Has her neurologist performed all tests neccesary? Has she tried Migralief(or MigraHealth)? These are sold at pharmacy/drug stores and natural food stores. Just an idea. Hope she feels better soon.
My Daughter had a headache for three weeks before the myelogram was performed. The neurologist thought she had a small spinal fluid leak but the myelogram was negative. She is scheduled for a MRI w/contrast 11/2/05.
The physicians are unsure why at this age she has just started having headaches. She has never had anything like this before. She is an active teenager involved in band, volleyball, basketball, softball and top in her class. For the past four weeks she has stayed on the couch or bed 24/7.
We have tried taking her places that she loves thinking the distraction would help her feel better. After thirty minutes she is crying asking to go home.
She can not go to school and just does not feel well. The other night at 4 a.m. she was crying saying she wishes the test would find something wrong with her. This is NOT normal. No meds are helping and we are frustrated.
Prayers and comments are helpful.
Post Edited (diamond911) : 11/3/2005 5:45:55 AM (GMT-7)
Post Edited (diamond911) : 11/3/2005 7:49:59 AM (GMT-7)
Important note~~~~~~~~~~~~~Has your daughter been playing video games????? If she has, they can be causing the headaches. My neurologist says that she has 6 through 9 year old patients with chronic migraines that she has traced back to daily video game playing.
If she is playing video games to pass the time, I would have her stop immediately and discuss this with her doctor. Though I would not expect it to make her headache go away instantly.
(I have diabetes and often get a migraine when my blood sugar gets too low. Getting my blood sugar back to where it should be does not make the migraine go away immediately.)
Wishing you the best Janna. I have white spots as well. They have basically called them incidental findings. (had the whole workup for lyme, hiv, ms, you name it). I had many MRI's,a CT Scan, Spinal Tap, Evoke potentials and an MRA.
My question for diamond911 (or anyone else) is "if the MRA was ok, should I request a cerebral angiogram? Or is that picking fly poop out of pepper???
I am so interested in your daughter's situation.
I am so glad you didn't give up on finding out what was wrong.
Is she feeling any better yet?
any other developments?
The mycoplasma was diagnosed from a blood test sent to Athena Labs. The doctor ordered another spinal tap to test the spinal fluid for the mycoplasma. Five days ago we went to the local hospital for the spinal tap and my daughters blood pressure was high. The spinal fluid test for mycoplasma will take several weeks to get back. The routine test (glucose, protein, etc. ) are normal. Since the blood pressure was so high she was taken off of the antiinflammatory and stomach medication. We have monitored her blood pressure all week and it is sky high. While she is asleep her blood pressure is 135/96. While walking around the house it is 160/119. Now my 15 yr old is taking Corgard for high blood pressure. We are scheduled to return to the pediatrician Monday morning for further test. The pediatrician is also referring us to a pediatric nephrologist in Dallas. My daughter still has a headache, fatigue, and dizziness without a diagnosis. The only thing we do know is that mycoplasma is high in her blood.
I am so sorry to hear about your daughter, it must be really tough on her and the entire family. Although this is not a cure, a common home remedy may help relieve some stress and tension. One thing that I've done for years is to place icepacks on the side of my face by my trigger points. I use this product that I found online called the IceCaddy. It's a velcro sling that has two pockets on either sides and lets you ice your face hands free. It also comes with two icepacks for your convenience. This might help your daughter because she is new to migraines and is still not exactly sure how to go about treating them. You never know, it might be as simple as relieving some stress and relaxing for a while with icepacks on her face. It might just do the trick.