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KwiltedMusic
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 7/20/2006 7:34 PM (GMT -6)   

Hello and boy am I glad I found you.

 

I am in a pretty serious situation and don't know what to do.  First a brief overview.  I was first diagnosed with migraines when I was 16 years old.  I am 39 now.  My sight became VERY blurry and the headache I had was severe.  I had migraines several times a month, then when I reached my mid twenties, they subsided to maybe 3-4 per year.  This does not include the normal headaches the general population gets.  Anyway, life went on, got married, three boys, worked as a network design engineer/project manager with lots of travel and a great salary, then poof.  Here come the headaches, with a vengeance.  Additionally, I wound up having back problems in 2001 that required surgery in 2002.  I also discovered around that time that I was diabetic and had high blood pressure.  The company I worked for was bought by a French company and subsequently laying off scores of people, I received a fed-ex in the mail while I was on disability for my back surgery.  In it was my bonus check and my termination letter.  Good job, your fired.

 

With this, my wife and me moved to another state and opened a Coffee shop and with saw the business growing.  Unfortunately, so did my headaches.  I found myself taking 16-20 excedrine Migraine pills a day and went to the emergency room on 2 occasions because of the headaches.  One time, a customer put me into her car and drove me to the E.R. .  I had a bp of 238 over 158.  I was given some I.V. drip, Pain Killers and sent home.  Two days later, I was back in the E.R. with almost as high blood pressure and this time they took a CT and MRI.  Something showed on the CT and I was ambulanced to another hospital where I spent five days in the ICU and a couple more in a regular ward.  When I got out of the hospital, I had to go to an optometrist to get my eyes checked out.  With my glasses on which I have worn most my life, I was seeing 20/300.  I guess the pressure going on in my head damaged my eyes.  I had to see an opthamologist for several months to make sure things were healing ok.

 

Over the next two years, I have been suffering from severe headaches almost every day.  My thoughts are nowhere near as clear as hey used to be.  Basically I am living in a fog.  I had to close my business because I could not work the hours needed and could not afford to hire people to replace the hours I worked.  My wife is the first one to admit that I am not the man she married as far as my sharpness of thought goes.  This of course makes me depressed because I am not able to provide for my family and all it seems like the doctors want to do is throw more drugs at me.  They are more concerned about my blood pressure and diabetes than my headaches and constant fog I live in.  To me those issues are more important.

 

On bad days, I sometimes have to lay in bed with my head propped up for almost an hour before I can even think about getting up.  My pain almost always starts in my neck and works its way up to the temple area then forms a ring.  The pain is still in my neck on the right side.  Then, I start to feel pressure on my eyes like they are going to pop out.  All this on a too regular basis and the doctors ask me about blood sugar.

 

As I stated in the beginning, I was a fairly smart person working in a very good position for a large company and now I am barely keeping a part time job at a Staples store not providing for my family.  I want to work and show my boys good work ethics and just be a good dad and provide for them and my wife.  At this point I can’t.  This is very discouraging and I don’t know what to do.  I got a new doctor who is trying to get me to see a neuro-psychologist but they don’t take public aid which unfortunately I am on right now.

 

All this is to say, I feel like I have no options and I am hoping I can get some input from those of you who have been there, are there and bought the T-shirt.  Thanks in advance for your response.

 

 

 


lazy
Regular Member


Date Joined May 2006
Total Posts : 241
   Posted 7/20/2006 8:51 PM (GMT -6)   
Hi: I'm new to this site but I was a migraine sufferer for years.  I still get one or 2 whopping ones a year but that's about it.  Have any of the doctors given you Imitrex? Its not usually given to those with uncontrolled high blood pressure but if its usually controlled it might be worth a try.  Especially if they give it in the ER where they can monitor your BP. Also, the neck pain makes me think it could be something besides a migraine. Believe it or not, muscle spasms in your neck can cause the nastiest headache ever (which sounds like you!) I went to a neurologist because of a headache I had for weeks and he found the muscle spasms in my neck, injected them and I was better in 24 hours!  Depending on what kind of health insurance you have, you may be able to self refer to a neurologist. Also, have you ever had a MRI in addition to the CT scan? They are much more diagnostic than a CT scan (another thing a neuro would do). Anyway, that's my input - and indeed the pain can make your blood pressure go up and the high blood pressure can cause a headache!   Stay in touch...lazy

KwiltedMusic
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 7/20/2006 9:06 PM (GMT -6)   
Thanks for the quick feedback.  I am currently on imitrx and vicodine and others.  Inaddiion to the headaches I am concerned about brain damage loss... from the ER incident.  Has anyone suffered any similar kind of memory funtion loss and recovered and if so, how.  What things can I say that will encourage the doctors to pay attention to this area of my concern.  Like I said before, I am working at Staples and I have to write myself post-it notes to remember things.  Before this episode, I was an engineer and business owner.  Thanks again. 

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 7/21/2006 6:06 AM (GMT -6)   
Hi KwiltedMusic,

My word you have been throught it!! So sorry you are suffering so!!! Welcome to Healing Well! We will support you here as best we can. You have had good input from Lazy as you do need to see a Neurologist, and one that specialises in Headache if its possible!!

Have you ever kept a Headache Diary, they are a bit of a drag to begin with but you soon get used to them, and it is a good way to communicate to the Docs about what happens to you and a good way to remember things yourself. My Doc took me more seriously when I showed him the Headache Diary! Note down when the headache starts and ends and on a scale of 1 - 10, 10 being the worst pain you could imagine, the strength of the pain. Also what you take to abort the attacks and maybe a space for how the muzzy forgetful feeling you have affects you day to day life!

Also it might be good to note down the type of pain as well as its location, i.e. dull ache, sharp, throbbing or burning, or whatever you can best describe it as! Are you taking a preventative? I really hope that things improve for you very soon, keep in touch and let us know how you get on!

take care Ann

lilmoe76
Regular Member


Date Joined Apr 2006
Total Posts : 26
   Posted 7/21/2006 11:44 AM (GMT -6)   
yes, you have everything working against you right now, huge stress, huge pain-all causing a circle of issues.

it is no wonder you can't get better with all the stress you have in you life-your body is screaming!

my suggestion is get some support! by being here you have taken a huge step!
you have chronic pain-try looking for a support group you can go to-maybe your wife too. therapy is not a bad option either. this thing has seeped into your entire life and you deserve to learn how to deal with it!

educate yourself on what is going on-jump right in-do the diary do everything-at least you will be trying!

i am thinking of you! good luck with it all..........

KwiltedMusic
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 7/21/2006 12:02 PM (GMT -6)   
Thank you for everything. I am glad I am not alone in this. I will speak to my Dr. about some therapy and try to get a regular Neurologist. With my new general Practitioner I am hopeful. I am still hoping to hear from people who have had memory issues that are debilitating. At this point I am not sure if its a result of the headaches or I stroked out but had little outward signs of a stroke, thank God. One E.R. dr. said I had the highest blood pressure he's ever seen on anyone that lived. Just looking for some input. This site is great.

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/21/2006 2:40 PM (GMT -6)   
Hi KwiltedMusic,
Geez, your story sounds so much like mine.  I'll skip my details, but let me just say I've taken every medication associated to migraine prevention, abortive, and breakthrough.  My big question is what medication are you taking for your blood pressure?  Keeping it low is key to avoiding migraines.  I, strangely enough, have mega-low blood pressure (90/60) all the time, so that doesn't play a part in my headaches.  I was on one migraine medication that actually permanently changed my vision.  I went from perfect 20/20 to nearsighted with an astigmatism.  THe change is permanent and I'm stuck wearing glasses forever.  Needless to say, I really sympathize with you greatly.  Please let us know how you are doing.
 
Best wishes,
 
Leigh Ann cool
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett


KwiltedMusic
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 7/21/2006 4:46 PM (GMT -6)   
Here is my latest Med concoction.

Imitrex 100 mg - They had me on Zonig before

Metformin 1000mg 2'xs a day

Tegetrol 200mg 2 pills at bedtime

Toprolxl 50mg - I have taken 400mg per day with a previous dr

glipizide 5mg 3'xs a day

Tarka 4-240 2'xs a day

avandia 8mg 2'xs a day

tricor 145mg

This is just the latest. This is also one of the fewer amount of meds I been on in a long time. I have been on as much as 13 different meds at one time and feeling horrible. Have a great evening everyone

qcrgirl
New Member


Date Joined Jul 2006
Total Posts : 1
   Posted 7/21/2006 11:21 PM (GMT -6)   

Hi KwiltedMusic,

     I really sympathize with your situation. I'm a pharmacy technician who has also suffered from very severe headaches, the worst of which have been recent.  I've always had sinus headaches fairly regularly and plain ibuprofen and tylenol seem to do nothing for me. I started taking Excedrin Migraine and it worked great...for a while. Last Wednesday a headache woke me from sleep in the morning time. I was in between jobs (just started my new job Monday) so I didn't have to worry about going to work. But that had never happened to me before. I ate breakfast and took some Excedrin because through breakfast the headache seemed to worsen. By evening time my head was pounding away so I reached for the Excedrin again. I have a sensitive stomach and I'm very thin so this was a mistake. Over time, taking Excedrin has worn on the lining in my stomach, giving me a starving hunger feeling 24/7. Aspirin can be a risky thing. But that can be dealt with. Thursday and Friday came and went, no relief. The type of headache I was having was unlike any I had felt. At first I thought it was a sinus headache but they had never started that early in the morning or lasted that long. My nose didn't feel stuffy, no weather fronts moving in, allergies pretty well under control. Not a sinus headache. Saturday and Sunday were better. I quit taking medication altogether because nothing helped anyway and it was tearing up my stomach. Monday and Tuesday were pretty bad. I managed to start my job, but my head hurt so bad it was hard to concentrate on my training. Wednesday I was forced to call in sick. How aweful to call in sick my 3rd day on the job! They were so understanding though...I'm greatful. Tuesday night was the worst headache I've ever had. EVER. I was crying, vomiting. The whole works. I called my doctor and he called in some Fioricet for me. I tried that, it knocked me out but when I woke up, pounding headache still. I called in to work because I was so doped up. I'm really sensitive to stuff like that, could hardly walk. Well, by this time I was desperate. I didn't know what to do and I couldn't risk my new job over something like a headache. I got online and started doing some research on different types of headaches. Though it was the worst headache I've ever had, it didn't sound like a migraine. Migraines have more neurological symptoms than what I had. Sinus headache had already been ruled out. It definitely wasn't a cluster headache. Those are typically felt in one side of the head and is a severe, sharp, stabbing pain. Also causes sweating and neurological problems. It typically has to be treated with prescription medications. The only thing left was a tension headache. I started reading about it and here is what it described. With a tension headache, the pain is more constant instead of throbbing. It is usually felt in the temples, like your head is in a vice. Sore or stiff neck, pressure/pain behind the eyes (I also felt like mine were going to pop out of my skull, and it also felt difficult to open and close my eyelids). This described what I was feeling perfectly and it seems like it describes your headaches as well. My doctor told me that the word 'migraine' is usually just used as a label for a bad headache. It is a bad headache, but a very specific kind and is often incorrectly diagnosed. Working in a pharmacy, I've come to realize that there are a lot of doctors out there who simply don't know anything. Well, with the conclusion that my headache was due to tension, I gave my chiropractor a call. They worked me in the same day. I told her the exact symptoms I was suffering and without mentioning that I thought it was a tension headache, she diagnosed it right away. She explained to me why a tension headache makes certain parts of your head hurt the way they do. She showed me a chart of the major nerves that run through the body, particularly the neck and head. Starting from the top of your spine, clusters of nerves run up around the top of the head and spead out, they run directly behind the eyes, and also to the temples. When the muscles in your neck are stiff or spazing, they pull the vertibrae in different directions, pinching on those nerves. The worse the stress gets, the worse the pain. This made perfect sense. They did a 30 minute massage on my neck and back and then she adjusted my neck (popped it like 3 different ways). By the time I walked back out into the waiting room my headache was almost entirely gone!!! After a week straight I was beginning to think it would never go away. I didn't really even put much faith in my chiropractor to begin with but I was desperate. She gave me some stretches to do every night. That night I didn't do them and the headache returned, though not severe in any way, the next day. I went to work and came home. I did the stretches before going to bed and today? No headache!!! All day!!! Halelujah! Your symptoms sound like a severe tension headache. They can last for hours or days and because the bones are pinching on the nervers, pain killers can have little to no effect on them. Does this sound like what you have been experiencing? I think going to a neurologist is still a great idea. You can never be too careful. Especially with your own head, you know?

     Also, as far as your memory loss and feeling of being in a daze or fog all the time, I think I may have some helpful information. Like I said before, I work in a pharmacy. From the sound of it you've been well medicated for quite some time now. Blood pressure medications are kind of a tricky thing. You have to experiment to see which one works the best so you can take the least amount possible. Taking 400mg of Toprol XL sounds like a lot, but then again I'm not a doctor. If you ever are unsure of something your doctor says or about medications he's put you on or how much, don't hesitate to get a second opinion. Even for something small. Quality of life is so important and taking 30 pills a day and dealing with the side affects of 15 different medications is no way to live. My experience which I think may be of most help to you however, is with my own father. In 1994 he had a quadruple bypass and since then has been on sooo many medications. He has heart disease, diabetes, high blood pressure, neurological problems from the diabetes, etc. You name it, he's taken it. He used to have the best memory of anyone I knew. And still does when it comes to long term things like his days in the Navy 40-some years ago. But tell him something, anything, and an hour later he won't even remember talking to you. He is definitely not the man he used to be. He is 62 years old, and while that's not anywhere near 20, a healthy person his age would have a far better memory. He also has become far more short tempered and sometimes just not all there. Its very sad. I don't want to discourage you. No matter how old you are its never too late. Don't let doctors push medications on you. If it is necessary for the moment, fine. But do some research about high blood pressure and other conditions you may have. Ask your doctors about herbal remedies/supplements. Try to get to the root of the problem rather than just treating the symptoms with tons of drugs. Doctors often see so many patients that they get in a hurry and don't want to sit down with you long enough to find out the cause of something that they can easily throw a prescription at. Your life is in your hands and its quality should not be at the mercy of a bottle of pills. I hope I've helped you and good luck with everything! -Jennifer


KwiltedMusic
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 7/23/2006 7:55 AM (GMT -6)   
Jennifer,

I can't thank you enough for responding to my post. A little over two years ago, a Chiropractor friend of ours would see me every day and do the work on my neck, back and head 3 times a week. This was immediately before the blood pressure issue that put me in the hospital, with the severe headaches of course. I will talk to my new doc about seeing one again.

Also, I am almost in tears, because your dad's sysmptoms could are so similar to me. my long term memory is in tact. I am a musician and haven't lost a beat, but ask me to get something from the store without a post-it note and I'll come home with everything but what I was sent for. Thanks to all of you. I now have a road to follow.
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