DAILY HEADACHE - FACE & TEMPLES - BURNING ALL DAY LONG !!!

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Richard VI
Regular Member


Date Joined Feb 2006
Total Posts : 44
   Posted 3/1/2006 10:34 AM (GMT -6)   
Hi
 
i have been and done almost everything under the bloddy sun by now. I have tried most drugs all mentioned and tried all kinds of alternative and natural treatment.
 
I suffer unbearable chronic daily burning sensation headache pain which is always in my temples across my cheeks, under my eyes and over my eye brows. it burns and burns and burns to the poitn i want to get a knife and cut it out.
 
Im 20 years old and had it chronically every day for 2 years.
 
i must know if others have or have suffered this exact headache, it has no cause, and is made worse by any trigger, stress, talking, tv, noise, anything, it constantly feels like its on fire and your face is literally blowing up although it seems ok.
 
it has always been both temples omitting the awful pain and pain killers of all types barely touch the pain.
 
i will soon list pages of treatment i have had and taken.
 
and also make recommendations of good/bad treatments i have tried.
 
Kind regards
 
Richard from London
 
p.s.  suffering severely as writing this second.

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 3/1/2006 1:17 PM (GMT -6)   
Hi Richard, welcome to Healing Well, I have every sympathy with you over the burning pain as my migraine attacks feel like there is a red hot poker in the corner of my left eye and the burning sensation radiates around the left side and stops at the centre of the back of my head. I would be interested to hear about the meds you have tried, and have you seen a Headache specialist? Keep posting and we will support you as best we can, best wishes Ann.

mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 3/1/2006 2:01 PM (GMT -6)   
hi Richard and Anne

i really feel for both you guys!!!!

My Husband suffers from Cluster Headaches and has the same kind of pain that you describe Ann!!!!

Richard have you seen a neurologist to try and find out what is going on?

what meds have you tried, just re read and see you are going to post that info (duh!!)

any way, if i can help in any way please just ask, even if it is just to let off steam!!!!

tc sandra xxx

mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 3/1/2006 3:07 PM (GMT -6)   
hi richard, have been asking some friends of mine about your headaches and there are a few sites you can have a look at, they may give you some answers. but again, i really think you need to see a neurologist if you haven't already done so for a propor diagnosis!!!!


http://www.tna.org.uk/

http://www.patient.co.uk/showdoc/23068836/

and

http://headaches.about.com/sitesearch.htm?terms=Hemicrania%20Continua&SUName =headaches&TopNode=16307&type=1

i hope you find these of use to you

take care

sandra xxxx

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 3/1/2006 3:39 PM (GMT -6)   
Hi Sandra, Thanks for responding to me too. How often does your husband experience these attacks, mine average about 2-3 per week. I am on a very very long waiting list to see a Neuro who is a Headache Specialist - I have already seen 3 different Neuros - I have suffered with this for 30 plus years - thankfully not continuously at a rate of 2-3 per week, that rate has been building over the last 10 years!

I have tried Sanomigran, Propranolol, Epilim, Methysergide as preventatives and paramax, migraleve and now sumatriptan for attacks and sometimes ibuprofen. My GP has now got me on Amitriptyline for prevention and is considering that I may have an anxiety disorder that this will help with.

Thanks again for posting back, take care Ann

mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 3/1/2006 3:51 PM (GMT -6)   
Ann

Andy also experiences then on average 2-3 times a week, but can sometimes have them every day for about a week at a time!!!

is the sumatriptan helping?

where and who is the neuro you are waiting to see?

just another question, does your eye close, swell or go red, and does your nose get blocked at all?

sandra xx

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 3/1/2006 4:23 PM (GMT -6)   
Hey Sandra, yes my eye drops until it closes becoming almost paralysed!!...feeling almost numb and heavy with fluid and looks puffy almost like I'm having a stroke! My nose does block up on my left side, but then I have Allergic Rhinitis(Hey Fever) all year round too. My eyball goes somewhat bloodshot and seems to bulge a little too.

The sumatriptan does work, and has been the only thing that has ever brought real relief, I administer the injections myself! Although it does not work quite as thoroughly as when I first started on it (15years ago or therabouts when it first came out), but is working better now I am on the Amitriptyline!

The Neuro is Prof Goadsby at the London Hospital of Neurology, I know I am on the waiting list but it is soooooo long!!

Take care Ann.

mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 3/1/2006 4:34 PM (GMT -6)   
hi Ann i really think you should check out OUCH UK, i am no dr, but it sounds very much to me like Cluster Headaches!!

Andy has also been to see Prof Goadsby, he is absolutely lovely

another thing you could ask your gp for is O2. Most people with cluster headaches have great success with that, you need to have it with a high flow regulator as you need to take it at 7-12 lpm.

ouch uk have a support board, and there is also a helpline. you can phone them and someone from the helpline will phone you back, they are all sufferers too

i hope you get your appt to see Prof Goadsby soon, he is the expert on Cluster Headaches and other similar types!!

the link for ouch is http://www.clusterheadaches.org.uk/home

once you get to the home page, just follow the links for the support board

the help line no is 0161 272 1702 or you can e mail me and i will send you some info about CH

good luck and let me know how you get on, and if i can do any thing else to help

sandra xxxx

Post Edited (mrs mac) : 3/1/2006 2:41:30 PM (GMT-7)


mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 3/5/2006 12:12 PM (GMT -6)   
hi Anne and speedsneed, just thought i would check in to see how you guys are doing??

mrs mac xxx

major pain
New Member


Date Joined Mar 2006
Total Posts : 1
   Posted 3/6/2006 2:54 PM (GMT -6)   
First timer here, just wanted to let Sandra know that I have recently been put on Amitrypiline.  Good news is that it has helped my sleeping habits, I actually sleep all night and I don't wake up with headaches or migraines as I used to.  The bad news is, I still get the migraines and the daily headaches.  I do recommend the medicine it has lessened my time spent in pain but I would not get my hopes up to high.  Keep a glass of water on your nightstand, I have terrible dry mouth from the med, and it will also dry your sinuses and seems to also dry out  my skin.  I have been reading all these different articles and forums and posts.  I'm at the point now that I honestly believe I will never be cured.  I have always tried to stay away from anything too adictive (ie. pain medication) but right now all that helps is a heavy dose of Loratabs.  The problem with that is when they wear off, migraine is back.  I had one doctor give me a Stadol nose spray, because it is less likely to allow the migraine to came back, but there again it is addictive and I can't imaigine that anything you spray in your nose aon a regular basis could be good for you.  If anyone has any suggestions for me I'd love to hear it.  I don't want to depend on medication the rest of my life but I do realize that I might have to deal with the meds anyway.

