Hello - I am new to this forum. I joined because I don't know where else to turn. I am so desperate for help right now, and I have no one to go to. I have suffered from migraines/chronic headaches for the last 10 years. Over the past year, they have turned into daily chronic headaches, most of them migraines. Some are worse than others, but I honestly can't remember the last day I didn't have a headache. I was hospitalized February of 2005 for a migraine that lasted two weeks straight with no relief, and treated TERRIBLY by the way. Ever since I got out of the hospital things have gotten worse. I had headaches so bad that I was on 4 10mg/500 mg Hydrocodone a day. I was also taking Ambien at night to sleep, because the pain was so bad I couldn't even go to bed at night. Unfortunately, the Ambien had a very bad effect on me, and caused me to be in a really bad car accident, and I ended up in the hospital last August. Immediately following, I ended up going to rehab because they decided I had to get off the pain killers and couldn't do it on my own. The thing people didn't realize was that the only reason I was taking the painkillers was because I was in so much pain. I haven't taken any painkillers since August, but I still have the daily headaches. The bigger problem now is that even if I need painkillers, I can't get them, because now I am looked at as having an addiction problem. This is a problem for me because I can't find anything else that works. Headaches are literally ruining my life. I don't know how much more I can take. I go to bed at night with a headache, and I wake up in the morning with a headache. I won't accept living with these. I have seen so many doctors over the years, and none of them have been able to help me. I think the doctors I have seen have actually made the problem worse. I have had multiple MRI's and CT-scans over the years, and all of them came back normal. I am still left with the uncertainty of not knowing what is causing these headaches. I am so miserable I can barely concentrate on anything. I am afraid my work is being compromised because the headaches rule my life. I have taken every triptan on the market, and Relpax is the only one that has worked for me, but insurance only covers 6 tablets a month, and I get a headache every day, so you can see what the problem is. The only medicine that gets rid of the pain is hydrocodone. It doesn't get rid of the headache, but it at least provides relief for a short period of time, and for people who suffer from migraines, ANY time without a headache is a good time. I just don't know what to do anymore. My family doctor is worthless to me. I have an appointment scheduled to see a new neurologist on February 2nd, but I am not very hopeful because I have never gotten any help from a neurologist. I am tired of being looked upon as someone who is only out there to get medicine. I am only out there to get RELIEF. I don't know why that is so hard for people to understand. I don't want to be treated badly anymore. I want to get help, and I want to get rid of the headaches. I am only 26, and I really cannot see myself going through life this way. I have no quality of life because of headaches. I am in desperation right now. If anyone out there has any information that can help me, I would be truly grateful. I am so miserable. Pain will make you do crazy things. I have been in so much pain, that I actually wanted to fall down a flight of stairs so I would have some other pain than a headache. That is how bad the pain is. I don't think a person should have to live like this.
Help anyone???? I am going on day 10 with the same headache, and nowhere to turn....
Thanks for the help. I actually used to take the Imitrex injections, but they stopped working for me. As did all the migraine medications I have taken. The only thing I get SOME relief from is Relpax, but I have to take two for each headache, and I only get 6 a month...and I have headaches every day....which doesn't work out too well for me!!!!
In regards to what you said about the neurologist - I have a letter, as well as a list of every medication I have taken, which ones have worked, which didn't, what triggers my migraines, etc. I have as much information as I possibly could put onto paper. I am really hoping that helps.
I recently started taking Toradol pills to help, but they only work sometimes. I just don't know what do to anymore!
Welcome! I'm sorry to hear about the pain you're in and the trouble you're having find help. You're headed in the right direction going to see a neurologist.
Philski is right about Triptan medications, they can work well. A neurologist can probably write you a letter to ask your insurance company to cover more than the 6 Relplax allowed per month.
I take Toradol as well and find that sometimes taken with Tylenol they work better - but be careful of rebound headaches with Tylenol. I also find taking Gravol or Drammamine with Toradol helps me sleep and relax so the Toradol can work.
A good relationship with a neurologist has been the key for me. S/he can help you develop a pain management plan. It sounds like you really need to be on a preventative medication. There are some good ones out there with some good results.
I'm sorry that you've been labelled as a drug addict. I had to wean off pain killers myself. I know the feeling. I wouldn't take pain killers unless I had a headache and then, what do you do when you are off the pain killers and still have the headaches.
Hang on. There is hope. Have faith in your neurologist. If the first neurologist doesn't help, find another one. That's the way to find relief.
Thank you very much for keeping me in your prayers. I really do appreciate it. I feel like this is the only place I can actually relate to anyone! Most people think I am so crazy. I can't stand being treated so awful by doctors. I have actually given up on doctors. I am going to give this new neurologist a chance in February. I am hoping he can help, because if he doesn't, I am totally done with doctors. I have found them to be worthless and discouraging. I will keep you in my prayers also. No one should have to live like this....
Post Edited (EvilFluorescents) : 1/28/2011 11:24:19 PM (GMT-7)