3+ week Migraine

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Brandi C
New Member


Date Joined Sep 2015
Total Posts : 6
   Posted 10/1/2015 8:37 AM (GMT -6)   
I am new to this forum. I have been diagnosed with Migraines for about 10 years. about 6 1/2 years ago I had a hysterectomy because we felt most of my Migraines were hormone related. about 2 years ago, they came back with vengeance! I have taken Imatrex, Midrin, and a few other drugs without relief. They started me on Zomig ZMT (melt aways) and if I can take one at on-set it will help some.

My current Migraine I have had for 3+ weeks! Zomig only helps at on-set, so that is out. I am on Effexor XR for my depression, but they also say it is supposed to help with Migraines --- doesn't help mine! I have taken sinus medicine, gone to the chiropractor, had a massage, used essential oils (which have helped some), gotten the "magic shot" of Tordol, Phenergan and Demerol and taken pain pills, and NOTHING IS HELPING this time!

I've been told to try acupuncture, but I haven't found any one reputable in this area. I did get my Daith pierced thinking that might help (the cartilage that is used for acupuncture to help with Migraines), but it hasn't helped a lot.

Does anyone have any other ideas?

Thank you in advance!
Brandi

joyelaine
New Member


Date Joined Oct 2015
Total Posts : 2
   Posted 10/4/2015 7:01 AM (GMT -6)   
Brandi,
I'm sorry you're suffering like this for so long. I've been suffering from chronic migraines for over 25 years, it's been a journey. Migraine sufferer's bodies are very sensitive to everything, you probably know this. We need the same amount of sleep every night - at least 7 hours ( I need 8 +), more water than most people, and we are very sensitive to stress. As difficult as it may be right now, trying to get your body stabilized, resetting it, is so important.

I'm willing to share what I've learned. But let me ask a few more questions:
Are your headaches daily except for medication breaks?
Is your doctor a neurologist who specializes in migraines? This is key because not many neuro's specializes in migraines, and the treatment is specialized and can be tricky. Right now you need someone who is actively and aggressively working with you to break your migraine cycle.

How often are you using Zomig? This is very important and MAY be part of of your issues.

You didn't mention taking an anit-seizure medication, such as topamax, have you ever been prescribed one of these?

I know you want answers NOW, sorry to ask questions. Our bodies are different, and I'm not a doctor. I've been in a lot of pain for many years and I've done a lot of research. Just walking this journey with you. I hope I can help.

Brandi C
New Member


Date Joined Sep 2015
Total Posts : 6
   Posted 10/5/2015 8:15 AM (GMT -6)   
Joyelaine,

Thank you for your response! I am glad you asked questions!

I try to get the same amount of sleep, but it is hard for me to even go to sleep when I lay down. I drink lots of water and I deal with a lot of stress. I am hoping after this month, my stress level will go down some.

My headache has not had a break at all since it started! I went back to my doctor on Friday and he gave me the Phenergan, tordol and demerol concoction then increased my Zomig to 10mg (mind you this only works well at on-set) and prescribed me Fioricet. I still take the Zomig during my migraines and it helps a little, but not a lot.

He is not a neurologist; he is family medicine, but he is very active in helping me with my migraines. He ALWAYS does research even when I'm not in the office. He will call me out of the blue and give me information! While talking on Friday, he doesn't want to send me to a neurologist because most of the ones in this area DO NOT want to take headache patients... He wants to refer me to a pain management specialist. I think this is a great idea, so I will once again stay on top of his office to make this happen!

I am not on any anti-seizure medication. I haven't ever had one of these before!

joyelaine
New Member


Date Joined Oct 2015
Total Posts : 2
   Posted 10/6/2015 9:31 PM (GMT -6)   
Brandi,

I don't want to overwhelm you with information, I know what that feels like. I also know how it feels when everyone has a remedy to offer, it can be exhausting. All I can offer is what I've learned. So, take what works and leave what doesn't :)
I have a family doctor I work with, he's fabulous but limited since he doesn't specialize in headaches.
I've worked with three neurologists in my area, but my headaches continued to worsen. Finally, I was told by the neurologist that was treating me at the time, two years ago, I needed to see a doctor who specializes in migraines, and there weren't any in my area. He explained to me when I doctor specializes in an area they attend clinics, workshops, seminars, they get all the most current information on treatment and drugs that other doctors don't since it's not their area. The top doctors are in Boston, Phil, and Michigan. However, he told me, there is a headache clinic at the teaching hospital 90 minutes from where I live. Actually, I discovered, there are doctors at this University who specialize in migraines. So, I drive 90 minutes to Tampa every 3 months. It's the first time in years I've had my headaches under control. The difference it has made is significant. You may live near a teaching hospital and not know it. So, the first thing I would encourage you to consider is to find out if there is a doctor who specializes in migraines within a distance you are willing to drive and/or have someone drive you. I have someone drive me for my treatments.

The next thing I would consider is how often you are taking Zomig? Any of the sumatriptan's are supposed to be limited to twice a week. You may take them two times in the same day but no more than two days in one week. The reason is they have a high effect of rebound headaches. These are some of the most difficult to break, they are intense, relentless, and medication makes them worse. I was in this cycle two years ago, it lasted for months. My current neurologist explained how this happens and why I have to limit Imatrex - Zomig is in the same family.
Zomig, if you're taking the pill form, probably won't do much to ease your headache.
Research shows that Imatrex is the most effective of the sumatriptan's especially when taken at onset. I could write an entire post on Imatrex/generics (not all generics are equal) the fastest relief is through nasal spray or injection.
The medications your doctor has prescribed work well to abort a headache. But you're in a migraine cycle, from my experience (and others I've read from migraine blogs and forums) these will not stop this cycle. For me, I had to be admitted to the hospital (I know you're probably freaking out). It took three days of getting off of Imatrex, and using several IV's to break the pain to "re-set" my system. An IV drip of magnesium can be very helpful.
Another option, read the book: How to Heal your Headache, the 1, 2, 3 program. Wonderful book. This book has helped several of my friends.

Many migraine sufferers take an anti-seziure medication. Research shows it cuts the headaches in half. The drugs mostly used are; Topimate or Valproate. But I doubt these would be options until you're out of this cycle.

Another reason to see a migraine neuro, is you may be a candidate for Botox for migraines. Your family doctor would not be able to give this to you.

Probably more info than you wanted. I hope you're able to get some relief. I'm very sorry, there is nothing worse. j

PJess
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 1/7/2016 5:21 PM (GMT -6)   
I know I am replying late. I was wondering if anything ever broke your cycle? My 15 year old daughter has had a migraine for 54 days now. We have tried EVERYTHING and I mean everything.........Botox, topamax, beta blockers, steroids, NSAIDS, narcotics, muscle relaxers, dry needling and physical therapy, reflexology, shots of torodol and cortisone, I am probably forgetting some........we can't get rid of it. She has had a few days where she felt good for several hours, but she has never gone over 12 hours without it coming back. Could it be rebound headaches? Have no idea. No doctors can figure it out and we have seen MANY. We are at a complete loss. She has missed five weeks of school, plus 3 weeks of holiday breaks.

She is otherwise healthy. would have frequent headaches after school, but they usually went away with Advil and a nap in an hour. BUT, this is unreal! Will it ever end?????

Thank you for your input...
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