I have severe headaches, I get them all day every day. Most of the time they do not end. I experience a piercing feeling almost as if I am being stabbed in the head. I have enormous pressure in my head, neck and sometimes down into my shoulders. These headaches last weeks and sometimes months at a time. Occasionally I can go a few hours without pain. When the headaches are severe, about 80-90% of the time, they are disabling. I cannot move and I experience blindness, dizziness, and nausea. Often times I dry heave during these headaches. Sometimes I will pass out for 10-20 seconds at a time. I believe this is do to my dizziness and the level of pain I am experiencing at the time, which is quite great.
Beginning signs of headache:
Past Tests and Results:
Current Medications and Treatments
Treatments and Medication History
Possibly Helpful History
Do you have any ideas?
Little Miss Headache
Welcome Little Miss Headache!
I feel for you. Nothing is worse than having a headache everyday. I think you'll find a lot of us here have experienced or are experiencing similar chronic headaches.
Are you seeing a neurologist? I find my neurologist extremely helpful in narrowing things down.
I have followed a similar pattern and I'm pretty sure that I'm caught up in a cycle of rebound headaches. Some of the medications you mentioned are known to trigger migraines or cause rebound headaches. The severity of your headaches definitely sound like migraines - though I don't have any medical training just lots of experience. I have found that my rebound headaches can cause migraines.
You didn't mention what type of doctor you were seeing for your headaches, but from all the information you listed, you are seing the wrong one. I looked at your list of symptoms, and almost all of them can be directly attributed to the Seroquel. This medication is for use to control manic depression and schizophrenia. I could find no information that it has any use for controlling or helping with migraines, but I found a whole list of side effects that could have been taken straight from your posting.
As far as the hump at the base of your neck goes, believe me, that is pure stress you are carrying around with you. I had one for years. Nothing was going to make it go away until I lowered my stress level. I found this out after leaving a high pressure job and a very bad marriage. EUREEKA! NO MORE HUMP!!! All gone now. I use to get neck rubs and massages that were extremely painful, and now nothing is tensed up.
It seems that you have been put on some good migraine medications, but the Seroquel would mess with any of them. Could also be you were not on the right dosage for you or you didn't stay on them long enough.
My suggestion would be to see another doctor. Whoever ordered all those expensive tests doesn't seem to understand migraines, especially when it comes to medication. If I could make a suggestion, try the Topamax again, slowly increasing the dosage. If you change it too quick, you tend to get more of the side effects. Topamax works best used with an antidepressant, like Paxil, but I personally use Effexor XR. I find that it is more action oriented. And, please, don't give up on the Klonopin. I have used it for years and it works really well at controlling my anxiety. Perhaps, though, maybe you could take half in the morning and half at night. You might have better results that way.
I know you feel like you are in a really bad place right now without any ray of light, but I think if you can find another doctor, and do some homework before your appointment, you are bound to get some much need relief.
Jest my opinion. Let us know how it goes.
I had Cushings Disease. I know that it is VERY RARE. It was estimated that I had it for about 8 years before I was finally diagnosed. (My offending tumor was successfully removed in 1997.)
Please tell me what test or tests were done to see if you had it.
What kind of doctor (What specialty) first suspected Cushings? Were you seen by an endocrinologist?
I, too, take both Topamax and Effexor XR. I also take Elavil aka Amitriptyline.
The others are giving you good advice about your migraines. I'm curious about the Cushings.
I am not ignoring you. I'm trying to find out how you and I can communicate about Cushings without using the migraine forum. Be patient. I WILL be in touch--SOON.
I really want to talk with you personally by e-mail. I've asked Sara how to do that. As soon as I get a response from her, I'll get in touch with you.
In the meantime, please log onto www.CSRF.net
There are many things of interest there, but please begin at tests, or testing. There are newer tests that are more accurate than the ones you had. An endocrinologist is the specialist you need to see. They work with the hormones of our body. Also---please don't be alarmed if you see reference to pituitary tumors being at the base of the brain. They are usually accessed from the nasal area.
I want to tell you more.......But this will get you started. Good luck dear.
Info has been posted...
Pegasis...email me, please. Would like to speak with you.
You can now e-mail me. Look all the way to the left of this message between where it has
Registered Member and Date joined.
You see that some of the pictures are not colored, but the envelope IS?
OK, click on the envelope. That will give you my e-mail address.
Send me an e-mail with your e-mail address and I will get in touch with you about Cushings.