Morning Migraines

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Jrmy
New Member


Date Joined Jul 2006
Total Posts : 1
   Posted 7/28/2006 4:05 PM (GMT -6)   
Hi.  I'm J and I'm new to the Healing Well community (this is my very first topic  :-) )!  I've been in chronic pain for over two years now and it's very nice to find a site like this where I can talk with people who are having similar problems.  I'm 21 years old and I sometimes feel like I'm the only person in the world who is my age and also incapacitated by chronic pain.  I'm finally fed up with my peers treating me like I'm diseased and I'm tired of worrying about it.  I'm ready to move on with my life and I guess I figured that the best way to do it would be to ask some questions and maybe get to know some people who already have done, or who are doing, just that. 
 
My doctor tells me that I have Fibromyalgia Syndrome - a loooong story for another time.  I am on Flexerol (muscle relaxant) and Ultram  for that already and I'm only mentioning it because I'm not sure if there is a connection to FMS and my migraines. 
 
Ever since I can remember my mother had gotten migraines.  I couldn't understand why she was so incapacitated by them.  Why her headache would make her vomit.  Why we had to drive her to the emergency room and miss opening Christmas presents.  Then when I got my first cycle I also got my first migraine . . . and I understood everything.  I got more and more of them as I got older, and they always seemed to be associated with my cycle.  Now I have a new problem with migraines.
 
This problem is that every morning for almost 5 months now I have been waking up with very bad headaches or even migraines.  There was a point in late April-early May that I had a migraine for over 2.5 weeks (just in time for my college finals mad ).  I was given anti-nauseate injections and headache injections twice in the ER during those weeks when my regular migraine and headache medication did not help (Advil, Imitrex, Fiorinal, Excedrine Migraine, and lots of coffee).  None of them helped me in the slightest.  I was put on Prednizone, a Beta blocker, anti-depressants, and anti-nausea medications along with my regular migraine meds but nothing helped.  Finally, one of the three doctors I saw suggested (since my finals were more stressful than usual this year) that they may be tension headaches instead of migraines.  I went on vacation out to the Four Corners States and saw the Grand Canyon with a bunch of friends after finals, thinking that the relaxation and fun would relieve my tension.  It certainly did that . . . but my headaches found little relief.  The one thing I did notice was that instead of having constant pain I would wake up with an "yikes-headache!"-soon-to-be-migraine or a relatively minor migraine.  I often took a long hot shower and some Excedrine Migraine but I found that the headache would lessen but never disappear until I took my actual migraine medicine.  Then I would find relief . . . but it would always be back the next morning. 
 
It's so weird . . . even if I lie down to take a nap in the afternoon I wake up with a headache again! confused
 
I've been back and forth to many doctors and they all have different ideas, none of which seem to work.  I thought that I just needed to chill out and relax during summer break, but just today the straw broke the camel's back.  I was having a liesurly morning ignoring my minor headache and helping my father finish our guest room in our summer house by the ocean.  It was peaceful and wonderful, not a care in the world and I just felt weird.  I always just feel "weird" about 30 minutes before a really bad migraine.  Sure enough, I was in bed with the heating pad in minutes and didn't get up for hours.  This is the third "bad" migraine in three days and the Imitrex and other migraine medications I've used for years are beginning to help less and less.  I'm very frusterated.
 
So that's my story.  Sorry about the length eyes .  I hope it's at least somewhat intelligible and I look forward to anyone's suggestions!  Thanks so much for your help and care! 
-J
"I am part of all I have met." - Tennyson

Post Edited (Jrmy) : 7/28/2006 4:14:25 PM (GMT-6)


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 7/29/2006 1:59 AM (GMT -6)   
Hi J,

Welcome to Healing Well. Sorry that you are having such a tough time. It sounds to me as though you are getting rebound headache on a daily basis. I used to get that for some years before I realised what was going on! I would have a headache or some sort every day and migraines too. I even asked the Docs if I was taking too many painkillers and they said 'no, it was fine i obviously needed them' - how wrong they were!!! - makes me wild now just to think of it!!

It is a sad fact that drugs like Advil, Excedrine and Fiorinal cause 'rebound' headache, but there are not enough warnings about them!! Sadly this only really affects headache sufferers. The way I understand it it is that regular use of painkillers interfere's with the body's natural painkilling abilities, thus confusing the body about the amount of pain it is in! - and therefore it doesn't produce the right hormones to enable the body to cope!! - result, more headaches!!!! - then you take more painkillers and it becomes a viscious circle!!!

Please do not panic about this, what you need to do is to get yourself referred to a Neurologist who is a Headache Specialist. They will diagnose this formally and support you in getting the situation corrected, giving you a plan as to how to manage your headaches as well as reducing the amount of painkillers you take! This should leave you with less headaches, so you do not get them daily anymore! As I am not a Doctor I could be completely wrong about this but seeing a Neurologist who is a Headache Specialist will tell you exactly what is what here!!

Please let us know how you get on with this, we are always here if you need to vent. Have you had a look at the Fybro forum? - that could help support you too!

Take care Ann

vhaight
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/5/2008 11:04 AM (GMT -6)   
Look on the internet for information regarding CPAP treatment and migraines.  You'll find a wealth of information.  It seems to be really helping some people and requires no additional meds!!
 
My daughter sounds just like you and she's been through recent testing for everything under the sun after a life of heavy meds.  She's beginning CPAP tonight. 
 
There is hope!
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