How can I help my husband with his daily migrains?

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JellyBeanJean
Veteran Member


Date Joined Jan 2003
Total Posts : 610
   Posted 1/5/2006 7:51 PM (GMT -6)   
Hi,
My husband has daily severe migraines. He is 35 yrs old, was in a bad car accident as a teenager and has been having migraines since. On a rare occasion he will go a few days without a headache, or the headache will be brief. The past week has been horrible for him. He is getting severe migrains several times a day accompanied by severe gas and vomiting and dizziness. Meds he takes are Topomax, Cymbalta when he can get samples from his doctor ( insurance wont pay for it), Imitrex ( insurance only pays for 9 pills a month which just doesnt cut it, they are usually gone in less than a week), Zomig if he can get samples, or Axert if he can get samples, phenegren as needed, Excedrin if he doesnt have anything RX to treat the headache. His primary doctor doesnt seem to take him seriously. His cat scans come back normal. His neurologist will not listen, he only preaches and tells him what he will do instead of asking questions and listening. Our insurance only will pay for one neurologist in our area ( the crappy one he has) so he cant change neuro docs. They have been severe enough in the last week to completly disable him, he hasnt been able to work. He cries and shrieks from the pain, bangs his head on things because he says it feels better than the pain. He vomits and has horrible gas. He is very careful about what he eats..no chemicals or spices or processed food, mostly natural food. Tommorow Im going to try to see if I can take him to maybe an urgent care center or somewhere where they can run some tests on him..Im wondering if a spinal tap would reveal anything? What kind of tests are important in headache evaluation? The only test he has had are cat ( CT) scans. He cannot take vicoden or percocet or anything narcotic because it makes him even more naseous and doesnt help much with the pain. Demeral injections or IV helps, but as soon as it wears off he's back in the same boat. Cant run to the doc or ER everytime he has a headache for a Demeral shot, either. I dont know what to do, he cant work and gets very little relief. It's tearing our family apart, Im not in the best of health either, I have a bad case of crohn's disease and just had another major operation on my bowels..so I cant work now either. HELP!!!
I dont know what to do, please help!

KrisTealer
New Member


Date Joined Jan 2006
Total Posts : 1
   Posted 1/6/2006 12:10 PM (GMT -6)   
Hello, I'm new to this forum, but not new to the pain.  I have been having migraines since I was 10.  I'm almost 29 now.  In the back of my mind I'm always thinking "what if I get a migraine" if I'm out somewhere.  It keeps me from doing the things I want to do and going places I want to go.  I usually don't plan or schedule ahead because I don't know how I'll feel on that particular day.
I can sympathize with your husband.  Just this past Monday, I had my husband take me to the ER because of a migraine I had had for 3 days.  I couldn't take the pain anymore, not to mention I hadn't eaten anything for 2 days.
I see a neurologist.  This is actually my second.  I kind of ran out of options with the last one.  I wasn't satisfied with the answer he gave me..."You're a migraine person, you just have to accept it".  My Ass!!!  Anyway, the new one is giving me new things to try.  Physical therapy, although it felt good at the time, really didn't do much for me.  I was on Topamax.  I was on it for 3 years.  I think I became immune to it or something, it just stopped working for me.  Currently I'm on Zanaflex, which is supposed to calm the nerve endings, and Maxalt-MLT for the pain relief.  Thank God my RNP always loads me up with samples of the Maxalt.  They're so expensive, and they only give you so many on the insurance.  Also, I just started taking the vitamins that are supposed to help; B2(Riboflavin), and Magnesium.  At 400mg a day of each, I'm supposed to start seeing a difference w/i 6-8 weeks.  I've got my fingers crossed.
Recently, my RNP highly suggested Kenalog Trigger Point Injections.  I was researching it, and that's how I came across this sight.  It's a few injections into the skin, above the muscles in your trapezius muscles and up inth the back of your neck.  It's supposed to calm the muscles during a migraine.  I know my whole neck sure does hurt when I have one, I think I'm going to give it a try.
I hope some of this will help you.  Hell, I've even looked up Botox research groups...none in my area.  I'd do it if it wasn't so darned expensive.
                                                 KT
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