severe Hemiplegic Migraines

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concerned cousin
New Member


Date Joined Nov 2006
Total Posts : 3
   Posted 11/20/2006 11:38 PM (GMT -6)   
hello i am a young women from victoria and im writing to you because my cousin needs help. she is 40 years old and when she was a baby she nearly died of meningitis and for about 7 years now she has been getting severe Hemiplegic Migraines, she has been seeing a nuralogical specialist in Brisbane but so far she isnt getting better she is getting worse. at the moment she is in the middle of an eposode, she cant talk properly, cant move her arms and legs more than 10 cm to the side and she cant lift them at all. she currently cant walk much and this has lasted for 2 weeks. all her other episodes last for just over 7 days but this one is going for longer. her specialist flys up to her once a month but isnt helping much. and i was wondering what other options are available like treatments and so forth. can you recomend some Hemiplegic Migraine specialists in australia? please if any one could help us we would be very gratefull.

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 11/21/2006 3:17 AM (GMT -6)   
Hi Concerned Cousin,
 
Welcome to the boards.  If your cousin has been suffering this long, I would get her to the nearest Emergency Medical facility you can find.  She should really be seen by a Neurologist as soon as possible, since this attack is so severe and has lasted so long.  Be sure to take all her current medications with you to the Medical facility/hospital. 
 
I found the website below, which is quite informational.
 
 
It would be more productive if you did an internet search for a migraine specialist from your location.  If I do one from here (USA)  I have to sift through a whole lot of junk (1,000s of sites) before I get to anything relevant to Australia.  I would also contact your cousin's doctor and explain her condition.  Stress the fact that she is having difficulty talking, which is why you are making the call for her.  See what his recommendation is for the time between now and her next appointment.
 
Good luck and let us know how things turn out.
Leigh Ann cool

"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett


hopefulmigrainer
Veteran Member


Date Joined Oct 2006
Total Posts : 902
   Posted 11/21/2006 2:59 PM (GMT -6)   
Hi. Leigh Anne has given excellent advice here. Please call the specialist, tell them that she is getting worse not better and that she is in an episode and that you are driving her to the ER. She needs medical attention now not in 2 months. Please let us know how everything goes.
"You don't find out that God is all you've got until God is all you've got."
 
"The mighty oak tree was once a little nut that held its ground."
 
"You are richer today if you have laughed, given or forgiven."


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 11/21/2006 3:22 PM (GMT -6)   
Hi concerned cousin,

Welcome to Healing Well. The advice given by Leigh Ann and Hopeful is good advice, she needs to see a Doctor as soon as possible! Please keep in touch and let us know how you get on.

take care

Ann

mommyto3
Regular Member


Date Joined Nov 2006
Total Posts : 94
   Posted 11/22/2006 1:09 PM (GMT -6)   

Hi concerned cousin,

Not to sound repetitive here, but I agree with everyone else. I suffer from complicated migraines which produce stroke like symptoms, and I have had bouts from numbness/weakness to paralysis which have ended me in hospital and rehab. Anyways, when they last this long it is always a good idea to have it checked to rule out the possibility that it was a stroke since the risk is higher.You also want to decrease the risk of atrophy (muscle tightening-I believe this is the right word, my brain is a little fried w/ meds right now). She may need some type of acute rehab--I'm not sure what type of rehab facilities are offered by you, but over here in the United States in these situations with paralysis like this acute rehabilitation settings are available to maintain joints and muscles and help rehab them...This is just my opinion as rehab was very helpful for me and I don't know if you have already had the chance to talk with her doctor and what services are available to you, but I just thought I'd pass it along...

Hope everything works out well. All the best to you and your cousin!

Post Edited (mommyto3) : 11/22/2006 3:18:31 PM (GMT-7)


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 11/24/2006 5:31 PM (GMT -6)   
Hey Concerned Cousin,
We haven't heard from you, and I very curious to know how you cousin is doing, and whether she got some kind of medical treatment.
Could you please let us know.

We are all concerned,
Leigh Ann
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett

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