Welcome to the board! We all here know what you are going through and we all write long posts from time to time, so don't ever worry about being long winded. The more information you can include in your post, the more likely it is that one of our board members has had the same experience and can share it with you. Among this group, I think we've pretty much covered all the bases, but we can still be surprised by some new medication, treatment, symptom, side effect, etc...so the more details, the better.
As for myself, I've had a headache everyday since January, except for two days last month. I just found out yesterday that my disability has been approved finally, and week after next, I am seeing my 3rd neurologist. As you can see, we have a lot in common.
I hope things get better for you, and feel free to use this forum to your heart's desire. We have to stick together because the migraine-free just don't get it.
Let us know how you are doing.