Uncontrollable Migraines

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MAKersey2009
New Member


Date Joined May 2017
Total Posts : 2
   Posted 5/15/2017 2:03 PM (GMT -6)   
Hey everyone!! So I have been suffering from excruciating migraines now for about a year and a half. I was diagnosed with. B12 and vitamin d deficiency as the cause of my migraines. They have prescribes me topomax at 50mg twice a day plus a form of an inhaler and also trezix incase neither of those work. Lately none of that has been helping. I almost become like a stoke patient; my speech begins to slur and my visions blurs today they called me in a new prescription of Cambia. Has anyone ever heard of this??

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 6860
   Posted 5/15/2017 2:37 PM (GMT -6)   
Welcome to the forum.

I have had daily head pain since 2006.

here is info on Cambi. /www.drugs.com/cambia.html

I can not take it because one third of my pain is from cluster headaches. then I have Trigeminal neuralgia and hemicranial continua. All under the "umbrella" of migraine.

I too take topomax, I am on generic, take 100 am, 150 p, I also take 5mg of baclofen 3 times a day. This keeps my pain Level down to around 3-5 in the scale .

I understand your slurring and vision.

I can suggest a few things to help that. I worked for me and I know a few other people. Change your diets to Whole Foods diet. NO processed foods. Reduce read meat s much as possible. NO artificial ingredients, NO food dyes. Wean off the caffeine to nothing.
NO Soda!!

Check the juices for artificial stuff. I drink 32oz + of water a day.

Fruit, veggies, salads, roast veggies in oven, omelets, rice dishes, grains, whole new world!!

Love mangos, avacodos, etc....

Weather plays a big part in my pain, so I may be increasing the baclofen up some.

But since 2006 and many neurologist I have discovered that just meds are not going to be MY answer.

I hope some of this info help.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

MAKersey2009
New Member


Date Joined May 2017
Total Posts : 2
   Posted 5/15/2017 2:38 PM (GMT -6)   
Thank you so much I will definitely look into all of these options especially the changing of the diet!!

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 6860
   Posted 5/15/2017 2:41 PM (GMT -6)   
I hope you get relief soon.

At the top of the forum, there is a thread Resources. There is a link to migraine diet. I have not seen it for a long time.

Important thing to remember with uncontrolled pain is the artificial things going in your body.

Peace
Trina
Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;
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