Thanks for this post and to the moderator who asked you to post it. It's not something that occurs to me because it's something that both my gp and neurologist tell me over and over again. I'm not sure if that's because I used to ask a lot or because they know that it's a common concern among migraine sufferers.
I suffer major visual disturbances and sometimes feel like I'm suffering a stroke and both doctors always reassure me its just a migraine. I've had them so long now, I'm used to them and I only go to the doctor when they change or last for an extremely long time and I can't relieve the pain with the "pain management plan" we've put in place.
I think it's important to stress that a good relationship with your doctor is vital to your recovery / maintenance. Then when you are concerned that you have something more serious than a migraine you are comfortable enough to ask the question.
Hi Laura. I have either a pituitary microadenoma or a Rathke's cleft cyst in my pituitary gland/region. Does that cause headaches? (no pressure to the optic chiasm or anything). Just curious. Not looking for free advice but was curious what a Dr's take on it is.
Docs say it may be a RCS of micro adenoma (radiologist report from Cleveland Clinic - MRI's taken in Indiana but they use CC as radiology). I have had a billion blood tests, all been normal. Headaches and visual symptom in one eye came first.
Sorry it took me so long to respond. You are an invaluable asset to this forum and we are so glad to have you...Please continue to post and keep us all informed...
Thanks for writing this one...I may have more requests **wink**
I'm so sorry to hear about the pain you are going through and the difficulty you are having figuring out what is wrong. I can't give you the medical answer you're looking for but maybe I can give you some support.
I like you get regular headaches and share your pain. I have also suffered the depression from suffering from so much pain. As my doctor once said, "having a headache every day is enough to make you depressed." That's not coupled with the effects on your family, concerns about work and friends and just your general well being.
Are you seeing a counsellor? I see a neuropsychologist who speciliazes in chronic pain. She has helped me overcome the depression, even with the headaches. I still face the challenge when I suffer chronic headaches but it helps make it easier.
Is there another neurologist close to you that you can see that can give you a more definitive answer? It doesn't sound like your neurologist understands your concerns and fears and is addressing them. That's part of the doctor patient partnership and if you're not getting what you need then it's time to find someone who will. Reading your email, the choices you have outlined don't sound very positive and I just can't believe they can let someone walk around with something that could rupture giving them only 8 seconds to live without the proper treatment. Ethically it sounds wrong. You are entitled to find a doctor that gives you an answer that you can live comfortably with and don't live in fear that the next headache is going to be your last.
Please keep in touch and post a message any time you need some support.