I have had headaches diagnosed as migraine for 20+ years. Recently tried Topamac but it did not work very well so gave it up.
However I have been recommended and am using two drugs to stop the pain just as it starts. The first is a drug in a class called triptans. The one I use is called Rizatriptan 10 mg. Combined with one tablet of Xenobid which is basically naproxen sodium I get rid of the migraine inside 30 minutes. It really works so please give it a try. Best of all the drug is not very expensive in India where I live and where there is no meidcal reimbursement for home administered remedies.
Give it a try and let me know how you feel. Per the internet triptans are completely safe even for use more than onece a week.
I'm so sorry to hear that you're still struggling with hospitals and doctors. Since I last posted I have been put on morphine which I take daily now. I don't go near a hospital for fear of being labelled , but my doctor is kind enough to keep me well supplied. Can you get your neurologist to put you on a regular daily dose of a narcotic?
If it would help, I can try and find the study my neurologist gave me supporting narcotics as treatment for chronic migraine sufferers. My neurologist says that's the next step once all of the other medications don't work. I still have my challenges but I don't have to depend on the hospital for the medication when I need it.
I really feel for you.