I have been suffering from migraine headaches every day.

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Gnarlze
New Member


Date Joined Sep 2011
Total Posts : 1
   Posted 9/8/2011 12:21 AM (GMT -6)   
I have always had horrible headaches from age 8. When I turned 16 years old I had a massive pain in my head like never before and went into a pyschosis breakdown and it took me months to stop having olfactory hallucinations, visual hallucinations, and auditory hallucinations. I am currently 19 years old and still suffer from migraine headaches. Before I get a migraine I am also getting that same olfactory hallucination, which is a horrible burning smell that does not exist in real life. My migraines also are accompanied with aura, naesea, vomitting. I have lost up to 30 pounds in a few weeks from being unable to keep food down. The area in which my pain is, is located in the back of my head/neck area and the left side of my head throbs and then goes numb. I have had several CT scans, a MRI, a MRA with dye injected, and a EEG. My first EEG test right when I was in pyschosis was completely abnormal and my doctors blamed it on medication they prescribed me. The MRA with contrast picked up on a sist in my thyroid gland which was small and going to be monitored. Meds I have tried for my migraines are tylenol (1000mg), ibuprofen(800mg), excederin migraine (1000mg), Depakote (1000mg), Neurontin (800mg), Indomethocin (50mg), Vicodin (1000mg/4 Hrs), Darvocet (1000mg/4 Hrs), Fioricet, Ultram ER 100mg, Propranalol, Verapamil, Migranol, Decadron, Toradol, Cymbalta 60mg, Topamax, Frova, Reglan, Imitrex, Amitryptaline. The only thing that eliminates my pain is prescribed pain meds and when they don't work I have to go to the ER for a migraine cocktail. I was put on many antipyschotics for pyschosis I don't know if that matters. I have had two head injuries in my life also. A car crash in winter, and I fell down my hardwood cellar stairs. I was also never depressed/stressed out. I suffer from severe anxiety and take Xanax to control it. If anyone has any idea what this may be or a cause please get back to me.

goflihi
New Member


Date Joined Sep 2011
Total Posts : 2
   Posted 9/9/2011 7:59 AM (GMT -6)   
Hi, I have temporal lobe epilepsy and suffer excrutiating migraines with aura. I also have olfactory hallucinations -- cigarette smoke when no one around me is smoking. I had it 24/7 for years until my migraine specialist prescribed Lyrica, which is an anti-epileptic. It worked instantly -- the first morning after I took it I didn't smell smoke when I woke up and it was like this wonderful miracle. I've been taking Lyrica for a few years now and if I miss even a single dose the smoke comes right back. After Lyrica worked so well for me, I was referred to an epilepsy specialist who put me in the hospital for a video EEG, which uncovered temporal lobe epilepsy. This diagnosis explained sooooo many of the very strange and varied symptoms I'd been experiencing for years, and honestly came as a complete surprise to me as I had no understanding of that form of epilepsy. I tried a few different drugs before finding some relief with Lamictal. I also suffer from severe, debilitating anxiety (I don't feel stressed when this happens, I just feel the physical symptoms) and tried absolutely everything to try to get rid of it. My therapist finally had me try a little electrical stimulation device called Alpha Stim, and amazingly it made a huge difference. I was extremely skeptical, seems like quackery, but I'm a believer now. But I still have plenty of breakthrough headaches, anxiety and seizure activity and it continues to greatly decrease my quality of life, and no one (other than my husband and best friend) understands because I 'look fine'. If I hear that one more time.... Anyway, I hope you find your answers, and some relief. See if your doc can schedule a video EEG for you. I wouldn't accept their analysis that your original EEG was abnormal because of drugs -- if that was the case, why in the world would they have given you that test while you were on the drugs? Good luck -- it certainly is difficult to go through life with those kinds of problems.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10379
   Posted 5/29/2013 1:08 AM (GMT -6)   
I will tell you what has worked for me but I don't know whether it will work for you. Firstly, ponstel helps stop a migraine for me. I take one or two capsules and it usually helps fast. I also use zomig, that helps sometimes but other times, no luck. I have taken pristiq antidpressant and that helped a ton and it was good for daily use because it's a preventative. I also believe the birth control pills I take help because I don't get my cycle and that triggers my hormones and causes migraines.

i tried axert, maxalt, frova, fiorcet and a bunch of OTC stuff without any benefit. I've also tried painkillers but they just make me feel nauseous and I still have the migraine.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Lialda (2400mg) + Canasa (1g PM)

Ambii
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/29/2013 1:36 AM (GMT -6)   

Hi, i'm new on this forum. I too have had migraines for many years, and I am only 22. The only time in my life I can actually remember not having migraines was when I was pregnant with my now 2 year old daughter. I guess the hormones helped somehow. As of now, I get migraines daily, and after many many tests and trips to the neurologist, I am at the last straw in my treatment, that being that since every other thing I tried gave me a bad reaction (most likely due to my high sensitivity as I also have fibromyalgia, CFS, panic attacks,) or it just did nothing for me.

Anyway, I have been doing ALOT of research on my own. I have also gotten some amazing advice from an e.r. doctor, whom I saw because my migraine (of 72+ hours,) would not go away and I had tried everything. He told me that taking 2 regular strength Ibuprofen, and 2 benadryl together at the very first sign of pain, could help and that I should give it a try. It works miracles! I wouldn't go so far as to say that it cured my migraines, but the severity and duration are significantly improved when I take them. Before that e.r. visit, I never would have thought of benadryl for migraines.

I was also told, that if the ibuprofen and benadryl cocktail isn't enough, taking anti-nausea meds might do the trick, as when you are having a migraine, your digestive system slows to an almost complete stop, and by taking anti-nausea meds, your tricking your body into thinking its ok and therefor allowing the medications to pass through and do their job.

Other things that I have found to be helpful:

A heating pad, on low, on the back of the neck.

Anything that smells of mint, I have even gone so far as to use vick's chest rub to avoid a

nocturnal migraine.

Drinking straight black coffee, which can also trick the stomach/digestive tract into doing

it's job.

Massaging the neck and scalp.

And ultimately if none of those things work for me, I baracade myself into my bedroom,

turn off anything with a light, (computer, alarm clocks, tv, EVERYTHING) and put in a

pair of earplugs and allow nature to take it's course. I do try to make sure that I am

laying flat, with no pillows, and I ask someone to check on me periodically as

being a migraineur can convince you that even something as serious as a

stroke, is just another migraine.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10379
   Posted 5/29/2013 10:20 PM (GMT -6)   
Hey Ambii, Welcome to the group. I am sorry you've been struggling so much with these migraines. Did you see my post above? I've had good luck with antidepressants and birth control pills.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Lialda (2400mg) + Canasa (1g PM)

Angel99
Regular Member


Date Joined May 2013
Total Posts : 40
   Posted 6/6/2013 5:47 AM (GMT -6)   
Hi Notsosicklygirl,
How are you feeling today?
Have you gotten closer to answers to give you relief?
Angel99
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