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 3/7/2006 4:25 PM (GMT -6)   
Hi major pain, sorry that you are suffering so much. I agree the amitriptyline is good for a decent nights sleep but the dry mouth can make me more thirsty than usual - I wondered what was happening to my skin as it is now more dry then usual! I have the Imigran (Imitrex) injections to abort the attacks which I administer myself - I don't know what I would do without them!! Yes sometimes the pain etc does come back after the injection has worn off but I am very pleased to say that since I have been on the Amitriptyline the injections work every time! Properly!!!! - just need to get the frequency down now!!!

Mrs Mac, thanks for all your info, I did email you but seems like you did not get the email. Good News I spoke to National Hospital yesterday and they seem to think that I've only got around 4 months to wait now!! I do seem to have a lot of the symptoms for Cluster Headache but not all of them thanks again Ann.

mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 3/7/2006 8:47 PM (GMT -6)   
hi ann, check your e mails!!!

mrs mac xxx

Richard VI
Regular Member


Date Joined Feb 2006
Total Posts : 44
   Posted 3/15/2006 3:00 PM (GMT -6)   
HI GUYS AGAIN!
 
SORRY IVE BEEN GONE SOO LONG, IVE BEEN IN SOO MUCH PAIN!
 
IVE SEEN 3 NEUROLOGISTS, MOST ARE A WASTE OF TIME, THEY WANTED TO PUT ME ON VALIUM IN THE END SO I STOPPED SEEING THEM.
 
I HAVE TRIED EPILLIM, AMTITRPTYLINE, DOTHIEPIN, AND CURRENTLY ON TOPIRAMTE TAKING 80MG, BUT BARELY ANY HELP!
 
MY PAIN IS ALWAYS IN BOTH EYEBROWS, SHOOTING UNDER MY EYEBROWS, ALONG MY CHEEKS, BURIED IN MY TEMPLES ALL DAY LONG, IT KILLS ME AND IM SO YOUNG ONLY 19 YEARS OLD TO HAVE SUCH CONSTANT PAIN, ALL MY FRIENDS THINK IM MAD, 4HEAD RELIEF RUB WORKS A LITTLE BUT I USE IT EVERYDAY NON STOP AND IT MAKES MY EYES WATER, BUT THE PAIN IS JUST THERE ALL THE TIME,
 
IT SEEMS LIKE IT IS NERVE OR SINUS PAIN, BUT I HAVE SEEN A FACIAL PAIN SPECIALIST, AND HAD AN MRI OF MY SINUSES WHICH WAS OK.
 
IVE BURIED MYSELF IN MY HOME IN LONDON FOR ALMOST A YEAR STRAIGHT NOW, I HAVE NO LIFE, ALL I DO IS WAIT FOR A MEDICINE TO WAIT OR THE PAIN TO GO, ITS TOO HARD TO GO OUT AND FUNCTION NORMALLY WITHOUT PAIN KILLERS.
 
PLEASE CONTACT ME AT MY DIRECT EMAIL ADDRESS IF YOU CAN HELP ME ANYONE PLEASE!
 
MY NAMES RICHARD FROM LONDON
 
 
 

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 3/15/2006 3:32 PM (GMT -6)   
Hi Richard, I am sorry that you are in so much pain still. How long did you try the Amitriptyline and other drugs for? I am wondering if it is a facial nerve pain, what has the Facial Pain specialist said, has he discharged you?

Whatever it is, it is causing some real panic and stress in you quite understandably, it seems to me that there might be a place to take the valium on short term basis only. I have got to the point of when I eventually see this Neurologist who is a Headache Specialist if he suggests anything from another drug to Psychotherapy I am willing to try whatever!!!! After 30plus years of suffering with this I think anything is worth a go.

What painkillers do you take? When I was taking Co-codamol I didn't realise till after some years of taking it that the co-codamol was causing more headaches than it was ever relieving!! I don't get the chronic daily headache that I once did now I have stopped taking co-codamol (paracetamol and codeine - codeine is a narcotic and addictive).

Have you any family support? Are you able to work? What happened when the pain first started 2 years ago, there might be a clue in the events around that time on how to move forward. Hang in there Richard, sadly there is no quick fix to this but we are all rooting for you. I will pray for you take care Ann

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 3/15/2006 3:32 PM (GMT -6)   
Hi Richard, I am sorry that you are in so much pain still. How long did you try the Amitriptyline and other drugs for? I am wondering if it is a facial nerve pain, what has the Facial Pain specialist said, has he discharged you?

Whatever it is, it is causing some real panic and stress in you quite understandably, it seems to me that there might be a place to take the valium on short term basis only. I have got to the point of when I eventually see this Neurologist who is a Headache Specialist if he suggests anything from another drug to Psychotherapy I am willing to try whatever!!!! After 30plus years of suffering with this I think anything is worth a go.

What painkillers do you take? When I was taking Co-codamol I didn't realise till after some years of taking it that the co-codamol was causing more headaches than it was ever relieving!! I don't get the chronic daily headache that I once did now I have stopped taking co-codamol (paracetamol and codeine - codeine is a narcotic and addictive).

Have you any family support? Are you able to work? What happened when the pain first started 2 years ago, there might be a clue in the events around that time on how to move forward. Hang in there Richard, sadly there is no quick fix to this but we are all rooting for you. I will pray for you take care Ann

Richard VI
Regular Member


Date Joined Feb 2006
Total Posts : 44
   Posted 3/16/2006 2:28 PM (GMT -6)   
I HAVE TAKEN ALL KINDS OF PAIN KILLERS, IVE STOPPED TAKING MANY NOW AND JUST BARE THE PAIN, ITS CRAZY BUT THE NEUROLOGISTS TOLD ME PAINKILLERS ONLY MADE IT WORSE, AND MY PAIN IS CONSTANT, UNTIL I GET A DAY OF RELIEF I DONT SEE THE POINT IN A FEW HOURS RELIEF.
 
