Here's another thank you going out to Janet Jackson! I heard about her vestibular migraine issues on the radio this morning, looked it up, and finally, something that fits not only my own symptoms, but those of two of my aunts, and my mom. Everybody in the family suffers some migraine symptoms from vertigo to auras to confusion, it seems.
I thought for sure that I would have to go to medical school to figure out what was wrong with me so that I could fix it and go back to graduate school. Was it Hypothyroid? inner ear disfunction? stroke? blood pressure problems? tumor, hypothalamus? just what is it? I had to drop out of school because the pressure was making me ill, and I didn't know what the sparkly edged kidney bean shaped black hole in front of my eyes that prevented me from reading my casebook was. Plus more dizzyness than ever before! Not condusive to studying.
The good news for me is- I don't have the pain associated with migraines. The bad news is that I had the dizzyness for about 10 years until I started going to a chiropractor. The bulk of the dizzyness is gone, but it flares up when there is something to have anxiety over. One doctor told me that some people are just tired and dizzy, and that I should start eating more salt to increase my bloodpressure. I am hoping that my other symptom of tiredness - not "I don't have as much energy as I used to," but ever since I was 3years old tiredness(or at least as far back as I can remember). I have about 2 awake days a year. But I do function. I list all over the house, I set alarms to remind me where and what time I should do stuff, and I currently take adderol to help me stay awake during the day - one dose instead of the prescribed 3. the tired part is probably a different thing. And probably, the adderal creates the anxiety which triggers my migraines. Better to be awake and dizzyness sometimes than be sleepy and dizzyness sometimes. At least for now, I've got about 35 years of awake to catch up on.
Hello - I had suffered from vestibular migraines for over two years and my doctors prescribed every medicine known with no luck.
I had heard of Botox being used for pain management and talked to one of my doctors about it and she immediately sent me to another doctor who does the treatment. It has been a life saver. I had my first tratment a year ago and in about 2 weeks the headaches and vertigo were gone and the tinnitus was significantly reduced. I had another treatment in January and then did not need another treatment until a week ago.
The shots are given into the muscles in the back of the head and forehead (so you get a smooth forehead as a bonus). As the doctor told me the first treatment I would not walk out of his office with no pain nor would I wake up the next morning with no problems. But in 2 or 3 weeks I would wake up and go "Ifeel better" and that is exactly what happened.
The FDA is currently doing clinical trials but at this time it is not approved for pain managment so you have to pay cash and it is not cheap. But for me to be able to excercise again, get my household chores done, and be happy and productive at work makes it is worth every penny.
DO NOT GO TO JUST ANYONE TO GET THIS DONE. IT CAN BE DANGEROUS. Talk to your doctor. It works for me and it might work for you.
swelling and fullness in ears? I would try a few drops of hydrogen peroxide in the offending ear, and let it bubble a bit, maybe 30 seconds, then tilt your head to drain it out onto a kleenes, washcloth or whatever. Then I would put a few drops of rubbing alcohol in to help it dry out. That part of your diagnosis sounds like an ear infection type thing and drops of alcohol is what we received when we were kids getting out of the pool. the alcohol got the excess moisture out so we didn't get an ear infection. I don't know of any negative results from doing this, so at least you will have cleaner ears.
Perhapse the ear fullness is a side effect of migraine (the kind without any pain in your case), or visaversa.
Post Edited (tuckersmom) : 10/29/2008 8:44:50 AM (GMT-6)
to ACE 123, posted yesterday at 4:33pm;
Have you ever used a NETI POT? If you have, sorry about being repetitive, check it out if you haven't. It is for nasal irrigation and cleaning. Basically, there is a teapot looking container (a neti pot) that you put about a cup of body temperature water in with about 1/2 teaspoon of salt dissolved in it (I say about, because everyone's saline mix is a little different). Then you put this teapot spout up to one nostril making a watertight seal, and tilt your head sideways over the sink and poor the liquid into your nose. Sounds kinda gross, but it is an old practice and works for many. The salt water (that little bit of salt makes it not sting) goes up into your nasal passages, into your sinus and clears out gunk that is hanging around. It might tickle or sting a little at first attempt, but if it works, it is worth the little discomfort. I use this remedy mostly for allergy season as it clears out that one piece of pollen, or dust that has migrated up into my nose. it is also recommended by (Dr. Oz from Oprah Winfrey show) for when you have a cold, to cut the duration of the cold. You really don't need anything fancy, I think you could rig a water bottle with a sport top, or if you have a turkey baster, or a bulb syringe that is used for snotty baby noses. I think Musinex just masks the problem and is good for a couple of days, but I don't think it gets rid of what is actually going on. Of course everyone's body works a little differently, so who knows. I think that if you wanted to go all out and purchase a neti pot from a health food store type place it is under 20 dollars and they will recommend that you use sea salt and there is a liquid Goldenseal in dropper form that is to help infection. You can go all out, and that's kinda fun, but you don't need to. It's easy to find pictures of all this online. Hope this helps.
Post Edited (tuckersmom) : 10/29/2008 8:45:35 AM (GMT-6)
Hopefully, will help right away if you can manage to do it. It may take a few passes on each side to get it going, and when this is the case for me, I make a bigger ice tea cup full so I can just refill the neti pot quicker. Just be scientific and organized about it and IF this is the solution, it will be no more difficult a routine than brushing your teeth. And yes, please let us know if it does work or if it doesn't work and why.
Hi, I'm empathetic with all you vestibular migraine sufferers. It can be very tough. I've had vestibular migraines for 3 years with all the typical symptoms. I've tried many drugs to no avail. I have found very good results with vestibular therapy and acupuncture. It took a while to find someone good and then the treatment took 6 months or so but my dizziness is dramatically reduced. I don't constantly feel like I just got off the "tea cups"
My vestibular therapist introduced me to the disco ball!! I know I know, the thought of it makes you nauseated but after watching the pretty lights for short times on a daily basis, I made great progress. The acupuncturist helped with vestibular issues and now is working on the headaches. The acupuncturist is from China and has practiced for 30 years and the therapist is at the best hospital in Seattle and up on the latest and greatest. It took several tries before I found them.
Best Wishes to you all
It is amazing what a diagnosis can do...at least you know you aren't crazy (that was the way I felt anyway)
I am glad that the medication is cutting it short for you. Have you thought about keeping a diary of your activities and food intake so you can maybe see a pattern?
Thanks for sharing your story- I personally have not experienced Vestibular Migraine.