hemiplegic migraines

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melanie 48
New Member


Date Joined Mar 2006
Total Posts : 4
   Posted 3/14/2006 9:23 PM (GMT -6)   
Hi! My name is Melanie and i am 48 yrs old. I have parkinson's disease and was just diagnosed with hemiplegic migraines over the weekend when I ended up in the ER with what everyone thought was a stroke. I am having trouble finding any information about this disease and how to treat it. If anyone has any info, plesase let me know. I have read some of the previous responses from last year on this web site, but I would like to know if there is any new info out there.
Thanks, Melanie

JenMcD
Regular Member


Date Joined Dec 2005
Total Posts : 42
   Posted 3/22/2006 11:57 AM (GMT -6)   
Sorry that you are going through them. My sister, I believe, has this type although she has never been formally diagnosed. She has the numbing of her face and body. She is lucky, she only has to take a nsaid, some caffeine and that usually works for her.

All I know, and someone correct me if I am wrong, is that you should not take Triptan meds.

Sorry that I can't be more help.
Please be nice to me, I'm a blood donor (conquering my fear of needles one pint at a time).

Dx: BPII (and everything that comes along with it), BPD? (pdoc trying to figure that out), Chronic Migraines (that means 2-4/week)

Current Rx: Lamictal, Lyrica, Depakote ER, Seroquel (prn), Xanax (prn), Vicoprofen (prn), NuvaRing

Past Rx: Prozac, Paxil/CR, Lexapro, Cymbalta, Ambien, Wellbutrin XL, Effexor/XR, Topamax, Neurontin, Trazadone, Klonopin, array of triptans (allergic)


smurfster
New Member


Date Joined Mar 2006
Total Posts : 1
   Posted 3/31/2006 4:54 AM (GMT -6)   
hey, i'm a19 year old lad from england and i've suffered with sporadic hemiplegic migraines since i was 9, i've never met anybody else with the condition purely because my doctors don't know of anyone else my age being diagnosed. my hemiplegia is extremely rare, i don't suffer with headaches or nausea, in fact i don't have the majority of hemiplegic sypmtoms, i just suffer with full body paralysis, it gets that bad that i have difficulty breathing. the docs have done all kinds of tests but can find no cause for it, i'm just trying to see if theres anybody out there who suffers the same as me. i've grown to accept it, now i just sit back and watch dvd's till it wears off (worst case, 36 hours).
last year i started writing a book, and i decided to highlight the disorderby giving it to the main character, just to show that although it may disable a person completely, even down to not being able to smile or lift their eyebrows, its only temporary, and no matter how different you may be to the rest of society, anything is possible.
 
if anybody would like to email me directly my email is:
 
 
thanx
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