Wow, so many of us and so little is known about our condition. Physicians are hopeless. I am now convinced they only know what they read on pamphlets handed to them by pharmaceutical companies' sales reps. After my second bout of incapcitating vestibular migraine started almost two weeks ago, here I am today yet again seeking a solution to my problems on my own. I was diagnosed with VM 4 years ago by a qualified neurologist after consulting with numerous specialists and charlatans for months. I was on Topamax for 2 years until I took myself off of the meds. I led a normal, migraine-free life until two weeks ago.
The dizziness, blurred vision, lethargy, nausea, loss of appetite, irritability, slurred speech, being unable to understand anything at all, make sense of anything or think logically, and the throbbing headaches led me to see an ophtamalogist today to rule out yet another possible reason for feeling like crap. Of course, all is well with my eyes. I will be headed back to the GP for another Topamax prescription which helped a great deal the first time around. I concur the Dopamax feelings, however, which I am not looking forward too.
So little is known of the brain, there is probably no greater remedy than to listen to our bodies, eliminate any migraine triggers from our diets/lifestyles, and pray our employers will be understanding of our conditions most only understand as a "headache".
I just came back from a 3 wk vacation, having spent the last week in agony. Tonight is better but I fear waking up tomorrow as I did this morning. Going to work on Monday and dealing with everything that has been waiting for me these past weeks will most likely be excrutiating if I don't feel better before then.
I read organic Apple Cider Vinegar with the mother can often help with migraines so I've been at it. Anything else natural anyone can recommend that has been tried and true?
Thanks for all the feedback. Reading I am not just going crazy and my symptoms aren't just a figment of my imagination is comforting.
Post Edited (KillTheMigraine) : 9/19/2009 12:23:07 PM (GMT-6)
I was finally diagnosed with Vestibular migraines in February of this year. It was a long road to get there though! I spent a year and a half going to doctors and having every test known to man done to me. It was expensive, to say the least, and I ended up no better off than I was in the first place. My symptoms were/are of nausea, dizziness, lethargy, blurred vision, slurred speech, irritability. I felt like I was really car sick all the time...even when I wasn't in a car! I ended up gaining about 40 lbs because food was the only thing that pushed the nausea down long enough for me to feel human. But, it was only a small window of relief and the symptoms would come back with a vengeance!
I had pretty much given up on ever feeling good again when I was going to what I decided was my last doctor appointment. I was tired of the doctors acting like I was some sort of hypocondriac and that I should feel fine because there was nothing medically wrong with me. So, this was it for me. I went to a neurologist. He almost immediately gave me the diagnosis of vestibular migraines. He put me on Lamictal the first time around. It didn't work. I went back and he put me on Gabapentin. I started out taking 100mg per day. Once he realize that was working we eventually got up to 300 mg per day to get rid of most of the symptoms. I have to say, I've felt almost normal for the first time in a couple of years. Of course, he told me to eat right and exercise daily which also help. And I don't feel 100% all the time, but I'd say I'm at about an 80% average. I can certainly live with that after everything I've gone through. He did tell me my results were above average. So, I just wanted to share what worked for me. I hope someone else can get some relief from VM because I know what a nightmare it is.