapy is playing a huge role with my migraines, so i am seeing an endocronologist on the 16th. The pattern seems to be when I apply a new patch.

I assumed that aura before migraine, would include the lights in my eyes, black spots in my eyes, riging of ears, pins/needles...those are typical for me, but my Neuro has written that I have migraine without aura. Am i confused on this?
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 9/4/2011 12:20 PM (GMT -6)   
Hi Shannon,

Sorry to hear about what you have been going through. The eye droop is an autonomic symtom that can go with a few different types of headache. A general Neuro is not usually experienced enough to diagnose headache correctly, especially some of the rarer ones!!

I would strongly urge you to find a Neurologist who is a 'Headache Specialist' and get a proper diagnosis. I am not a Doc so my advice comes from some limited knowledge of working on a Headache Helpline here in the UK and from my own experience.

I wish you all the best, please let me know how you get on??

take care

Ann
Co-Moderator of the Migraine/Headache Forum

DX: Hemicrania Continua, Chronic Migraine, IBS, Allergic Rhinitis and Heart Murmur

Meds: Imigran Injections, High Flow Oxygen, Mebeverine, Lansoprazole, Nasonex and Clarityn
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