New Topic Locked Topic Printable Version
54 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

Nance
New Member


Date Joined May 2005
Total Posts : 1
   Posted 5/25/2005 11:23 AM (GMT -6)   
 
 
Im new in here, Just started Topamax 25 Mg with prozac 20 MG for headaches.. working my way up. I was on this medication a few years ago and due to no health insurance I had to go off. No I have the proper insurance to start it again. :-)  
 
I find this medication combination to be the best for headaches.. I have been under numerous drugs and so many doctors that it made me crazy.. From spinal taps. to cat-scans to MRI's .. They admitted me so many times.. in the past. Then I doctor gave me narcotics.. Oh boy did I love them too much I got so much involed with them that I couldnt get off of them.. Until 3 years gao when I found the right doctor who put me on this combo of topo and Prozac.. I will work through the side effects.. I was wondering if anyone else is on the same combo as me for headaches.
 
Love to hear from anyone.
     "A day without a headache is truly a blessing"
 
Nance 

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 5/26/2005 3:03 PM (GMT -6)   

My combination was Topamax 250mg and Wellbutrin.

Sara

Migraine/Headache forum moderator

 
Or more about me at:
 
 
Thanks for Visiting HealingWell.com


Pegasis
Regular Member


Date Joined May 2005
Total Posts : 118
   Posted 5/30/2005 2:43 PM (GMT -6)   

I'm taking Topamax -- 100mg twice a day. I also take Elavil -- 175mg at night and Zoloft -- 100mg a day.  What side effects are you having? I've heard from others who have had crying spells with Topamax. I did, too at my present dose.That's when my doctor prescribed Zoloft. He said it's an antidepresant that is also used for migraine prevention. I still don't have good control. I know of another migrainer who's taking 200mg Topamax twice a day. When I see my doc next time, I will ask if he thinks a higher dose will help.

 

Nance, I know of two reasons for starting you on a low dose. (1) A low dose might work for you, and it's better if you don't need a whole lot of medicine. (2) Working up to a higher dose, slowly, helps your body get used to the medicine gradually and reduces the chance of side effects.

 

I'm still having daily migraines. Fortunately, most of the time I can tolerate them. Only 1 or 2 times a week do I have to resort to escaping to a dark and quiet room.

 

~~Pegasis yeah

Kansasgirl97
New Member


Date Joined May 2005
Total Posts : 4
   Posted 5/31/2005 9:03 AM (GMT -6)   
Hey nance,
I am on topamax 200mg daily, I had to build my way up to the dose. The side effects that I had are tingling in hands fingers numbness in face especially around mouth and nose,and weight loss i'd say about 25 pounds. As for the crying spells that others mentioned I had none of that it actually helped me with my depression and I was able to come off of prozac. I have been on it for over 6 months now and the tingling has gone away and the weightloss has platued...my my headaches have gone from 5-6 a week to 2 maybe 3 a week so it was made a great big difference in my life!! I take it a night before I go to bed. I hope you get the same results!! Good luck and let me know.
Jess :)

droll
Regular Member


Date Joined Jun 2005
Total Posts : 85
   Posted 6/23/2005 12:43 AM (GMT -6)   

I have a question.  I am new here - 2nd day.  I would like some info on a subject and have tried twice to post a new topic.  Both times it appears to be just a posting even though I am hitting the "new topic" bar.  What am I doing wrong??

 

Thanks

Dan


effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 7/1/2005 5:50 AM (GMT -6)   
Dear Dan,

Make sure you click on new topic and make sure you give a subject heading.

Hope this helps. I will try and write a new post to you, just to review how I do it. I have never had any difficulties before. If it contines ask the moderator of this forum for help. The moderators are excellent and very knowledgable people.
judy/effie

carolyn2344
New Member


Date Joined Jul 2005
Total Posts : 9
   Posted 7/22/2005 5:19 PM (GMT -6)   

Hi

Iam new to this site Iam glad to see Iam not alone I love being on topamax I lived with migraines for as long as I can remember so this is a life saver for me I do not like the side effects I was starting to think it was all in my head. I would like to know if anyone out there that still has break through headaches are they more powerful and do they last longer.       

carolyn

droll
Regular Member


Date Joined Jun 2005
Total Posts : 85
   Posted 7/22/2005 5:29 PM (GMT -6)   
I am on Topamax for the second time. Unfortunately, I have not had good results. I could live with the side effects if it helped the migraines, but so far it has not

Welcome!
droll  (AKA Dan)


carolyn2344
New Member


Date Joined Jul 2005
Total Posts : 9
   Posted 7/22/2005 10:07 PM (GMT -6)   
i have have the best luck with taking on dose in the morning and and one and night have you tried this? i still have headache but they have been cut in half but they have become more intense now that i have started topamax have you or anyone else had this problem?  
 

