Post Edited (JenMcD) : 12/27/2005 3:21:16 PM (GMT-7)
I'm sorry about all of the pain you're in and the trouble you're having finding a solution. I can empathize. I was at the same point as you a year ago when I went on disability. I was off for six months and then returned to a more junior job closer to home. Here are a few things that my neurologist has tried / suggested that your neurologist might consider:
Ativan / Toradol / Narcotic - The Ativan relaxes me to enable me to sleep, Toradol relaxes my muscles and Narcotic (T3s) cover the pain. I take one Ativan, 2 Toradol and 2 T3s. I only take this in extreme circumstances because of the possibility of rebound headaches with T3s.
Gravol / Dramamine - to help me sleep with pain killers.
Botox - Relaxes face muscles that may trigger migraines.
Some natural remedies are exercise, especially swimming, warm baths, and relaxation exercises. I also have hobbies that don't take a lot of concentration but keep my mind off the headaches.
Hi JenMcD - I can completely relate to your story. I am new to this forum. I joined because I don't know where else to turn. I am so desperate for help right now, and I have no one to go to. I have suffered from migraines/chronic headaches for the last 10 years. Over the past year, they have turned into daily chronic headaches, most of them migraines. Some are worse than others, but I honestly can't remember the last day I didn't have a headache. I was hospitalized February of 2005 for a migraine that lasted two weeks straight with no relief, and treated TERRIBLY by the way. Ever since I got out of the hospital things have gotten worse. I had headaches so bad that I was on 4 10mg/500 mg Hydrocodone a day. I was also taking Ambien at night to sleep, because the pain was so bad I couldn't even go to bed at night. Unfortunately, the Ambien had a very bad effect on me, and caused me to be in a really bad car accident, and I ended up in the hospital last August. Immediately following, I ended up going to rehab because they decided I had to get off the pain killers and couldn't do it on my own. The thing people didn't realize was that the only reason I was taking the painkillers was because I was in so much pain. I haven't taken any painkillers since August, but I still have the daily headaches. The bigger problem now is that even if I need painkillers, I can't get them, because now I am looked at as having an addiction problem. This is a problem for me because I can't find anything else that works. Headaches are literally ruining my life. I don't know how much more I can take. I go to bed at night with a headache, and I wake up in the morning with a headache. I won't accept living with these. I have seen so many doctors over the years, and none of them have been able to help me. I think the doctors I have seen have actually made the problem worse. I have had multiple MRI's and CT-scans over the years, and all of them came back normal. I am still left with the uncertainty of not knowing what is causing these headaches. I am so miserable I can barely concentrate on anything. I am afraid my work is being compromised because the headaches rule my life. I have taken every triptan on the market, and Relpax is the only one that has worked for me, but insurance only covers 6 tablets a month, and I get a headache every day, so you can see what the problem is. The only medicine that gets rid of the pain is hydrocodone. It doesn't get rid of the headache, but it at least provides relief for a short period of time, and for people who suffer from migraines, ANY time without a headache is a good time. I just don't know what to do anymore. My family doctor is worthless to me. I have an appointment scheduled to see a new neurologist on February 2nd, but I am not very hopeful because I have never gotten any help from a neurologist. I am tired of being looked upon as someone who is only out there to get medicine. I am only out there to get RELIEF. I don't know why that is so hard for people to understand. I don't want to be treated badly anymore. I want to get help, and I want to get rid of the headaches. I am only 26, and I really cannot see myself going through life this way. I have no quality of life because of headaches. I am in desperation right now. If anyone out there has any information that can help me, I would be truly grateful. I am so miserable. Pain will make you do crazy things. I have been in so much pain, that I actually wanted to fall down a flight of stairs so I would have some other pain than a headache. That is how bad the pain is. I don't think a person should have to live like this.
Help anyone???? I am going on day 10 with the same headache, and nowhere to turn....
Perhaps asking the neurologist what he expects you to do when you have a migraine if he won't prescribe pain killers. It just makes me mad when doctors won't prescribe necessary medications for pain.
Regarding getting one's DEA license yanked because of prescribing too many pain killers: that almost NEVER happens> The kind of doctors it happens to are ones who write narcotic prescriptions indiscriminately without documenting an indication for them and who give obviously massive quantities that one person could not use (i.e., could sell). In all my years of practice (including med school more than 20 years) I have never even heard of ONE doctor having his or her DEA yanked over prescribing too many narcotics. What I have seen (and in spades) is the chronic and recurrent UNDERTREATMENT of pain in all kinds of patients, from headache patients to patients with broken bones to cancer patients!!! So I would not buy that DEA stuff -- it is just an excuse (or maybe the poor guy really believes it) -- but undertreatment of pain is a much bigger problem and there have even been lawsuits (generally by inpatients, though not always) by patients charging their doctors with undertreating their pain. Unfortunately undertreatment is sort of the standard of care (isn;t that a sad state of affairs) but I know some of these suits have been won. So MDs are going to have to watch out at some point....They won't be able to get away with undertreating pain forever (or so I hope). By the way, it is even harder to get pain meds from an MD if you ARE an MD because they are afraid of creating an addicted MD......You gotta love it.