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Julia H
Regular Member


Date Joined May 2005
Total Posts : 76
   Posted 10/9/2005 7:15 PM (GMT -6)   
I went to the ER thursday night for a really bad headache. The headache started at 4pm came on sort of suddenly, and just kept getting worse. I went to the ER at 10pm. I do have a history of migraines but this was unlike any migraine I had had before. I normally get an aura, and they are never this bad and I always get typical light, sound sensitivity etc. I was only mildly photophobic, it hurt to even move my head in any direction. The pain was in the occipital area. I wasn't seen by the doc until 12:45 and didn't get anything for the pain until near 3 pm. They gave me Toradol by IV. Then they did a spinal tap because i have lupus and they wanted to rule out vasculitis, and meningitis. The spinal tap was clean. Then my pain was still at 8/10 so they gave me Dilaudid by IV. That helped alot. The ER doc sent me home with a script for vicodin. As you know its sunday... and my headache returned friday. It wasn't nearly as bad. Today the headache is worse even with me taking vicodin every 6 hours or so. When is this going to stop? I'm ready to go beg to be admitted for pain control. I see my family doc on tuesday for followup.
Julia
Lupus, Raynaud's, Chronic Urticaria, Thrombocytopenia 2003, Small Fiber Neuropathy 2005
Meds:
Plaquenil, Methotrexate, Folic Acid, Prednisone, Cymbalta, Nifedical, Celebrex, Arava, Neurontin


tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 10/11/2005 11:44 AM (GMT -6)   

Julia-

How are you doing?? Sorry  I haven't been around sooner...I am dealing with the migraine drama too...I haven't been out of bed in days, taking narcotics too....

Rebounds are a possibility when you are taking them that often, but the sad thing is sometimes you look at that possibility and think, I am already in so much pain, who cares??? I know that's bad to say, but I speak the truth!

You holdin up ok??? Have you been back to the doc?


Sara-Migraine/Headache Forum Moderator
 
Thanks for Visiting HealingWell.com


Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 10/11/2005 8:10 PM (GMT -6)   

Hi Julia,

Sounds like we're all suffering this week. Did you get to the doctor today?

Do you have a pain management plan with your doctor or neurologist? I read about other peoples' trips to the ER (like yours) and can't imagine the pain and waiting in the ER. I realize that when it's a headache that's different from others it's the best idea, but when it's just a really bad headache a set of medications to take as it escalates works the best for me.

Sara's right about the possibility of rebound headaches. If your usual medications aren't working and the headaches are escalating they could be rebounds triggering migraines.

On another note, has anything changed. Are you eating different foods? Has the weather changed? Have you changed your sleeping pattern? Is there anything you've changed in your life that could be triggering the headaches?

Good luck.


Nicky
 
The secret of health for both mind and body is not to mourn for the past, not to worry about the future, or not to anticipate troubles, but to live in the present moment wisely and earnestly.   Buddha


Julia H
Regular Member


Date Joined May 2005
Total Posts : 76
   Posted 10/14/2005 6:59 PM (GMT -6)   
I actually ended up being hospitalizd for five days for treatment of the migraines. Monday night the headache ccontinued to escalate and i maxed out on imitrex. My family doc sent me to the ER for help. The ER doc decidded immediately to admit me and gave me a shot of dilaudid while I waited. (amazing drug ;-). Then I was up on general medicine for 2 days and then was transferred to neurology. Basically the first two days they just masked the headache with dilaudid (10x stronger than morphine) and then when I was seen by a neurologist he gave me DHE (dihydroergotamin) by IV every 8 hours. I was finally discharged today with a script for topamax. Who has tried topamax? What are the side effects like? I have my first dose tonight. I'll be following up with a neurologist and my family doc.
Julia
Lupus, Raynaud's, Chronic Urticaria, Thrombocytopenia 2003, Small Fiber Neuropathy 2005
Meds:
Plaquenil, Methotrexate, Folic Acid, Prednisone, Cymbalta, Nifedical, Celebrex, Arava, Neurontin


Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 10/14/2005 11:13 PM (GMT -6)   

Hi Julia,

I'm glad to hear you're feeling better. There are many of us on Topamax. There's a long post on the many good and bad side effects. You will either like it or hate it. Neurologists seem to think it's the greatest thing for migraines right now though many of us are still not sure it outweighs the side effects.

My advice is take it really slow. Let the side effects wear off before increasing the dose. The neurologist may have recommended increasing the dose by 25 mg / week (most do) and that can be too fast. Unfortunately, if you do, by the time you realize and try to back off you go through severe withdrawl.

One common side effect is tingling in your fingers and toes. Increase your potassium intake by eating a banana or other food high in potassium or taking a suplement. Another is forgetting words - mostly nouns - topamax is sometimes nicknamed dopamax. And the best is weight loss, but be careful because the desire not to eat can lead to headaches because you end up forgetting to eat.

I also ended up feeling nauseous which resulted in really fast weight loss and I felt horrible. I feel much better now.

Good luck and ask your neurologist lots of questions.


Nicky
 
The secret of health for both mind and body is not to mourn for the past, not to worry about the future, or not to anticipate troubles, but to live in the present moment wisely and earnestly.   Buddha


Julia H
Regular Member


Date Joined May 2005
Total Posts : 76
   Posted 10/15/2005 1:30 AM (GMT -6)   
I don't think I'll notice thee tinlging in my toes since I already have a neuropathy from my lupus. I'lll have to be careful about the potasssium thought because mine has been consistantly low and they were trying to get it into the normal range in the hospital. Thank you for the advice. The neuro did recommend an increase of 25mg per week.
Julia
Lupus, Raynaud's, Chronic Urticaria, Thrombocytopenia 2003, Small Fiber Neuropathy 2005
Meds:
Plaquenil, Methotrexate, Folic Acid, Prednisone, Cymbalta, Nifedical, Celebrex, Arava, Neurontin

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