DAILY AURA FOR 2 YEARS! CONSTANT DAILY VISUAL DISTURBANCE - Chronic daily migraine

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Dizzy 2
New Member


Date Joined Jan 2017
Total Posts : 1
   Posted 1/14/2017 7:35 PM (GMT -6)   
Hi, I just read the first part. I didn't read all the follow ups. Don't even know if you're still checking in. My visuals started last spring. I had nausea, fatigue, light sensitivity, stiff neck, I was walking into doorways, and the world started moving. It's so hard to explain to people. Its not really vibrating but kind of heat waves on a hot day, and if I try to walk it looks like everything is coming at me supper fast. The first two episodes lasted two weeks. I was sick for every minuet of it. I woke up with motion sickness and visuals. The third one lasted 2 1/2 months. I am on the fourth one now and this is the 4th month and the visuals are still here. At least the nausea and fatigue is not here all the time. I don't understand why it wont just go away. I cant work, I can barely drive, being in a store is so disorienting. I am losing my life to this awful thing. Have you found anything to help? I am on 125mg of Topamax, I avoid all trigger food, avoid sunlight. No one on these forums ever has any useful information because the doctors don't know anything. I guess the human brain is just to complicated. Well, I just wanted you to know that I may be on my way to being stuck like this forever also. You are not alone!

Tinkermayhew
New Member


Date Joined Jan 2017
Total Posts : 1
   Posted 1/30/2017 10:14 PM (GMT -6)   
OMG, I am so glad to have found this site. I have just recently been diagnosed with Silent Migraines. For the last year, I have been having instances where my vision suddenly goes hinky. Half of what I’m looking at is just gone. The left half of my field of vision is gone. There is just a void. The happens so randomly that I could not figure out what was wrong. Until recently I just had the vision loss. No pain or other symptoms. Just recently I moved to New Mexico from Texas. The altitude is significantly higher and the temperature is MUCH colder. Last week I had two episodes in one day. However, my symptoms changed. I still had no pain but in addition to the vision changes, I saw zig zag pulsing lights, my arms tingled and fingers stiffened and I was unable to speak. I was so weak I didn’t think I would make it home, I was at the Library at the time. I’ve been feeling so lousy since my move to New Mexico, I just thought the cold and altitude were kicking my rear. And my family, who has been in New Mexico for 25 years, was doubting anything was wrong. After my episode at the Library, I decided it was time to seek professional help and called a neurologist. After explaining my symptoms, they directed me to the emergency room as they thought I was having strokes. Luckily the MRI, Cats can, EEG, EKG, Carotid Artery and Heart Ultrasounds were negative. I never heard of a silent migraine until the ER doctor made the diagnosis. Like many of you, when I started to have the symptoms I often suffered from great anxiety. I was fearful of dying and always feel lousy. I think the anxiety is often worse than the migraine symptoms. I too am so tired of feeling lousy and am always dizzy, and just “not right”. It sucks. I have not yet determined my triggers nor have I been given any medication to treat the illness. I was just released from the hospital yesterday and see a doctor Wednesday to start working through the diagnoses and treatment plan. Let’s all hang in there and I hope you all feel better soon.

Michaela
New Member


Date Joined Feb 2017
Total Posts : 1
   Posted 2/14/2017 2:53 PM (GMT -6)   
Hi, I was just procrastinating from studying smile when I found this thread, since I was curious about who else is experiencing something like this - everyone I know just thinks I`m making it up. Anyways... I think I can help some of you. I know what causes mine problems and I know people are underestimating this particular issue, and treat the symptoms rather than finding the cause. Ever since I was about 14, I`ve been having thoracic spine problems - not big, but it would just get very easily blocked, cause nerve tension (including eye nerve) etc... Well this not only started to give me migraines with aura once in a while, but also cause constant feeling of car sickness - slight headache, dizziness, fatigue, loss of appetite and so on, and cause vision problems as described above - feeling like everything except one point I`m directly looking at is behind a heat wave, slight aura-ish vision, troubles reading because the letters are kinda floating due to the lack of sharp vision...
So if you really wanna try anything and find the underlying cause, I suggest you find a chiropractor who can do a manual mobilisation like this - https://www.youtube.com/watch?v=F7yqE51ifv8. It certainly won`t hurt you and I swear by it. One foolish exercise with my physician and I`m good to go for a while smile.