Pegasis
Regular Member


Date Joined May 2005
Total Posts : 118
   Posted 7/23/2005 5:49 PM (GMT -6)   

I just began increasing my Topamax dose again. I've been taking 100mg twice a day for a few months. I'm still having lots of migraines, (nearly every day).

But I can't really say if they're more severe than before Topamax, because: Before Topamax, I was taking Depakote, with excellent migraine control. (Only 1 or 2 migraines a month.) But I was having really bad short term memory loss. Stopping the Depakote helped my memory, but the migraines came back really often.

I saw my doc a couple of days ago and he's having me add 50mg Topamax in the morning for a couple of weeks, then add 50mg at night, also. We are both hoping that helps. He is also having me taper off the Zoloft. I started taking that about a month after I started the Topamax because I was having crying spells, like quite a few people here have mentioned. Well, he showed me a printout that says Zoloft can have the side effect of migraines! So I agreed pretty fast to stop taking that! It's probably one of those side affects that can go either way. For many people, it HELPS migraines, and for a few, it agravates them. He's thinking about what to replace it with. In the meantime, I'm researching several antidepressants myself.

I also take Elavil, 175mg daily. Reducing that had no effect on my memory, so we kept it.

~~Pegasis yeah


carolyn2344
New Member


Date Joined Jul 2005
Total Posts : 9
   Posted 7/24/2005 11:22 AM (GMT -6)   
i have taken zoloft in the past but have not taken
it for at least a year iam only on topamax i to have have
a resent round with depression and uncontrollable crying spells
i blamed it on the time in my life you know mid life  yeah  even though
i believe it could be the topamax i felt i was going crazy but
it only lasted about 3 weeks and things got bact to somewhat
normal.
  
 
carolyn tongue

Jen72
New Member


Date Joined Jul 2005
Total Posts : 1
   Posted 7/24/2005 4:55 PM (GMT -6)   
Has anyone had any experience with weight loss with Topamax?  I am beginning to get extremely concerned,  I have dropped about 20 lbs.  since Jan.  I am 5'4"  and down to 105.  I am getting really scared here.  I was getting migraines 3-4 times a week and have only had 2 in about the last 6 weeks.  i try to force myself to eat but it is pretty hard when you're never hungry.  I am on 75 mg 2x a day.    sad

droll
Regular Member


Date Joined Jun 2005
Total Posts : 85
   Posted 7/24/2005 6:47 PM (GMT -6)   
Weight loss is a pretty common side effect I believe. I know I have problems with it. It is very difficult to make your self eat when you are not hungry. My solution is to make myself eat small amounts several times a day. Also I have to make myself drink because it seems I never want to drink water either.

Take care
droll
droll  (AKA Dan)


carolyn2344
New Member


Date Joined Jul 2005
Total Posts : 9
   Posted 7/25/2005 10:08 AM (GMT -6)   
WHEN I READ THE SIDE EFFECTS OF TOPAMAX MY HUSBAND SAID YES THEY HAVE TO LIST THEM BUT NOT EVERYONE GETS THEM!
BUT I CAN COME ON HERE AND SEE IT NOT JUST ME OR WHAT IAM DOING OR NOT DOING. I WOULD LIKE TO KNOW IF ANYONE OUT THERE HAS HAD PROBLEMS WITH THERE EYES SINCE THEY HAVE BEEN TAKING IT? OR JOINT PAIN ?

EVEN WITH ALL THE SIDE EFFECTS I WILL STILL GET UP EVERYDAY
AND TAKE MY PILL IF IT WILL PREVENT ME FROM HAVING A MIGRAIN HEADACHE YOU CAN LIVE ON THIS "DOPAMAX" OR LIVE DOPED UP ON PAIN MEDS OR JUST LIVE IN PAIN I"LL TAKE THE DOPAMAX


CAROLYN

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 7/25/2005 7:03 PM (GMT -6)   

Carolyn (And All)

I have recently just started taking Topamax AGAIN, and I am really struggling with the side effects, as I have fallen to my worse trait...my impatience and tapered too quickly!!!

I am up to 200mg already and I have been feeling a little "off." Today is definitely one of those off days so I am trying to be very careful about what I say...to not scare anyone off or terrify someone into not trying Topamax as it can be a wonderful thing....heck, i love it so much I am taking it again...I am just too darn hardheaded to take it nice and slow like I should.
 
