I've had head pain for allmost 6 years (will be 6 years Jan 3 )..Anyway , I just got my disability after fighting for it for over 5 years....It was a very long fight with alot of denials and appealls...I WEnt to the ALJ court after waiting for it (2 years ) He denied me. Then I Appealled his decision..Then it went to Federal Courts...Where they said it should have never left the ALJ court Denied,,,,"?????? So finnally after 5 years..I was fully fav, By the Federal Gov, and it went back 5 years...It was a long hard wait....And my disability is for disabling pain related to head pain due to a inoperable brain aneurysm...It can be done, but it may take some time...If you beleive you are disabled and can not work ANY job..........Go for it....And Appeall , if you have too and Appeal again and again.....Sometimes they do not take head pain seriuosly But if they had to live with a 5 year severe head ache,,They would change there mind...
I use to work as a nurse...My dream job,,,That's all I wanted to be...A mommy and a nurse..Wished I still could nurse, I loved waking up every day going to my job... But Now I'm now 43 and afraid This aneurysm will never be operable or it will burst before they find some way to fix it....Good luck in what you do, Hugs, Cindy
Hi Grammy, of course I've tried chiropractic. Us migrainers have tried EVERYTHING, right? Cuz it's not just a headache! Unfortunately, I cannot afford on-going out of pocket chiropractic.
Cyndie, thank you for taking the time to reply. Gosh, I had no idea it was that difficult. I don't know how to live and work with daily pain. Meds are not working for me and I have co-morbid depression. I pray that you stay well. Keep up the good fight.
I've been to a couple headache specialist.....I'd rather not comment on them at the moment...Because they were treating me for migrains.....When I didn't have migrains...But they were 100 % sure I had migrains....They are usually Neurologist with a speciality with headaches...I went to the Cleveland Clinic and saw one there...I live in Ohio, And I;m about 3 hour drive away,,And heard (as we all have ) how Cleveland Clinic is SO good...I tried to stay for 5 months ,,All I got was a run around..Gained 30 pounds on elavil and nortrypaline...And had horrible nightmares from the junk.....And all he would do is keep upping it....And my headpain was just as horrible as it was as before.....I've been to a couple...But I'm not good with the old anti-depressant meds and 25 different seizure meds pluss all the triptans , plus the bp meds... But I geuss it works for peeps with migrains, I don't know,, If they said thats what I have , It never ever worked for me...My pain Doc keeps saying I have continous migrainous,, My Neurosurgeon says its from the nerve and aneurysm..I just know, I hurt like ........ Hugs, Cindy
Post Edited (Cyndie) : 10/15/2006 7:16:10 AM (GMT-6)
Dear Cyndie, You have been through so much. I can't imagine the pain your suffered during that procedure. I have 2 bad discs in my neck and they have suggested some type of discogram where they shoot die into your discs while you are awake with no pain meds. My Mom had it done and said it was excruciating. I'm glad that the Topamax is helping with the continurous migraines. I guess all that we can do is learn to cope and manage. I wish you the very best.K.
Welcome to the wonderful world of disability nightmares. I live in the good 'ole US of A., and getting on Social Security Disability is a never-ending paperwork pain in the rear. I've had migraines since elementary school, multiple back problems, and suffer from depression, anxiety and panic attacks. I've found that the best way to get through the disability system is to snow them with documentation. Luckily, I have documentation on my migraines since 1978, five years after I started getting the attacks in elementary school. I also have years of documentation on my depression, panic and anxiety. My disability paperwork took forever to fill out, but luckily I had so much documentation, I think I just got approve on the first try because they got sick of all the paperwork. Disability payments are based on your employment income, with some weird formula, but luckily I had a pretty good salary when I had to stop working in my chosen career. Unfortunately, my monthly payments aren't enough to live on. Since I got divorced shortly after I was unable to work anymore, I have to live off my disability with the relatively frequent subsidy from my parents. I couldn't even do any of those "work from home" jobs you see advertised all over the place. I'm in too much pain most of the time to be the least bit productive. I can't even manage to keep my townhouse clean. The downstairs is OK, but only my dad is allowed upstairs. He drives me to most anywhere I need to go, does my laundry for me, takes out the trash, and holds my hand when I'm really in pain. I'd be in real trouble if I didn't have such supportive parents. My mom does what she can, but my situation really puts her in a state.
I'm only 41, and it's hard to see much quality of life for me in the future. My friends have all abandoned me, and pretty much my only contact with the outside world is via the computer. My dad had to buy me a new laptop a couple of weeks ago, as my last one was on its last legs for several months. I thought I would lose my mind because we just could not keep it up and running. I made a trip last week to a yearly doll convention I attend, which is the only thing I have to look forward to on a regular basis. Of course, the day of my flight home, I spent it with a raging migraine, and made a stop at the ER on the way home. Sorry, I digress.
Anyway, if you are going to go through the disability process, my best advise is to snow the powers that be with paperwork. The more documentation the better. I know I'm lucky since I got approved on the first try, but hang in there until you get what you rightly have earned.
Much luck, and keep us informed.