IVE TRIED SOME THREAPY, ITS A WASTE OF TIME, WE JUST TALK about LIFE AND STUFF, I SEE A HEALER ONCE A WEEK, A VERY SWEET LADY, BUT NO HELP REALLY.
 
MY MUM HAS BEEN WITH ME SINCE DAY ONE AND TAKE SME TO ALL THE DOCTORS EVERWHERE, OTHERWISE THERE IS LITTLE SUPPORT BUT EVERYDAY PEOPLE I MEET FEEL SORRY FOR ME.
 
I REALLY THINK ITS ATYPICAL TRIGEMINAL NEURALGIA I HAVE WHICH HAS CAUSED ALL MY PAIN BUT THE FACIAL PAIN DOC I SAW SAID IT WASNT!? IM VERY CONFUSED, AND LOST.
 
I WILL SEE HIM ONE LAST TIME, TO SEE WHAT HAPPENS, IM TIRED OF TRYING EVERYTHING, THE DAYS ARE TOO LONG AND TOO PAINFUL, WHY HAS THE BLODDY WORLD NOT INVENTED CURES FOR SUFFERERS LIKE US!!??
 
ITS HOORIFIC TO THINK GOOD PEOPLE ARE SUFFERING SO MUCH!
 
I DONT KNOW, EMAIL ME DIRECTLY TO CHAT IF U CNA PLEASE ITS JUST EASIER THAN LOGGING IN EACH TIME.
 
RICHARD

mrs mac
Regular Member


Date Joined Nov 2005
Total Posts : 163
   Posted 3/16/2006 10:55 PM (GMT -6)   
hi richard, have you managed to check out those links i gave you?

also maybe you could ask your dr to refer you to the Institute of Neurology in Queens Square ask him to refer you to Professor Peter Goadsby, he has done a lot of research into Headaches!!

i really hope you get sorted soon honey, i really feel for you suffering all the time!!!

tc

sandra xxx

Richard VI
Regular Member


Date Joined Feb 2006
Total Posts : 44
   Posted 6/19/2008 12:36 PM (GMT -6)   
hi everyone, thank you so much for your support. sadly i have still 2 years on has NO PROGRES... and i really am terrified what the future holds for me now... i am so depressed and eaten by this agony that i am loosing sight more with each day...

I eventually became a patient of PROF GOADSBY and have been now for almost under 2 years, with no improvement yet....

part of this is because he can only offer me private appointments at UCL London once every 3-4 months which is seriously no help at all...

my condition has worsened, my symptoms are worsening, currently PROF GOADSBY is treating me with NUELIN SR for his idea that my pain is all linked to a LOW CSF pressure issue, although after now 4 months i am now experiencing cluster headaches on top of my current pains and the Nuelin is making my condition CLEARLY MUCH WORSE.

i cant believe there is no real help anywhere, my family are falling apart trying to help me, i am constantly on the internet, i have somehow just finished a BA degree in unbearable pain for the whole 4 year duration, and suprisingly i have actually done quite well...

i am about to post a hand written history overview of my entire condition as i can recall it, in as much detail as possible, i really prey someone reads it and helps me find the ANSWER. THERE HAS TO BE AN ANSWER, THERE HAS TO.. this form of life is not one worth living, i am currently 21 years old, and i am watching life fly by, i am extremely alone, depressed and isolated.

Anyone who feels they can offer me any help please please do contact me



Richard Carr


location: London, UK


Richard, I have edited your post yet again to remove your email addy, if you want peeps to contact you please ensure your email addy is in your profile - this is for your security!!! - Ann

Post Edited By Moderator (Annuk) : 6/20/2008 9:50:32 AM (GMT-6)


Richard VI
Regular Member


Date Joined Feb 2006
Total Posts : 44
   Posted 6/19/2008 12:37 PM (GMT -6)   
Note: I hope this provides a short, direct and valuable overview of my condition, diagnoses and treatments as well as my own opinions to the cause or underlying problem…

Start)

Currently aged then around 17 years old in 2003, overall of quite normal health, Glalandular fever, mild Anxiety and very hyperactive but had NO history of headaches, or any cranium region pain or anything of such significance.

Suffering from diagnosed generalised anxiety, mild panic attacks and general hormonal disposition of a teenager. Was treated for GAD with Veneforlaxine / Effexor XL 150mg per day for the duration of one year. Also at this point I had history of regular heavy Cannabis smoking as well as Tobacco.

Headaches became noticeable while studying at college, found they were random, stress/concentration induced, and found instant relief upon smoking cannabis or simply relaxing at home in evenings. Headaches gradually became more frequent over time, lasting slightly longer periods.
Continued smoking of cannabis even with mild tension type headaches present, which presented no significantly troubling pain at time or interference.

In between this time of 2003-2004, I strongly note I also went on a family holiday to Turkey, was very happy until we went scuba diving and experienced minor but significant pressure pain upon trying to equalise for the first time under water, also shortly after contracted a fever and cold affecting my sinuses. On flight back from Turkey in mid air I was very suddenly hit by extremely severe and extremely violent sinus like pain, which was sharp intense and throbbing, caused a drama on plane as crew tried to place ice directly on my face and head. Pain did not relieve until we landed, and I was left with a moderate lingering pain in my sinus locations and bilaterally on my temples, which lasted a gruelling week or two but subsided.

Soon after or during this experience back at college I began to experience more frequent and severe daily tension type headaches, which did disturb my mood, hunger and especially any ability to focus or concentrate. Soon after I experienced my first ever severe, Migraine type attack, which I am quite sure was triggered or aggravated by the smoking of cannabis. This severe and disabling Migraine left me unable to leave the home for almost 2 weeks exactly 13 days, and I was left with strong light and noise sensitivity which continued on. I later experienced one final severe Migraine attack of same nature.

Possibly a month after this 1st Migraine attack I then experienced one further attack, again triggered or aggravated by the onset of smoking Cannabis. This attack was more severe and crippling and again lasted almost 14 days exact. After this attack I immediately visited my first ever Neurologist who immediately put me onto the following drug treatments.

- Sumitriptans
- Amitritptyline with Sodium Valporate
- Dothiepin with Epillim-Chrono

I then went back onto Amitritptyline, which was continued with Topiramate, after other drugs had no effect. In result all had no significant effect on any of my pain symptoms.

My symptoms at this stage were agonising daily, constant headaches. Pain location was Bilateral, very strong on Temporal location and spread very painfully over Sinus locations of face across eyebrows, across forehead, around ears, and around my cheeks, also had pain over entire Scalp and stiff, sore Neck muscles.

From this point onwards for 2 long gruelling and extremely painful years, my mother and I went from one neurologist to the next seeking an answer, or a theory for the cause, and I saw myself treated with dozens of different drugs, and more confusingly going away with new and different new diagnoses.

Many of the diagnoses ranged from:

- Chronic Daily Headache
- Tension Type Headache
- Nerve Damage Sensitisation
- Idiopathic Persistent Facial Pain
- Chronic Sinusitis Pain
- New Persistent Daily Headache
- TMJ Disorder
- Low C.S.F Headache
- Transformed Migraine

Treatments ranged from: more Amitriptyline, Increased Topiramate, Small doses of Clonazeapam, 5-day trial of intensive Prednisone, Propananol, Antibiotics, Pregabalin, Valium and currently Nuelin SR.

Also for at least 2 years went through just a sample of the following:

CBT Therapy, Pain Management, Visualisation
Hypnotherapy, Chraneopathic Therapy, Chiropractic Treatment
Accupuncture, Spiritual and Faith Healing, Homeopathic Treatment
Chinese Herbal Treatment, Postural Therap
During this slow and gruelling process, there was not one drug I was tried on which significantly eased or help me deal with the mental and physical pain I was experiencing violently on a constant and daily basis 365 days a year, and to make matters of worse I left endless clinics all over London with new notions and promises of relief and an answer to the ongoing problem.

Amitriptyline over time provided and still does a 10-20% help with coping with the mental anguish and depression but does not enable to me live any form or type of normal life. Valium also provides very short term relief to my pain by suppressing my central nervous system, alike as excess Alcohol also does and both have similar effects on me.

After approximately suffering for around 2 years solidly with Headache Pain, I gradually developed in the process of trying all kinds of products a very strong Tingling, Prickling, Itching, Burning sensation over my Scalp. This soon spread to my face, causing a strong and chronic Flushing issue where I had very dark rashes appear. This worsened as my condition has, and spread an excruciating constant Burning sensation of the same nature over my entire Scalp, effecting my hair, making my scalp sensitive to every irritant and my skin and hair in general unbearable and constantly aggravated. We have tried so many solutions for these symptoms alone the list doesn’t stop.

The condition inevitably has worsened over time, there have been small periods of relief, but nothing has significantly improved. I am more worried for the constant and developing pains emitting from my eyes, the shooting pains behind my eyes and more importantly my general balance and ability to safely drive or do any daily tasks as normal people would.


Below is a list of a few of the Treatments I have undertaken either via the guidance of Neurologists or Specialists:

- 5 x Occipital Nerve Block Injections
- 1 x Set of Super Orbital Nerve Block Injections
- 5 Day Intravenous D.H.E treatment
- 3 x Caffeine Infusions
- 2 x Botoxulin Injection Treatments
- Lumbar Puncture
- Wisdom teeth removal
- (Future possibility) Stimulator Device implant


Current Symptoms / Last Final Suggestions

Symptoms:

- Constant heavy dull throbbing entire head
- Heavy agonising pressure over entire head
- Severe constant Allodynia pain of entire scalp, hair and face
- Throbbing, intense pains behind eyes and across sinuses
- Constant dehydration, dry skin, scalp hair, eyes, mouth
- Balance and Postural movements worsen pain, especially bending over
- Tight muscles all over face, scalp and neck

I am literally going out of my mind, it feels like I am falling into deeper and deeper depression, and slowly watching my problem continue violently and cripple my life as well as my families. I am noticeably changing as a person, and loosing my entire self-belief and sense of morals as the days pass. I really see this being the last thing I write in hope and aid of my illness…

I more significantly see NO progress, and I feel if somebody gave me the time and required observation I strongly believe the underlying problem or cause, will and can, be discovered and treated. I am a large 6’4 Male of 21 years of age, and I know only to well how I felt prior to this long and devastating state of hell and would do absolutely anything possible to return to it. I have already suffered too much…

Note:

The following is a short summary of my own constant study, investigation and ongoing exploration of what potentially may be either an underlying cause or potentially missed part of the problem…

1)

Firstly I never feel my Neck region was investigated to a respectable level, I only ever received one standard X-ray, which actually recorded issues of chronic muscle spasms activity as well as neck structure abnormalities. I think this in itself warrants an MRI or x-ray of some kind for my Neck to rule finally out.

2)

My severe and crippling constant and severe Allodynia pain on my Scalp and face. This is obviously an extreme general sensitivity developed from my cranial nerves but there are a few issues never, which have been addressed or investigated. My skin itself over the last 3 years I have noticed a huge decrease in general Sebum Oil Production, my skin permanently dry and chapped and permanently very dry mouth, and red sore eyes. This issue also applies to my Face, Hair and Scalp, which I remember only to well use to be regularly oily, and a general issue, which actually was a teenage problem I self treated with regular shampooing, cleansing and over the counter products.

I would like to think that this warrants consideration to a chronic dehydration issue, possibly caused by the ongoing treatment of drugs, which strongly cause general bodily dehydration issues. I also would hope a small and simple Scalp sample could be analysed for hair follicle or lipid damage, which could point me in some direction of pain reduction.


3)

I was clearly told and shown by a Dental Specialist on Harley Street that I had an underlying issue which showed itself in a very old MRI scan of my TMJ discs, which he promised with surgery and treatment would result in all my pain and neuropathic symptoms permanent relief. As this notion he passed came at the cost of £20 - 30,000 pounds though we sadly were unable to explore this route any further.

4)

I continue to read more and more about Acute & Chronic Sinus Infection conditions which can cause very similar symptoms, go unidentified and be more significantly worsened by physical exertion, Bending over! Also heat, coughing and can be caused/aggravated by Pressure Disturbances such as air flight discomfort. I hope this possibly provides another route to rule out.

5)

This also brings me to the headaches and their potential significance to Blood Pressure, another area never explored. I understand there are conditions of Hypertension and raised Blood Pressure, which can also cause very similar in character symptoms and severe throbbing headache upon waking, and aggravated by the simplest of physical exertions alike mine.

6)

This is an unusual condition called Pheochromocytoma, which is a tumor of the adrenal gland. The reason, which brings me to this condition, is its similarity with not only current symptoms but my early symptoms of anxiety prior to the headaches. I have studied it can be easily examined by a 24 hour urinary Catacholamines and Metanephrines as well as a test for Serum Catacholamines along with a simple x-ray of adrenal glands.

7)

My last hope is to simply explore a last selection of Drugs for potential treatment or Diagnosis. One to begin with would be Methysergide, Flunarazine, Gabapentin, Cymbalta instead of amitriptyline and Intravenous with Ketorolac for my scalp pains, as well as any others suggested.

Prior Relevant Incidents / Illnesses as a Child:

Severe Whiplash Injury
Minor car crashes
Glandular Fever
Testicular Vein Knot
Generalised Anxiety
Chronic Fatigue Syndrome

Richard VI
Regular Member


Date Joined Feb 2006
Total Posts : 44
   Posted 8/16/2008 6:44 PM (GMT -6)   
Hi!!! to everyone who has left messages on this forum!... i have continued struggling along and for some reason i wasn't sent any notice that people had written on here... i am really annoyed i didn't know people had responded. but better late than never

Ok, to get straight to all the questions which i have read.

i am still currently suffering 24 hours a day, this constant headache has really stolen all of my life now for 5 good years. i am currently under one of the best Headache Neurologists Prof P.J Goadsby who i see privately at Queens Square in London, UK.

But in saying that i am only able to see him once every 3-4 months which is proving almost unbearable as it is extremely dificult for any doctor to successfully concentrate and treat a young patient with a complex condition such as constant severe headaches seeing them 3 times a year...

my mother and my family have been torn apart by my condition, and i am now considering very very soon maybe in the next few weeks going to America to the famous MHNI Michigan Headache Institute Hospital.

* IF ANYONE HAS INFORMATION OR EXPERIENCES IN REGARDS TO THE 'MICHIGAN HEAD PAIN & NEUROLOGICAL INSTITUTE' PLEASE DO GET IN TOUCH URGENTLY!! I WOULD SOOOOO APPRECIATE IT!! *

Apart from being under Prof Goasdby for almost 2 years with not even a 1% improvement so far in my condition, i have also been through probably one of the most diverse selection of Neurologists working all around London with zero breakthrough's and no improvement, just more and more money going down the drain...

for all people on this entire forum i think all headache sufferers need to help each other and something needs to be set up where all similar individuals can seriously discuss, chat or even get in direct contact with fellow sufferers... i think Healingwell.com is a great site but for those who literally like me can not go on anymore and are desperate and passionate about getting better for good we really need to all in some way be in much more contact or form some form of online chat group...

from my experience of approximately around 15 of the best Neurologists practicing in Greater London in the UK, one thing which is clear is they never have enough time to really get to the bottom of the problem... everything runs for the timed hour or more and then its out the door with a new prescription or glimmer of pretense hope as you walk away. BUT NO IMPROVEMENT.

NOTE: My condition still remains the same although it has worsened in the last 6 months.

- Constant Pressure like sensation over entire scalp
- Constant Pain, ache in the face, the temples, above the eyes, behind the eyes
- Often blocked, stuffy nose, lots of phlegm in sinuses
- Dizziness, confusion, generally unable to focus or concentrate
- Often sharp intense throbbing pains, around eyes, over temples and scalp
- Constant dry scalp, dry itchy hair, Alodynia burning pain of hair
- Dull but severe Pain around eyes, like severe constant eye strain all day
- Depression obviously & increased anxiety


My best wishes go out to anyone who has written on this forum to me, and my appologies for not writing back, please do write anything you want & i appreciate more than you can imagine people having an interest in my case.

Best Regards

Richard X ;-)




P.S Please feel free to email me or directly get in touch with me through my email address which is

SPEEDSNEED@AOL.COM

gizmogirl
Regular Member


Date Joined Aug 2008
Total Posts : 57
   Posted 8/17/2008 4:39 PM (GMT -6)   
Can't you just log on and check your posts for replies? You said something about not having been notified of replies...

Have you ever taken a cerebral vasoconstrictor like Imitrex or Relpax - maybe the sumaptriptan you mention is one. If it didn't do anything, why do you think you have migraines?

There are drugs like neurontin, that you can build up with from 50 milligrams to over a gram, that dull the nerve impulses. I hope that you have taken them until you are a bit sleepy all day long, and then see how/if it affects your headaches.

I assume you are keeping a headache diary to see if you can find triggers, either stress triggers or allergy triggers or something else.

From the info you have given it is difficult to know if you are developing allergies, which often don't show up until you are grown - try the strongest antihistamin, Benedry (diphenalamine 50 mg) every 6 hours for a week or two to see if that's what's going on with the sinuses.

How is your quality of sleep? Stress can cause the skin problems you speak of.

If you could take enough nerve dulling drugs like neurontin to relax, you could exercise and see if that helps.

Have you done a food allergy journal where you stop all the usual suspects, and then add them back in once every 2 weeks to make sure that nothing you eat is kicking these off?

You said something about TMJ, but maybe you should read my experiance to make CERTAIN that you have ruled out teeth grinding (bruxism) or its silent sibling "jaw clenching" which in less than 5% of headachers can be the cause, especially when you talk about neck spasms. Are the spasms mainly radiating out from the jw and involving the sterno/clavo/masoid muscles? I notice that you are very vocal about describing your problems. Since you haven't been able for some reason to reply specifically to those who responded to you, I'm not sure you (or anyone else for that matter) would have the patience to read this critically. It would require careful reading without making any rash assumptions - maybe you can get your mom to read it too, since 2 heads are better tahn one.