Please someone, relate here....I feel like I am in a fog...(fibro maybe contributing???) I go to say things and can't find the right words, I look at people when they are talking and it takes a minute to understand what they are saying, I am very emotional-extremely happy one minute, sad and almost crying the next and on the verge of being angry, full of energy and then exhausted....hmmm...sounds like med side effects, depression and migraine all mixed together? ha ha ha. I'm ok!
 
Oh, whoever asked about the eyes...I have had several medications effect my eyes as far as dryness etc. there have even been little warnings or precautions on the information sheets that you get at the pharmacy that say things like dryness may occur or that you may not be able to wear contact lenses while taking x,y,z prescriptions. Just thought I would throw my two cents in!
 
Sara
(Please don't make fun of this post later....ha ha ha)
Sara-Migraine/Headache Forum Moderator
 
Thanks for Visiting HealingWell.com


Pegasis
Regular Member


Date Joined May 2005
Total Posts : 118
   Posted 7/25/2005 9:47 PM (GMT -6)   

Sara, Sara, Sara......I'm not going to make fun of your post......But.........don't you think you should back off a little on your dope a max?  Maybe you went up to 200mg just a little too quickly?

~~Pegasis yeah

Pegasis
Regular Member


Date Joined May 2005
Total Posts : 118
   Posted 7/25/2005 10:18 PM (GMT -6)   

Ok, That was for Sara! tongue

I have my prescription form. Personally, the main side affect I've had with Topamax is the crying spells! Drives my husband nuts! 

As far as eye problems goes, my form says "Seek immediate medical attention if any of these RARE eye problems occur: SUDDEN vision change/blurred vision, eye pain or redness."

And "loss of appetite and weight loss may occur." is also listed. 

I had spinal surgery a few months ago. I didn't know it then, but one of my medicines caused my taste to be "off." The only things that tasted the way they were supposed to were juice and canned fruit. But, since I needed to lose some weight, and I was bedridden anyway, it wasn't a big problem. By the time I was ready to start getting up and around, I was done with that medicine and my appetite returned. But because of that experience, I can really relate to the problem of not having an appetite. My husband kept cooking, and kept trying to get me to eat, but how can you eat when nothing appeals to you?

I think a good approach would be to make sure you are consuming calorie rich foods when you DO eat. Get some high calorie shakes like you see advertised on TV. Or make your own with fresh bananas and ice cream. Try to drink a shake whenever you take your medicine. Spread a bagel with nutrition packed peanut butter. Munch on raisins, walnuts, & almonds throughout the day. Have something at your fingertips all day long.

If you don't already, start taking a good multi-vitamin. And ask your doctor for any other ideas (s)he might have. Your local community hospital might have a dietician or nutritionist who can help you also.

Keep us "posted"

~~Pegasis  yeah


Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 7/30/2005 5:01 PM (GMT -6)   
sad  Hello,
 
I started taking Topamax about a month or so ago, you may remember my post. I have had horrible side effects from it. I increased my dosage far too quickly and experienced the following side effects:
  • Extreme nausea
  • Weight loss
  • Dry eyes
  • Burning muscles
  • Foggy brain
  • Memory problems
  • Dry sweating
  • Incredibly emotional
  • Change of taste
  • Sensitive sense of smell
  • Inredible fatique

I visited my doctor as well as posting a message which resulted in some really good suggestions including not increasing the dosage until the side effects have subsided. The side effects I'm left with are nausea, weight loss, emotional problems, change of taste, and foggy brain / memory loss. I'm up to 125 mg / day. At 100 mg / day I didn't have the foggy brain / memory loss problems and emotional problems so I may go back to 125 mg. I find the brain challenges the worst because someone will ask you a question and you'll know the answer but it won't come out. It's also embarrassing to start crying at work because someone says the wrong thing to me.

My headaches haven't got any better, in fact they're worse. When I was on neurontin I had headaches 5 out of 7 days. The neurologist felt that this could be reduced with Topamax. My GP says that when the headaches go it will be a slow going to sleep of the headaches but I don't know if I have the patience to wait for that.

