chronic daily headaches/migraines

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Daily Pain Sucks
Regular Member


Date Joined Jun 2013
Total Posts : 20
   Posted 7/29/2013 2:56 PM (GMT -6)   
how do we keep going?
I feel like its all a waste to keep trying. it never ends. there's no relief (for me yet)....doctors dont listen. how do we keep goinf with our lives?
I work full time with disabled people and every day becomes a big struggle, whether I'm working or not.
is there some sort of trick to stay alive and function?
OTCs dont work. anti seizure meds don't work...my only current hope is wednesday when I go to see a nurse practitioner of neurology. but I doubt thag will open any new doors.
a day or two I got pain free a few months ago, that was it. the next day I was back in the er because I just couldnt take it.
today feels like one of those days. Ive felt it creeping for a week. skipped a notch today and I'm at work, feeling useless, forgetful, wishing I could keep my sunglasses on...

how do we keep going?
Female-21. ...too darn young to feel this darn old.
same headache since October of 2012.

SMO MOM
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/3/2013 11:51 PM (GMT -6)   
Have you been accurately diagnosed yet? You should be seeing a neurologist who specializes in headaches. You're still at less than a year and have a better chance if you see someone who diagnosis you correctly and then starts to treat. Treatments are varied as the headaches and not every med works. If you can, get an appointment as soon as possible. My son's headache is 5 years old and we haven't stopped trying to find a fix for him. Watch out as the OTCs will cause rebound headache -a Catch-22 that will cause more misery. Get a doctor who listens -they may not have the immediate answer but you need to find one who cares about you, listens to you, and will keep trying. I have seen one listing of headache meds to try that is over 250 different medications long. If you can, get an appointment at a well-respected headache clinic. We travel from Colorado to San Francisco -keeping my finances strained but we are still hoping to find a fix.

Daily Pain Sucks
Regular Member


Date Joined Jun 2013
Total Posts : 20
   Posted 8/4/2013 12:01 AM (GMT -6)   
my nero (just saw her Wednesday) calls them "chronic migraines" says I have two more meds to try, adding olive leaf pills for sinus irritation (I live in michigan, its the norm) if none of these help, she says we have testing to do.

she says it could be arthritis in my neck from all of my head injuries, a pinched nerve, or too much pressure in my brain cavity, said she saw fuzzyness in the back of my eyes which are signs of that. she said a spinal tap will be last resort, thank God.

I've decided if this nero doesn't work, I'll find a headache clinic... my counselor says to not stop there, try mayo if a clinic doesn't work....

im just sooo tired. all the time. the pain consumes me! I work 32-40+ hours a week, have to on account of the med bills, plus if I dont keep myself moving, I'll let the pain consume me and there won't be anything left of me...what there is left of me that is... I've had migraine attacks maybe monthly, twice monthly since I was 10-11, migraines run in the family but I'm the only one having THIS particular issue...



I am sorry to hear about your son and am happy to hear that you guys aren't giving up. my mother on the other hand thinks these are "mind over matter" issues.
Female-21. ...too darn young to feel this darn old.
same headache since October of 2012.

Maxtucker
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/10/2013 2:49 PM (GMT -6)   
I'm new here, but I'm just about desperate. I've had migraine for a long time, and as no preventatives word on me, my doctor had me on Tylenol 3's for pain control. Then I was in a car accident, and as well as breaking my knee, I suffered a fairly bad closed head injury. My migraine quadrupled over night. The pain medicine doctor in the hospital said I should be on Dilauid instead of Tylenol 3's, as long term use of the Tylenol is bad for my kidneys. So, I tell this to my GP, who puts me on the diludid. It's eleven years later, and after I had reached a point where I was taking up to 24mg per dose, I decided to get my dosage down, and I did. I go back to the doctor every two months for a RX renewal, and I often would make two months worth last three or even four months. The last two appointments, I've had only enough pills to barely make it. My supply was down to only one or two pills left. I figured that, despite my efforts, my body was now needing either more, or stronger dosages. When I told this to my doctor, you would have thought I was some strung out junkie- not a 51 year old happily married, mother of three. A person who has been going to him for 17 years! I am still livid. Mind you, my response to him at the time was not anger. I broke down and cried instead. Now he says that he's never been happy with this course of treatment, and he is never going to increase these meds. He wants me to take Tylenol as much as possible. OTC Tylenol. I'm on gabapentin to try and help with he migraines, and that's the direction he wants to go. I'm already on the highest dosage of gabapentin, and he's not telling how that is going to do any more than it is.
I'm just so frustrated! He doesn't want me on Dilauid? Fine! I just want help. I don't care how. The pain is more than I can cope with. The neurologist says that I am considered in the top 2% of migraine sufferers world wide, in that I have one every day, and no preventatives work on me.
So what do I do now?

Post Edited (Maxtucker) : 8/10/2013 2:55:08 PM (GMT-6)


nspeedracer
Regular Member


Date Joined Feb 2013
Total Posts : 161
   Posted 8/11/2013 9:44 PM (GMT -6)   
im at the end of my rope with this too.
im trying a pain specialist, looking at surgery options like nerve decompression or neurostimulators
Ive been struggling for 3 years now, cant work, dropped out of grad school.
nobody even mentioned these options, i found them on FACEBOOK!
i had botox and nerve block injections and then they just effing gave up on me!
I really want to give them a piece of my mind, wasting years of my life NOT telling me about other options out there... just pills and pills and pills...
i hate them.

VisualMind
New Member


Date Joined Aug 2013
Total Posts : 10
   Posted 8/11/2013 10:17 PM (GMT -6)   
I have been meditating for years, so when I was diagnosed with a 2.5 cm large brain tumor, I took the news very calmly. Brain surgery was inevitable, but I was able to accept this reality and went into surgery without fear. When I woke up the next day, I was already mentally meditating to manage pain, 3rd day I was released from the hospital, had some post-surgery headaches, but I continued to meditate the pain away. It is very effective, I only took probably 4 Tylenols which was given to be by the nurse before surgery. The healing took place in a week, and I was already walking on the track one week after the surgery. I was in such good shape that my GP was very surprised to see me after surgery. If you feel that you don't want to take anymore pills, and would like to consider holistic alternative medicine, please consider mindfulness meditation. It works so well to heal and remove pain, almost instantly. Meditation stops the constant chatter in your mind, it allows you to see pain in a different perspective, try this guided meditation and see if it will work for you. http://db.tt/P6F8GYni
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