Here's my experience, but be aware that it is very rare:

Disclaimer: this is all theory since Botox is not approved and no clinical trials have been done. The official TMJ site says, for example, that temporary TMJ should be treated with anti-inflammatories, rest, heat etc., and severe TMJ with those plus pain relief. Wikipedia's bruxism entry is pretty good. I highly recommend that you read it carefully. But, bruxism's insidious silent sibling 'jaw clenching' just isn't covered anywhere, so here goes:

if you have teeth grinding or jaw clencing, get them cured or a mouthguard is useless and only delays tooth damage, not damage to the jaw joint or potential painful chronic neuromuscular joint disorder which can trigger migraines or even produce pain attacks that aren't migraines. Most dentists and doctors do what they know to do as opposed to figure out with the patient what really needs done in the right order. So if fixing your bite does not stop the clenching or grinding, you need to check out the first link below to the UC San Diego Dr. Davidson. Make sure you read not just his sample consult but also the notes at the end. Skip the next 4 paragraphs unless you want to learn how much time and $$ can be wasted diagnosing and finding the correct treatment for jaw clenching or bruxism (my saga).

I broke my neck and thought so during an injury in the early 90's. An HMO trying to save $$ told me that my swollen useless hands and arms HAD to be carpal tunnel because I worked in computers, and for 3 1/2 years said it's better to avoid surgery and do hand therapy, while I kept asking for a neck x-ray. When they fired my doc and gave me one, they rushed me in for titanium lamination of C5-C7. It stopped the progression of nerve damage, and I learned to hold my head up and got a little use of my hands back. Dug 6 months in the garden with a screwdriver, then a spoon, and in 2 years a mini shovel. Got a little of the use of my hands and arms back. Why am I telling TMD people this?

Because my headaches and neck/shoulder pain etc. got worse and worse!! Asked alot of docs - what's this ear pain -- "oh we can give you surgery to open your swimmer's ear "-- what a waste of time and $$. Asked the dentist about the jaw pain and muscle spasms. Dentist said mouthguard -- didn't help at ll. Another said bite correction - $$$ and useless. An ENT really lost me time (more than a year) saying I need an arthoscopic TMJ jaw flush with saline. He said his surgery was a complete success, with much arthritis removed, so I should get better and that's the most that anyone can do. The HMO had told me to suck it up on pain for 2 years, to let the nerves calm down (after 3 1/2 years of my cord kinked and folded over on itself ) -- another waste of painful time, (but not for them since that's the statute of limitations).

Suicidal by 2003 with constant migraine like headaches coupled with spastic colon and major muscle spasms down to my toes. Not enough time between attacks to recuperate - either exhausted and concussed and sore from spams or getting the next attck. A brain scan showed lots of tiny points of white (dead) matter in my brain from venous occlusions. Told me time to test for MS, but was negative. By 2004 virtually bedridden while pain center says not clear enough diagnosis because lamination solid, and not enough radiculopathy to explain pain. So, I kept going to any surgeon or doc who would see me (not many), and in 2004 an emergency room doc said to try Imitrex and the newer Relpax which helped shorten attacks a bit. There's lots of well meaning docs and dentists out there, but almost none knew to look for the neuromuscular disorder Temporal Mandibular Disorder, which includes my jaw clenching, which can silently and unconsciously occur day and/or nite.

All the above docs suggested that I am attention-seeking, need psychiatric help, and some rejected me. Neurologist put me through all migraine prevention drugs for 18 months, and nothing worked unless it knocked me out. Got a little relief from 2007 baclofen and zanflex, but just enough to get out of bed a few hours a day. Writhing with pain despite opana, and the latest headache specialist said it MUST be migraine because I admitted to getting hangovers if I drank alot (last time was 30 years earlier in college). Despite no family history! Despite beginning in my forties! He wanted me to spend a year plus cycling thru the same migraine preventatives again, this time with no muscle relaxants or painkillres. I was concussed and exhausted from pain attacks or was in the middle of a pain attack, with no time to heal the pulled muscles I'd get from head to knee between attacks. Went back to the internet, as I did each year, and this year found new stuff on bruxism (or its insidious silent sibling jaw clenching).

Self diagnosed jaw clenching as my main trigger of pain attacks, and convinced my pain doc to botox my masseters - he'd just looked up a 2-shot protocol (which spots to stick) in a doc-only database. Within a week I got some relief and proof that I am now on the right track.

Have convinced an experienced TMD botoxer to consult with my pain doc for the next botox, since the protocols aren't set yet (I think it's supposed to be 4 or 5 along each masseter, not the 2 that I got). Time'll tell. Worst case is you eat liquid or mush diet 3 months if more Botox than your particular case needs, but I don't mind that, since I'm already thinking of just pulling all my teeth! (Many people have told me this cured their headaches). Actually, I'm thinking of taping my nose shut at night to see if mouth breathing prevents clenching. I wish I'd known more in 2003 when a bad attack would pull my lower jaw so hard that the teeth didn't meet and my whole head would get inflammed!

What you need to get checked for is teeth grinding (Bruxism) or its insidiously silent sibling "jaw clenching". Only 5% of Bruxers go on to develop chronic pain, but it can even trigger migraines occasionally. Even more rarely, you can get so much pain that you develop central sensitivity and so much inflammation that it includes migraine-like headaches as just one of the pain attack symptoms. After botoxing for my jaw clenching, I have far fewer "pain attacks", and am now working on trying to stop the neuromuscular disorder of jaw clenching (TMD is what causes Bruxism or jaw clenching although some dentists think that a bad bite alone, called malocclusion, can cause it).

The sooner it is diagnosed, the easier to correct. Since its causes are partly hereditary and mostly individual to that patient's stress responses and jaw anatomy, there is no single cure. Fixing your bite, mouthguards to prevent tooth destruction, and dental restoration are things that dentists know should be done, but preventing the cause (stress response? bad bite?) should instead be done first. A few sleep studies check for it (the original at Stanford).

Jaw clenching can be as much as 40 minutes of massive force per hour while sleeping . Sum of all eating clenches in a day is little more than 20 minutes, so you can see how nighttime could wear through mouthguards and your quality of life. Read the first link below, especially the notes after the doc/patient consult transcript. TMD can, although very rarely, be disabling. I sometimes wonder if maybe 1% of migraine and cluster headache sufferers should cure their grinding/clenching instead.

To diagnose and cure your TMD or TMJ caused by teeth grinding (Bruxism) or jaw clenching, study Bruxism in Wikipedia, and at least the web page below by Dr. Davidson at UC San Diego. Don't skip his notes at bottom titled "Additional Thoughts".

