New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Cherisweet
New Member


Date Joined Nov 2005
Total Posts : 4
   Posted 11/3/2005 7:49 AM (GMT -6)   
 I am new to this.
It is all just so crazy ( the migraines) eyes   To live like this. Ijust wanted to mention that I have had to go on Steriods a few times before to "break" a migraine cycle. It does help a great deal. I have had migraines now for over 18 years and never heard of rebound until this year. That is the headache after the headache, right? Wow, and all this time I thought that it was just my head getting ready to explode again.
With me I now get migraines 2or 3 a month but they last from 5-7 days each one, where even earlier this year I would get 7-10 a month and they would only last a day or two. I can not even think at all anymore also my face is completly numb almost all the time with or with out the pain. My life is going by me and my head head hurts too bad to even watch.
My med list now: Depakote 500mg daily, Immatrex as needed, Codeine 30mg as needed, Pheneragran 25mg as needed. (I carry them with me everywhere I go now) I have tried almost everything. All test "look" good, whats next? How do you live like this? Even when you are not in pain the FEAR of the pain is always there. Any advice would be helpful. Thank you all, Cheri yeah

laura l.
Regular Member


Date Joined Oct 2005
Total Posts : 54
   Posted 11/3/2005 10:42 AM (GMT -6)   
Hi Cheri,
Welcome! I (and I am sure most everyone here) know how you feel having one headache after another. It is a tough situation - so sorry you are going through it. I also know what you mean that life is passing you by -- so many missed social occasions, big and small... Like you I have been on steroids to "break" a long migraine. How often are you taking your Imitrex and codeine? -- you might want to read Nicky's excellent post on rebound headaches. Do you have a good neurologist? Also, do you get a lot of nausea with your migraines? If so, there may be better choices for pain than codeine (Vicodin or Percocet, some use Stadol nasal spray or others; if codeine works for you, then great!) Just a few thoughts. Take care and, again, welcome.
Laura L.

Cherisweet
New Member


Date Joined Nov 2005
Total Posts : 4
   Posted 11/3/2005 11:42 AM (GMT -6)   
I did read about the rebound headaches, it was a very imformative posting for me. I was told to only take the imatrex twice a week, (4 pills max), and to hold off with the codeine, but once you get that fear in you, it is hard to "hold" off. I am not sure about my Neuro, she is very passive, and says "I'm sorry" alot. The codeine will lower the pain, but nothing takes it away. I do get alot of nausea, and all of the sensitivies to light and smell is a major one with me. She gives me phenergan for the nausea. I don't understand why now the length has grown and now the new symptom of the facial numbness. Any clue? Thanks, Cheri

Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 11/3/2005 3:47 PM (GMT -6)   

Hi Cheri,

Welcome! I'm sorry to say many of us know how you feel. As I lie here in bed in the dark with a pounding headache. :-)

It sounds like the Depakote is working somewhat as your migraines have reduced slightly. Have you discussed the numbness with your neurologist? If your not comfortable with your neurologist perhaps is it time to switch to another one?

Have you discussed any other pain medications with your neurologist? I take Toradol and Aleve before I get to the Codeine. My neurologist and I have a pain management plan - steps I take when the pain starts.

If you're taking Codeine regularly the length of your migraines could be rebound headaches.

I would talk to your neurologist or a doctor you trust and develop a plan together.


Nicky
 
Fall seven times, stand up eight.
                 --Japanese proverb


laura l.
Regular Member


Date Joined Oct 2005
Total Posts : 54
   Posted 11/3/2005 10:19 PM (GMT -6)   
Hi Cheri,
I would echo what Nicky has said. If you are not completely comfortable with what your neurologist is doing (saying I'm sorry more than proposing things to get rid of your headaches), you might consider switching. This is usually best done by switching to a new group, as it is often hard to get a second opinion from someone who is a colleague of the person you were originally seeing. There are often specific neurologists in a group who specialize in the management of headaches. Since nausea is a prominent symptom for you I would think that some other pain medication might be better than codiene -- maybe start off with a nonsteroidal antiinflammatory drug [NSAID -- e.g., Advil, Aleve] and triptan and go to a different opiate (one not associated with as much nausea as codeine) if the NSAID/triptan does not work. If you are taking any of the pain meds regularly you could try gradually cutting back on the frequency as Nicky suggested. Also, as far as anti nausea drugs go, Compazine is known to provide relief from migraine pain (not just nausea) and might be a good choice for you. It can be taken in pill form or, if you are too nauseated, as a suppository. Some people need to take it with a little Benadryl (for muscular side effects). Anyway, just a few more ideas. But getting a new neurologist sounds like a good place to start....The best are those who are knowledgeable but open to suggestions from you the patient as well. Take care.
Laura L.
Laura

Cherisweet
New Member


Date Joined Nov 2005
Total Posts : 4
   Posted 11/7/2005 7:55 AM (GMT -6)   
:-)  Thank you all for the great advice. It is nice to know that you are not alone. I think I agree, I will start to look for a new neuro, I was always hesitant because she has my history and I've spent many years with her. But, if she is not being proactive, then it is time to move on. I am on Depacote, and it is killing my stomach, yuck!!!! Does anyone else take it? Does it make them feel sick too? Have a great and hopefully pain free day, Cheri
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 23, 2017 9:31 AM (GMT -6)
There are a total of 2,886,013 posts in 316,665 threads.
View Active Threads


Who's Online
This forum has 157768 registered members. Please welcome our newest member, mariegonz995.
1001 Guest(s), 21 Registered Member(s) are currently online.  Details
PeteZa, teta91, NancyG457, tmichael, Surfer22, dacarte3, Michael_T, Kat1000, Dr Gearhead, Starlight*, NiceCupOfTea, gabybee, PA_grandma, InTheShop, quincy, Shelly1978, nmckinley, Annie88, Howard3569, mcloud, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer