Post Edited (JanetChristine) : 7/2/2006 12:40:45 AM (GMT-6)
I also get Hemiplegic migraines with aura. I have the familiar type, and I have gotten this since I was 12. It wasn't until I was 23 that I was able to get a succesful diagnosis.
I have been on a preventative for the bast year now, Inderal, and it has worked very well. I went from 4 migraines a month to none at all. Until today. It's possible that I need to get a stronger dosage.
My symptoms are loss of vision, spots, dumbness starting at my fingers and travels up my right arm to my face. My nose, mouth, throat, teeth, and eyes goes numb. I get severely confused and can not speak normally. Everything takes incredible effort, like dialing the phone - it takes several times to get it right.
I had no idea there were other people out there that had this same exact thing going on. My migraines were so strange that I didn't even want to tell teachers what was going on with me b/c they would look at me like I was nuts.
I have had migraines with numbness that begins in my right hand or right side of my face. It can travel up my arm, into my mouth and throat (at that point I feel like I can't breathe right...but I think it's just that the numbness feels so weird). The numbness can be just tingling or so numb you could chop a finger off and I don't think I would feel it!. I usually get very confused. SOmetimes I can't speak or if I can my words come out messed up. I forget important things like my own phone number. ONe time I almost fell over from weakness on the right side of my body. Rarely I have vision disturbances. One time my right arm felt so weird I couldn't even look at it....it was like it wasn't my arm (strange). ONe time I had messed up hearing....people sounded as if they were talking to me out of synch or from another room or something. I used to have very bad light sensitivity. I used to throw up too. During really bad migraines, sometimes I experienced strange mood swings. After the pain and everything is gone, I still have pain if I sneeze or cough or move my head to suddenly. I also used to get what I call, "flash" headaches.....where for several weeks after a migraine I wouild experience a few brief but extremely sharp flashes of pain in a specific part of my head.
Oh...has anyone experienced this part.....after the migraine you are really hungry and have to eat right away? My mom and I are both like this. Also...it takes me two or three days to feel like my body is back to normal. I can't describe it well. But after a migraine, it's like I'm wiped out for the next couple of days
They were really bad in my teens and through highschool. Sometimes I got them every other day for a week. Now I am 30 and can go two years without one. The last one was when I was pregnant (3rd trimester). THat was aweful b/c for the first time I got the numbness on the left side and the headhache on the right (reversed from all of my other headaches). I thought that b/c of this reversal that maybe something was wrong in the pregnancy and wasn't sure it was a migraine....ended up calling 911. The headache before that was the day I went home from the hospital after giving birth. I am thinking that pregnancy and childbirth are triggers for me now....hormonal?
The worst thing of all is that every time I am about to get a migraine the first symptom I have is this feeling like, "oh crap...here it comes" It's just this really uncomfortable feeling that I can't explain. There is nothing like it. I just feel it coming on. The only way I can try to communicate it to others is that it's like every inch of my body is sick....all the sudden I feel it everywhere.
SOmetimes I get the numbness and other symptoms and get no headache at all.
As I have gotten older, the painful part of the headache is more easily managed with over the counter stuff (never could have done that before).
My mom had this very same kind of migraine too. My brother and dad are prone to headaches also, but not this kind.
DOes anyone know if the mayo clinic is looking for ppl with these types of headaches still?
Does anyone have these same symptoms with a diagnosis? I have never had a diagnosis for what type of migraine I have. I saw two neurologists when I was a teenager.
oh yeah...and I had a stupid doctor prescribe imitrex (back when it was only available as an injection). I took that stuff a few times and started to think I might fall over dead. I just stopped taking it on my own. Later, another doctor told me that I shouldn't be taking vaso constrictors. If you read about the stages of a migraine, yuou could see why this would be bad.
At the very beginning, when you have aura or other strange sensations but no pain....the blood vessels in your head are constricting. the constrict so much that you don't get enought oxygen to parts of your brain....the is when strange things start to happen. THen, dilation begins and those blood vessels begin to get inflamed....this is when the pain starts.
SO just imagine how BAD it would be to take any type of vaso constrictor when your blood vessels are already so constricted that you are experienceing stroke like symptoms.
I had a doctor tell me that if I waited until the pain started to take the vaso constrictor that that would be good....but I opted not to do this because sometimes I could go from aura to pain and back to aura/numbness again. It was impossible for me to predict wether or not the constriction would start again. Anyway, I don't care what any doctor says to me now....there is NO WAY I woudl take a vaso constrictor with the severity of my symptoms.
Hello everyone, I cant believe there are so many people out there suffering from the same migraines as mine. Kay0525 decribed mine so perfectly I couldnt have done a better job if I had described them myself. I am lucky that I only have them about once a year now as I used to have them about once a month on average. I have had them as frequently as once or twice a week. I started getting them when I was 10 and I am now36 so I have been getting them for 26 years now. I dont think they have anything to do with hormones as when I was pregnant with my son I had none and when pregnant with my daughter I had so many they put me on lithium to help with my stress and panic I was having several in one day. My mother gets the same migraines as mine although not as sevear. My much younger half brother also gets similar migraines but what is weird is that he has a different mother and our father gets only "normal" type migraines. I aso worry aboutstroke and would like to know if we are at a higher risk than non migraniers. I wonder also if I was given the right diagnosis of hemiplegic migraine 26 years ago as every where I have read they are described as one sided pareasis and like ers on this site I can move my hand and leg ok I just cant feal them properly or work them properly Holding anything or walking normaly is impossible. They also have the tingling numbnes and I cant handle anthing touching me because it feels so revolting. I was given Imagran many times by doctor nd this is one of the drugs that should never be given I am really lucky I didnt end up having a stroke. This is what they have been giving my brother reciently I am so angry that the doctors have not got the education concerning these rare migraines. The drug makes he aura ten times worse anyway. Kay 0525 described the feeling of one coming on so well I can really relate to that "oh crap" feeling. My brothers migraines are two sided affecting both his arms and hands I have seen him having a migraine and his handswere locked he couldnt move them and his facial exprssion was also paralised so he couldnt move his mouth to talk this is reallydifferent from my aura. I sometimes wonder If mine are basilar migraines not hemiplegic but mine are the same in description as Kay0525s. Also they describe hemiplegic migraine as having a one sided headach and mine involves the whole head and only pethadine or morphine helps. Sorry about the errors on this reply my computor wont correct them properly stupid thing.