ANYONE FAMILIAR WITH EYE HEADACHES

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BREA
New Member


Date Joined Nov 2006
Total Posts : 7
   Posted 11/24/2006 5:34 PM (GMT -6)   
HI EVERYONE,
I'M NEW TO THE FORUM. I HAVE CHRONIC DAILY HEADACHES/MIGRANES. I HAVE BEEN TAKING ALMOST 4 MAXALTS A WEEK.  IT HURTS TO MOVE MY EYES, THE BACK TOP OF MY HEAD HURTS, AND THE SIDES OF MY NECK ARE SOAR.  I'V HAD HEADACHES FOR 20 YEARS.  I'VE BEEN READING SOME POSTS AND SOME OF YOU ACTUALLY GO TO THE HOSPITAL.  WHAT KIND OF MEDICATION DO THEY GIVE YOU AND DOES IT MAKE YOUR HEADACHE GO AWAY? ANY WAYS ANY INFORMATION WOULD BE GREAT.  I'M GLAD I FOUND THIS FOURUM. GOD BLESS.

hopefulmigrainer
Veteran Member


Date Joined Oct 2006
Total Posts : 902
   Posted 11/24/2006 5:41 PM (GMT -6)   
Hi Brea, I get "eye headaches" have one right now. :( It's likely part of migraine but I've also been diagnosed "glaucoma suspect" I have higher than normal eye pressure. I've been to the ER three times. It's not worth the trip usually though because of the driving and then waiting and needing to have someone pick me up. I sometimes go to a walk-in clinic that my doctor approves of. They give me a heavy dose of Immitrex instead of narcotics. I tolerate that much better. I'm sure others will be along as we have all needed emergency help at some time or another. Also, their are some forms available from your neuro too - they are posted on this site. I take Immitrex 4-6 times/week so I know how you feel.
"You don't find out that God is all you've got until God is all you've got."
 
"The mighty oak tree was once a little nut that held its ground."
 
"You are richer today if you have laughed, given or forgiven."


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 11/24/2006 11:13 PM (GMT -6)   
Hey Brea,
 
I totally get where you are, as I have a migraine that has been getting worse for the past several hours.  My main pain feels like somebody put an ice pick behind my right eye.  The pain radiates all over the right side of my head.  I'll probably end up in the ER before morning.  Maxalt never did me a darn bit of good in stopping my migraines.  You may be making yourself worse, though, because you should never take a "triptan" more than two times a week.  Anymore than that can and probably is giving you "rebound headaches", which turns into a vicious cycle.
 
Hopefulmigrainer, you may also be having the same vicious cycle of "rebound headaches", since Imitrex is also a "triptan" and shouldn't be taken more than twice a week.
 
Unfortunately, during my 33 years of migraines (started at age 8, but didn't get treatment until 13), "triptans" don't work for me.  Most do nothing, like Maxalt, or make me violently ill, like Imitrex.  I'd rather have the migraine than the Imitrex.  I started on a combo of meds. Flexeril, a muscle relaxer - I'd get knots behind my right ear, then jabbing pains in my head.  I would also take Fiorinol w/codeine for the pain.  This worked for a fairly long time, then in college, I added Toradol to the mix.  This combo stopped working, and then I started down the long road of trying every other drug used for migraines. 
 
After I had surgery five years ago, I found that the pain medication, Lortab, also worked for my migraines.  I took this for several years, while my doctors and I tried every medicine we could find trying to find a "preventative" and an "abortive".  I never could find an adequate preventative, so my migraines got worse and worse over the years.  I found that Stadol Nasal Spray, a narcotic, would abort my migraines, provided I had access to it right when the symptoms started.  Many times I would wake up in the middle of the night or morning with a blaring migraine.  At this point, not even the Lortab could curb the pain, so I started having to get Nubain/Phenergan shots to get rid of the migraine.  At the ER I had to get Dilaudid/Phenergan.  Several narcotics don't work on me, like I'm really resistant to Morphine, and Demoral doesn't effect me at all.  My current clinic decided that I was taking too many narcotics, and cut me off cold turkey.  I was told that I was being referred to a "pain clinic" which was actually a "detox center."  It has been almost three months, and I never got scheduled for an appointment, and I guess by now, they figure I'm all detoxed.  I saw my regular doctor and she prescribed Ultram for me again, although it didn't work the first time I tried it, and isn't working now.   I saw a migraine specialist at the Neurology Institute of Southwest Virginia, who couldn't help me, but referred me to the University of Virginia Medical Center.  I've already had two appointments with the Pain Center, who are trying out steroid injections in the occular nerves in my skull.  I'm being referred by them to a migraine specialist in the Neurology Department.  I'm just waiting for them to call me to set up an appointment.
 
Gotta stop now, head hurts too much to type anymore.
Leigh Ann cool

"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 11/25/2006 3:02 AM (GMT -6)   
Hi Brea,

It's good to see you posting and sharing your experiences. I would respectfuly ask that you turn off the capital letters as on these forums they are considered shouting. Thank you.

Leigh Ann - I am glad you have been referred to another Migraine Specialist. It is incredible that the first one was not able to help you. If they offer you the GONB (Greater Occipital Nerve Block) as you suspect they might, if I were you I would give it a go. Whatever happensd I hope you get some real help here.

take care

Ann

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 11/26/2006 1:03 AM (GMT -6)   

Hey Ann,

My new pain specialist has already started with the Greater Occipital Nerve Blocks.  I got a round of three shots, one to the right of center in the back of my head, on the bump/edge of the skull behind my right ear, and one directly above the inner edge of my right eye brow.  They hurt like a BIG DOG 'cuz the shot was going right into the nerve and the end of the needle was hitting my actual skull bone.  I have another round on December 1st.  The pain doctor referred me to a Neurologist there at U of VA Medical Center. 

I had seen one there about two years ago, but I was given a standard neurological physical by a med student, who knew squat about migraines.  He was being supervised by a neurologist, but they didn't give me much attention regarding my migraines.  I was put on Topamax then, which was the beginning of a major disaster.  This time I requested a specific doctor, who specializes in Migraines.  I'm just waiting on them to call me with an appointment date.  I really am exited about seeing someone that might really know what to do to improve my situation.

I ended up in the ER this morning at 5am, and it was insane in there.  about 6 am, the TV closest to me got really loud, with some redneck hollering Evangelist preaching like it was a revival.  I went to the nurse and told her if I couldn't get it turned down, I was going to rip the cables out of the ceiling.  And I wasn't kidding, the pain from noise was excruciating, and the subject matter was making me violently angry.  My pain level was almost at a ten out of ten.  If I get to that point, I get violent. 

It was really busy and they were short staffed.  As soon as the Urgent Care opened, I was the first patient taken back.  For once, I got a decent doctor who really got me, since she gets migraines too.  I got a decent pain shot, and went home and got some sleep.

Looking forward to some decent help.

Leigh Ann cool


"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett

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