I was on a really low dose of Topamax a couple of years ago and had no problems. It seems to be the higher dose. I now know why it has been nick-named dopa-max by some people. eyes


Pegasis
Regular Member


Date Joined May 2005
Total Posts : 118
   Posted 7/31/2005 10:00 PM (GMT -6)   

I really think you increased your dose too quickly. I know it's really hard to stay at a low dose if you're still having migraines. But going up gradually is supposed to lessen the chance of bad side effects. Many neurologists prescribe an antidepressant in addition to an anti-spasmodic. Some also prescribe a beta-blocker and/or a calcium channel blocker, two drugs whose initial speciality was for blood pressure control.  Talk to your doctor. See if (s)he thinks dose changes or additional meds might be in order.

Good luck.

~~Pegasis  yeah


Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 8/1/2005 11:47 PM (GMT -6)   
:-)  Thanks! I think you're right about going up too fast. I have reduced my dose again today by 25 mg because the nausea has become unmanageable again. I was at 100 mg and the side effects had subsided to a level where I could live with them but up 25 mg could not. I have an appointment with the neurologist on the 24th and plan to stay at 100 mg until I see him and discuss it with him then.

dink
New Member


Date Joined Aug 2005
Total Posts : 8
   Posted 8/8/2005 4:06 AM (GMT -6)   
i just go swicthed recently to topamax from anatriplyne and comparing the side effects i kind of like topamax more but then again i am only taking fifty mg a day and i was doing really well for the first month to month in a half then i started geting migraines every week just like i was when i was on the anatriplyne but i am hoping that i will just need my dose increased. my only actual side effects that i am having are tingling extremities, loss of appitite and loss of weight but then again i am only taking it at night so the drowsiness and other side effects would go un noticed since usually i am asleep.

Dink

Pegasis
Regular Member


Date Joined May 2005
Total Posts : 118
   Posted 8/8/2005 5:56 PM (GMT -6)   

Hello again, Dink.

Topamax is a drug that can affect people in a variety of ways. Some people get drowsiness, some people have trouble sleeping. It's a good sign that you were doing well during the first 4 to 6 weeks. You're probably right that you're probably ready for an increase in the dose. You should let your doctor know that you're having weight loss because of loss of appetite, though. If you're thin already, that could present a problem. I've suggested to others that when you DO eat, make those calories count! When you have a glass of milk, blend a banana into it first. Add a scoop of ice cream, too. You might enjoy those shakes they advertise for people who are not trying to lose weight. (Ensure?) Try adding peanut butter and raisins to a bagel at breakfast instead of just a slice of toast. I know it's hard to do things like that if you have little appetite. Your doctor might have something he can do for you.

I've been fortunate with Topamax. I've had none of the tingling that some people describe. I was already taking Amitritypline and my doctor added the Topamax. I'm now up to 150mg twice a day.

Keep us posted.

~~Pegasis yeah


Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 8/8/2005 8:15 PM (GMT -6)   

Hello Dink,

My neurologist explained that the tingling in extremities is a depletion of Potassium. He suggested eating Bananas or taking a potassium supplement if the tingling got really bad.

I think you're doing it right. Going up really slowly. I found out the hard way that increasing too fast ends up in some really adverse side effects. The neurologist originally told me to increase by 25 mg each week but that's how I got in trouble.

 


 
Coquitlam55
 
"Be faithful in small things because it is in them that your strength lies."
Mother Teresa


teen
New Member


Date Joined Aug 2005
Total Posts : 4
   Posted 8/8/2005 10:12 PM (GMT -6)   
I was on Topamax a few months ago. I got up to 100 mg every night. I did not try the Topamax/ Prozac combo but I was wondering what kinds of side effects you have from using Topamax? I had to get off of Topamax bc of the side effects I was experiencing. I couldnt remember anything, had diffuculty concentrating and felt sad alot. I'm only 21 years old and I didnt want to deal with these side effects anymore.

Let me know if you have tried any other treatments.

dink
New Member


Date Joined Aug 2005
Total Posts : 8
   Posted 8/9/2005 2:58 AM (GMT -6)   
well coquitlam55
the lack of potassium would make sense considering i do have a tendency to have problems with lack of postassium in me when i was in sports to the point i was forced by my coaches to eat a banana a day so i would stop getting really bad leg cramps since i was a cross country runner.
thanks for the advice about the potassium and i will seriously try to put potassium into my diet regularly

dink
New Topic Locked Topic Printable Version
54 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Tuesday, September 16, 2014 4:22 AM (GMT -6)
There are a total of 2,219,045 posts in 246,945 threads.
View Active Threads


Who's Online
This forum has 156311 registered members. Please welcome our newest member, jannat.
194 Guest(s), 5 Registered Member(s) are currently online.  Details
THE HAPPY TURTLE, harry03, deannakay, ceecee600, travisco


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer