I read the recent thread on Topamax. I started on Topamax this past monday 7/24. I started on 25 mg at night. I am supposed to titrate up to 100mg. I am supposed to take 25 mg in Am and 25 MG in PM starting this monday 7/31.
I have definately noticed a decrease in my migraines. I also have CNS Lupus/vasculitis. There are alot of migraine meds I can't take because of my history of vasculitis.
They now feel I am having some sort of simple partial seizures. I had an abnormal EEG recently.
I have been extremely sleepy and fatigued since I started the Topomax. I also have the word finding issues at times and sometimes feel spacey.(Pardon this post if it is full of typo's LOL)
The CNS Lupus also causes fatigue and a brain fog kind of feeling as well. Some of the meds I am on for the lupus such as the low dose prednisone and cellcept also cause fatigue too.
I don't want to give up on the Topamax yet. I am just so scared that the symptoms will get worse as the dose goes up.
Those of you that have had success, how slow did you titrate up?
Mono 1986. Diagnosed Brain Vasculitis August 2005. CNS SLE September 2005.
Currently on Prednisone 1.25 mg, Cellcept 1500 mg, aspirin 83 mg, HCTZ 25 mg, Calcium with vitamin D, multivitamin, 50,000 units vitamin D weekly, Allegra, Prilosec, Flonase, Celexa, temazepam for sleep.
Mom to Joey 16 (diagnosed with PDD 1995), Kelsey 13, Michaela 6, and Mitchell 4 (diagnosed with Port Wine Stain left arm at birth and scoliosis at 1 year old.)
Post Edited (smjohnri) : 7/29/2006 3:50:32 PM (GMT-6)