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 2/15/2017 12:37 PM (GMT -6)   
I watched the video Michaela posted above. While I'm glad it works for you, and you are confident in the chiro who does this for you, this is basically just a form of traction that affects the upper vertebra...but with a yanking motion. This just doesn't seem safe to me. It would be easy to press forward against the neck instead of lifting upwards.

There is an inexpensive device that can be purchased to do this same thing much more safely and effectively at home, without paying for a chiro. It hangs over the top of a door, and is basically a ratchet mechanism with a chin strap that fits around the head. You pull on one end of a rope and gently apply more pressure lifting the chin strap -- hold for a few minutes, enough time for the discs to plump up, then release the ratchet.

I have one, and it is helpful. Over time, I've had to use it less and less.

Bruce

Barry C
New Member


Date Joined Jun 2017
Total Posts : 1
   Posted 6/7/2017 3:27 PM (GMT -6)   
So glad to have found this thread and reading through it has been informative.

I can't ever remember not being able to see floaters. It didn't take long to be able to ignore them. From 19yo to about 30yo I'd have intense migraines without auras two or three times a year. The only way to turn them off was an injection that knocked me out and the next day I'd be fine. And then all of a sudden they never happened anymore.

Eight years ago at work one day I had an episode of the visual auras. No headache or pain and it lasted about 20 minutes. I started having these once or twice a month and went to see an eye doctor who diagnosed it after an exam and Cat scan as ocular migraines with auras. She told me it was more of an annoyance than anything and to not drive when having one.

So for eight years this has been going on and I've learned to live with it. No big deal and certainly not as debilitating as some of you folks are dealing with. Last week, 300 miles from home at a gas station I suddenly got dizzy, I mean world spinning out of control dizzy and went down on the floor. After laying on the floor for a minute or two I managed to make it to a restroom where I sat until the spinning slowed but I had a monstrous headache and a pulsating, swirling aura across about a third of my visual field. I got directions to the nearest hospital and they gave me a shot of Torodol sp?? for pain and did a Cat scan. Cat scan and all other vitals were normal and they sent me on my way. I finished my day's work and drove home but the aura and a dull headache never went away. The day before yesterday it somewhat diminished to about 5% of my visual field and there it has remained. No headache just an aura.

The strange thing about this aura is it can be black and white or color and it changes every so often depending on what I've been looking at. While typing on this page it has become a black and white jumbled mess of letters, numbers and characters. Then if I look at something brightly colored it picks up shapes and colors of what I've seen. Very strange and disturbing.

I've picked up some of the treatment ideas you folks have discussed and will give one at a time a try to see if it helps. Thanks for sharing your experiences and good luck to all of you dealing with this mystery.

Mikeyfear
New Member


Date Joined Jul 2014
Total Posts : 5
   Posted 9/6/2017 10:00 AM (GMT -6)   
I was diagnosed with Chronic Migraine with aura in 2014. I Have been suffering since late 2013. In 2014 my migraine frequency was every 3 or so days for almost the entire year. On Dec 3rd of '14, the frequency of my migraines took a dramatic change for the better. Some months better then others. I must of only had about 15 migraines for all of 2015 (rough guestimate). 2016, around the same. I have come across this thread many times since 2014. And figured its about time i leave a comment, if i havnt already.

On the 24th of August 2017 i woke up out of bed with an incredible headache (not a migraine). The blood felt as if it was stagnated in a specific area on the top of my brain. The 25th i had an attack. The blindness aura, the shimmering lights, the scintillating scotoma. Since then i have been suffering multiple attacks a day. I went to the ER on the 31st because i lost the ability to speak and feared a stroke. The stroke assessment and the ct scan came back clear. Im really suffering bad and i fear that my neurological condition has progressed. I hope this isnt going to be the rest of my life. Its really bad and i am now living in complete and utter despair. I have been weighing the balances of life and death. Constantly praying for relief. I hope i get relief! In the name of Jesus i pray that each and every one of you find relief! And i ask for you to pray for me as well. Please god help.

Post Edited (Mikeyfear) : 9/7/2017 10:06:35 AM (GMT-6)

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