Is there anything i can do about my visual auras

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jb2003002
New Member


Date Joined Dec 2006
Total Posts : 3
   Posted 12/4/2006 12:01 PM (GMT -6)   
I have deleted this post as it is just a repeat of the following one which is easier to read. Please note the I have already replied to your story in an earlier post - Ann

Post Edited By Moderator (Annuk) : 12/4/2006 11:21:15 AM (GMT-7)


jb2003002
New Member


Date Joined Dec 2006
Total Posts : 3
   Posted 12/4/2006 12:09 PM (GMT -6)   
im sorry everyone about what I just did I was going to try and put my post with paragraphs, but my finger hit enter/return before I could! So im trying it again! Im sorry!

Hello all I am jb2003002. I first want to say I am 21 almost 22 and have been diagonsed with a couple of things from my life. I'll start from the beginning so you can all understand and help me better. I was born in 1985 and had cerebral palsy even though I dont think much about it I can tell that it is there. I was also diagnosed with mild right hemiparesis. Which is a form of paralysis but less severve on my right side. With both of these I definately feel my right half of my body is weaker than my left side. Anyway, at the age of 3, I was diagnosed with seizures and migraine headaches. I dont want to want to say I have epilepsy since I have one or two seizures a year. However I have migraines. At least one a month or sometimes one a week! They are always strong too. I also have to say that seizures/ epilepsy runs in my family my grandmother has them, they skipped my fathers generation and hit me. My father got divorced and married again and I have a half sister the age of 3 and she as well as my grandmother are full blown epiletics. So even though I have them I am glad they are not that bad. Still I would love help in overcoming these.

I have been to doctors and have taken medicine ranging from simple medicine from tyenol which is too weak for me to advil which is better. I also take daily medicine to help me out. They include Depakote and Keppra 2 pills morning and night. Imitrex for migraines as needed, Ketoprofen for visual auras (symptoms) as needed, and promethazine for nasuea as needed. I know of at least Dilatin I have also taken before but went to these other medications as they are stronger. I go to the doctor at least every 3 moths or yearly to get an MRI/ cat scan and to have an EEG. Which I am useed to but still dont like because of the strobe light!

When I get my migraines I become light and sound sensitive. I have to get to a dark quiet room. I usually lay on my bed with my head tucked under my pillow, because usually when I get my migraines or when I know they are coming on I get my visual symptoms or my (visual auras). Which are spots of multicolor patterns that develops right in front of my eyes and make me dizzy and confused. They have been known to last a couple of seconds up to a half hour long or until I become unconsious and go into a seizure. I think I can link my seizures to stress, heat, extreme cold, lack of sleep and my mother thinks not eating could be a reason, but I always try to eat when I can or if im hungry. Otherwise its what im eating? eyes Of course I like chocolate, milk, eggs, cheese, sausage, pop, chips and dip, otherwise I eat anything, but im not a big fan of fish, beets, or diet drinks, I drink alcohol and smoke socially I guess only to fit in but I never do those things alone. I dont drink a lot cause of the taste! yuck! Sorry to everyone that likes to drink! Maybe I do these things once every 3-6 months. Honesty I dont mind my headaches and migraines or even my seizures.

But the thing I hate the most are my visual auras my ( visual symptoms) that occur in front of my eyes that are multicolored and looks like a strobe light of flashing colors that dont go away for a couple minutes. So I was wondering if anyone can relate to me and if you have visual auras like I do and that make you dizzy and confused what do you do that I dont that helps you. Or anything in general to help me.

Please dont try to say dont drink and smoke! I know these are bad for you. I just want to fit in. Plus I dont do it regularly I only do it occassionally when im near people. 1) because, if anything happens, Im near people that can recognize whats happening and call for help. I never do it alone. and I just want to be apart of a group that seems to have more interesting conversations than nonparticipating groups. So please dont try to tell me otherwise not to do it anymore. Since I dont do it often!

So please respond with the visual aura part or in any any you can relate that you find something that can make your life easier with having seizures/ migraines/ headaches/ visual auras. Oh ya when I have a really bad seizure or migraine I go to sleep for hours to get over them. i have been know to take at least 3 days to fully recover. The 1st day when I first get my migraine / seizure. 2nd day to recover and the 3rd day to return to my regular daily schedule.
jb200302 cool

Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 12/7/2006 12:54 AM (GMT -6)   

Hi jb2003002,

Welcome. I'm sorry that you've had to struggle with cerebal palsy, seizures and migraines. That sounds like a lot to deal with as a child and then growing up. It takes a strong person to handle these.

Unfortunately, I don't think it's possible to respond only to the visual part of your migraines. I experience visual acuities with my migraines and I have never been able to separate the two. Unfortunately, you may find as you get older that the migraines get more severe.

As you may or may not know, chocolate, milk, eggs, cheese, sausage, pop, chips and dip are all potential triggers for migraines, as well as alcohol and smoking. I used to drink alcohol socially at your age and had friends that smoked around me. I know suffer migraines daily when I'm not on medication and it has become to important to me to eat these things, drink or be around people who smoke. My health is very important and I don't want to suffer chronic migraines, so I have cut these things out of my life.

My stepmother suffers from Epilepsy. It is a symptom of her MS. She doesn't suffer many seizures but I know they scare her. I also know if she knew what could prevent them she would do anything to stop them.

You may find as you get older that your health is more important than fitting in and that your friends will respect all the more for not engaging in activities that make your illnesses worse. That way you don't have to experience the auras, the migraines and possibly the seizures.

I wish you all the best. Let us know how your search for a solution goes.

 


Nicky
Co-moderator Migraine Forum
 
"In life you can never be too kind or too fair; everyone you meet is carrying a heavy load. When you go through your day expressing kindness and courtesy to all you meet, you leave behind a feeling of warmth and good cheer, and you help alleviate the burdens everyone is struggling with." -- Brian Tracy
 
 


jollyholly
New Member


Date Joined Dec 2006
Total Posts : 1
   Posted 12/25/2006 11:49 PM (GMT -6)   
jb200302 cool,
 
Hi there...I promise I know what you are going through...with the visual auras, anyway.  They are terrifying!  When I get them, they last for about 30 minutes.  
 
My auras start in the center field of my vision and get bigger and bigger and take over my vision for what seems like a lifetime....it's like a pulsating rainbow worm!  Do you get a "blind" spot with yours?  I am 36 and have been getting them since I was 15.  When I got my first one, I thought I had a brain tumor.  After 21 years of having these, I still freak out, even though I try to tell myself that my vision will get back to normal.  My only advice is to try to stay calm.
 
I am so sorry about your other issues...I just wanted to try to comfort you on the migraine thing. 
 
Happy Holidays and good luck...try not to worry too much,
 
Holly
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