To summarize the web pages below, the patient suffering from the chronic pain of teeth grinding or jaw clenching may have anything from local pain to severe cases of inflammation with spasms so severe that they set off migraine-like headaches requiring cerebral vasoconstrictors, and/or neck and shoulder pain that can even shoot down the arm. The variety of symptoms and their severity can make diagnosis difficult. The patient can also have eventual or causitive damage to the jaw joint(s), teeth, and maybe bone loss. Severe cases may not be treatable until a short course of Botox breaks the cycle. Kids usually go through and spontaneously outgrow Bruxism.

After diagnosis, the actual cause of the grinding or clenching must be determined and eliminated. This can require stress reduction and/or dental restoration to fix a bad bite (malocculsion). Botox alone, done repeatedly, without fixing the cause, will eventually damage the jaw muscle permanently. Use the relief period Botox gives you to learn how to stop the activity. Usually stopping E.G. jaw clenching requires an investment of time (stress identification and reduction). Usually insurance does not pay for Botox and some of the other TMJ/TMD treatments since there is no one-size-fits-all treatment that insurers can cost justify.

Something to try for daytime unconscious jaw clenching is to let your tongue rest comfortably in your mouth with the front or back of it resting comfortably just touching the upper jaw. Then let your lower jaw rest up against your tongue, without actually biting the teeth together. This is an attempt to find a "stable" position for your lower jaw that does not stress your jaw joint. Try to make it habitual.

http://health.ucsd.edu/specialties/surgery/davidson/consults/tmj.htm is the UCSD professor Dr. Davidson, who, at the bottom of a "typical" TMJ patient/doctor script, writes his "Additional Thoughts" paragraph, in which he says that Botox is not a cure for TMJ. At best it should be used temporarily only with those whose grinding, clenching, or spasms are resistant to all therapies. Without curing the original cause, which is usually how the patient handles stress, Botox will eventually weaken and damage the jaw permanently. He also says that pain killers are wrong, leading to nothing but addiction. Lastly, he says that since TMJ is a chronic pain problem, patients should be prescribed amitriptyline (where not contraindicated) in doses of 5, 10, or at most 25 mg. before bed. Although most doctors start at higher levels, he says that anything higher will create unnecessary side effects like sleepiness, without working better.

http://www.westsidemedicalspa.com/tmd-treatment.los-angeles.html is the page for Dr. Rivkin, who does non-surgical cosmetic procedures plus a lot of Botoxing of TMD, which he says is sometimes enough in itself to cure grinding or clenching. Search youtube or metacafe for his 2 min. ABC news segment.

www.designersmilz.com/html/tmj.html and www.designersmilz.com/html/reconstruction.html are a couple of web pages of Dr. Correa, who practices 'neuromuscular dentistry', which is appropriate since this is a neuromuscular disorder currently being treated by doctors, neurologists, and dentists, and may require therapy in cases where causitive stress response is difficult to identify and/or reduce. Dr. Correa concentrates on the need for accurate diagnosis of exactly what physical problems have developed, and the need for anything from fairly inexpensive to extensive and pricey restoration. But the main thing is to diagnos the CAUSE and fix it before spending alot of dental dollars.

Be aware that Botox is not approved (paid for) by insurers for TMD or TMJ, so find a doctor who will charge you his price plus processing for the vial itself. Ask Walgreen's what their current price is. Then you will still have to pay for the treatment(s). Since causes range from bad bite to stress response, there is no single treatment. Also, it's pretty rare that Bruxism or jaw clenching progresses to this level of pain and damage. Even if 20% of the population is doing it, only 5% get pain, and maybe less than 1% of refractory migrainers or cluster headaches are cured by identifying and stopping TMD.

As more people get relief from Botoxing, even if it is temporary, better stats will come out on what % of people are not whiners or migrainers or cluster headachers, and more doctors will think to check for and treat it. It's not that hard to diagnose if your doctor or dentist includes checking for sore masseter (jaw) muscles, sore related muscles, joint soreness and movement problems, and pattern of teeth wear. But, right now, the patient has to be the one to make sure these problems are ruled out or diagnosed, and the patient has to be the one to make sure that the cause is identified and treat (stop) it.

Richard VI
Regular Member


Date Joined Feb 2006
Total Posts : 44
   Posted 8/18/2008 4:58 AM (GMT -6)   
Hi, thank you so much for writing back at my post. you seem very educated and concise with your understanding of headaches which is motivating and refreshing for me to read. I have carefully read your post & i will try to answer back now.

firstly, i have especially early on years back tried the various sumitriptan family drugs, which provided at the time very little relief especially on a long enough scale for me to continue taking them. Imitrex i think is very similar i think but i suppose i can easily get my gp to prescribe me it anyway. My last treatment plan under Prof Goasdby here in London was spending 6 very painful and grueling months on Nuelin SA a drug commonly used to treat severe asthma conditions. Nuelin is a xanthine bronchodilator and its is main use is to strangely enough open the airways.

The reasoning behind me being put on Nuelin SA which i think is actually a very modern & rafrely used form of treatment was to rule out the suspicion of a LOW CSF Pressure in the diagnosis of my headaches. Sadly after 6 months it has not worked at all and i am back at Queens Sq come Sept 8th '08.

i have over the years tried various drugs but for some reason not NEURONTIN, although i did spend 6 months of PREGABALIN which had no effect at all. Funny your reccommendation is very useful as my condition over the years has and only ever has responded well to CNS depressants, such as Valium, Propananol, and drugs which dampen my sensitivities rather than stimulate them.

a list of the drugs i have tried over 5 years are the following:

- Sodium Valporate
- Epilim Chrono
- Amitriptyline
- Dothiepin
- Topomax
- Valium
- Propananol
- Pregabalin
- Nuelin SA

The point of allergies you make again is very interesting it is an area me and my mother have relentlessly already considered as since becoming ill with constant head pain for 5 years changes have clearly taken place for example developing strong reaction similar to an allergic reaction to Metals, Chemicals, Certain Foods, Perfumes, Cleaning Detergents, Hair Products massively etc

i normally take antihistamines like Telfast 120mg and have tried benedryl and others for my very severe Hayfever allergies in summer seasons but never taken more than normal dosages...?

in regards to the Bruxism and TMJ another taboo area i have learned in headaches, some swear by it & neurologists tend to laugh it off saying it in no way contributes to the cause of chronic severe headaches. besides their opinions over the years we have again explored this area as best we could vissiting maybe 2 dentists, having 3-4 different types of soft & hard mouth guards made which coincidentally i chewed my way through all of them. we also had an MRI of my jaw which did come back with visible signs of damage to the jaw joint muscles and tissues. this lead us to central london again in which we vissited Linden Kelly's Migraine Dentistry clinic in which he made me a perfectic device known as the NTI Device in america which cost £400!! and brought no improvement over 6 months. the only other dental option we considered was a dentist in harley street who looked at my MRI scans and said he could fix me but it would mean surgery to both jaw muscles and around 2 years of wearing a fixed bite brace!!!??? this would also cost my mother around £20-30,000!!! so we have no idea where to leave this area of my condition...

in regards also to your mention of BOTOX, i have again been there and tried that. i have over the last 2 years had 3 full treatments of standard Botox. The last and most recent treatment the doctor did as you state and made small injections direct into the TMJ muscle on my jaw. this was now around 1 month ago and sadly i have recieved NO benefits yet still...

i thank you ever so much for your response and i hope this response back shows i do appreciate every word anyone, anywhere has to say...if you wouldn't mind getting in touch with me via EMAIL i would really love it...? but its up to you.

i hope to hear your response to this,

Best wishes

Richard X

kms904
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 12/19/2008 5:51 PM (GMT -6)   
I know this might be a long shot, but have you ever heard of MRSA sinus infections? General antibiotics will do nothing to kill this bacteria, you'd need something stronger like vancomycin ... which they rarely give people. Also, have you ever heard of a "neti-pot"? It's just a saline nasal rinse that helps clear out your sinuses. I was getting intense pressure and "fiery pain" in my forehead, temples, and cheeks and after I had been using a neti-pot for a few days I could feel my sinuses clearing and the pressure going away. Good luck!

wenyve
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/15/2009 5:06 PM (GMT -6)   
hello I am living in Mexico and started in mid-October with a cold and then neck pain... after about a week the cold went away but not the neck pain and one night my head and neck hurt and the headache hasn´t gone away much since then.... I have been to an oftamologist, ear nose and throat specialist and am currently seeing a neurologist. He started me off on Topamax, which helped me about 2 weeks but then the pain came back and the side effects were terrible and after about 3 weeks he switched me over to Atemperator 600mgrs morning and night and Amytriptiline 1/2 tablet of 25mgrs nightly and Gammadol in case of pain. Again it did somewhat help for a few weeks but once again the pain returned so I went back a few days ago and he said to up the Amytriptiline to 1 tablet for 1 week and 1 1/2 tablets the following week for 2weeks and then I will be seeing him on the 31st of this month. the first night that I upped the tablet I felt great right away and the next morning I woke up pain free.... but now it is 3 days later and the pain has been working itself up from the 2nd day... and the pain is also under my eyebrows and bridge of the nose and top and back of head... sore spots on my scalp.I have also lots of clear mucous which I blow and blow out and never seems to end. The pain may lessen for a little while but it comes right back. I am 32 years old and have 3 kids and my life has turned to a living nightmare. I can´t imagine living like this the rest of my life, but I have to for my kids. I don´t know how my husband can stand living with me, I just don´t know what to do or how many treatments I will try before I throw in the towel. I also wonder if there is some link to allergies which I also have or even nerves from my mouth which I also had a toothache the day the neverending pain started. I am sad to read all the posts in this thread because there may be no relief for me either.......

headachegirl
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/23/2009 8:51 PM (GMT -6)   
hello i have the same problem when i get mine..i usually get them 5 times a month and so far twice i've had it for 3 months straigt and had to go on short term disability..the pain is so diliberating...i have the pain behind my eyebrows and between the eyes and the roof of my mouth and temples..and it just stabs andn pulsates all day long you want to die.  i just went andn saw another specialist who put me on more drugs..i think i've tried all sorts of stuff from every category.  i just wanted to let you know there are ppl who sympathize with you ...i dont have much of a life either..i cant exercise barely it hurts my head nor do i go out..most of my friends drink and i can't.  its like you feel like your head takes over your life and nobody else understands
SPEEDSNEED said...
HI GUYS AGAIN!
 
SORRY IVE BEEN GONE SOO LONG, IVE BEEN IN SOO MUCH PAIN!
 
IVE SEEN 3 NEUROLOGISTS, MOST ARE A WASTE OF TIME, THEY WANTED TO PUT ME ON VALIUM IN THE END SO I STOPPED SEEING THEM.
 
I HAVE TRIED EPILLIM, AMTITRPTYLINE, DOTHIEPIN, AND CURRENTLY ON TOPIRAMTE TAKING 80MG, BUT BARELY ANY HELP!
 
MY PAIN IS ALWAYS IN BOTH EYEBROWS, SHOOTING UNDER MY EYEBROWS, ALONG MY CHEEKS, BURIED IN MY TEMPLES ALL DAY LONG, IT KILLS ME AND IM SO YOUNG ONLY 19 YEARS OLD TO HAVE SUCH CONSTANT PAIN, ALL MY FRIENDS THINK IM MAD, 4HEAD RELIEF RUB WORKS A LITTLE BUT I USE IT EVERYDAY NON STOP AND IT MAKES MY EYES WATER, BUT THE PAIN IS JUST THERE ALL THE TIME,
 
IT SEEMS LIKE IT IS NERVE OR SINUS PAIN, BUT I HAVE SEEN A FACIAL PAIN SPECIALIST, AND HAD AN MRI OF MY SINUSES WHICH WAS OK.
 
IVE BURIED MYSELF IN MY HOME IN LONDON FOR ALMOST A YEAR STRAIGHT NOW, I HAVE NO LIFE, ALL I DO IS WAIT FOR A MEDICINE TO WAIT OR THE PAIN TO GO, ITS TOO HARD TO GO OUT AND FUNCTION NORMALLY WITHOUT PAIN KILLERS.
 
PLEASE CONTACT ME AT MY DIRECT EMAIL ADDRESS IF YOU CAN HELP ME ANYONE PLEASE!
 
MY NAMES RICHARD FROM LONDON
 
 
 
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