neurontin for migraine prevention

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hopefulmigrainer
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Date Joined Oct 2006
Total Posts : 902
   Posted 12/6/2006 9:42 PM (GMT -6)   
I went to my neuro today and she prescribed me this med.  Topamax made me extremely anxious, Lyrica made me dizzy.  Does this med work for you?  Does it cause weight gain? What side effects did you experience with this med?  thanks.
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
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Nicky (coquitlam55)
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   Posted 12/7/2006 12:42 AM (GMT -6)   

Hi hopefulmigrainer,

I took Neurontin before I took Topamax. I found that it wasn't as severe as Topamax. I did gain weight and it was difficult to come off of, but on it, I felt better than on Topamax. I don't think it really worked for me, but it's a lot more gentle on your system. My family doctor lives by Neurontin. My neurologist lives by Topamax.

Good luck.


Nicky
Co-moderator Migraine Forum
 
"In life you can never be too kind or too fair; everyone you meet is carrying a heavy load. When you go through your day expressing kindness and courtesy to all you meet, you leave behind a feeling of warmth and good cheer, and you help alleviate the burdens everyone is struggling with." -- Brian Tracy
 
 


hopefulmigrainer
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Date Joined Oct 2006
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   Posted 12/7/2006 1:41 AM (GMT -6)   
Thanks, Nicky. Glad to have you back.
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
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Nicky (coquitlam55)
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Date Joined Jul 2005
Total Posts : 505
   Posted 12/7/2006 2:01 AM (GMT -6)   
Thanks :-)   I'm glad to be back. tongue
Nicky
Co-moderator Migraine Forum
 
"In life you can never be too kind or too fair; everyone you meet is carrying a heavy load. When you go through your day expressing kindness and courtesy to all you meet, you leave behind a feeling of warmth and good cheer, and you help alleviate the burdens everyone is struggling with." -- Brian Tracy
 
 


GoBucks26
Regular Member


Date Joined Nov 2006
Total Posts : 81
   Posted 12/10/2006 10:40 AM (GMT -6)   
Hey there.
 
I have been on neurontin for approx 6 years.  I am currently on 900 mgs a day.  I did go off of it for a short time to try topamax.  Personally, the neurontin is tolerated much better by my body than the topemax.  I have not gained weight on the N (but I also have Crohn's disease so that has a lot to do with the weight).  When I tried topamax, I felt like I was in a fog 24/7- not so with neurontin. 
 
Good luck!!!
26 y/o female www.myspace.com/freezininmi
IBS dx 1996, Crohns Diagnosed after extreme flare in Feb. 2006, Emergency Appendectomy Memorial Day 2006 MEDS: Prednisone, Imuran, Lomotil, Darvocet, Phenegren, Reglan, Digestive Advantage, and way too many vitamins   
Migraines Dx 1990, MEDS: Neurontin 900 mg, Prozac. As needed: DHE, Reglan, Phenegren, Maxalt, Amerge, plus all the pain meds (Dialudid, Nubain, Stadol) Allergic to Imitrex
 


hopefulmigrainer
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Date Joined Oct 2006
Total Posts : 902
   Posted 12/10/2006 3:36 PM (GMT -6)   
Thank you!
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
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hopefulmigrainer
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Date Joined Oct 2006
Total Posts : 902
   Posted 12/20/2006 3:00 PM (GMT -6)   
Anybody else have any experience with this drug for migraine? I don't want to gain weight and be groggy but if it works....
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
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squarepeg
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Date Joined Dec 2006
Total Posts : 7
   Posted 12/23/2006 1:13 PM (GMT -6)   
The Neurontin is working really well for me. It has not caused weight gain and I take it at night so if it causes sleepiness I wouldn't know. Since I still get a whopping migraine when the barometric pressure drops rapidly I'll probably have to up my dose.

Every one I know who has tried Topomax has cut the dose without telling their doctor and then quite the drug completely. (Complaints were: weight gain, fogginess and hand tremors.)

As I think about it, I was a little slow when I first started taking Neurontin. I didn't feel foggy, more like really relaxed. That side effect went away completely in a short time. My husband is also on Neurontin. He's a big baby when it comes to drug side effects and he has no complaints.

Good Luck,
Diane

hopefulmigrainer
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Date Joined Oct 2006
Total Posts : 902
   Posted 12/23/2006 2:14 PM (GMT -6)   
Thank you so much for your reply Dianne.  It seems like only a handful of people on here have tried Neurontin.  I wonder why.  I couldn't tolerate Topamax and am so afraid of severe side effects it's hard for me to consider trying something else.  
 
How has the Neurontin helped with your migraines?  What percentage would you say?
 
Thanks.
Kelly
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
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squarepeg
New Member


Date Joined Dec 2006
Total Posts : 7
   Posted 12/24/2006 7:24 AM (GMT -6)   
Hi Kelly,

The Neurontin has knocked out all of the low and mid-level migraines. That alone has been a huge relief. I'm on hormones to stop my periods so the horrid menstrual migraine (5-7 days) is gone. Right now I am only getting migraines when the weather changes suddenly. When the barometric pressure goes back up, the headache disappears. The storms that move in slowly don't seem to bother me.

Since I live in the desert, we don't get that many big storms until late July. I'd say I've had an 80% reduction in migraines. The next time I see my doc I'll talk with her about upping my dose to get rid of the remaining 20%.

For me, the temporary side effect of feeling really relaxed for a week was well worth it. This drug has been close to a miracle for me. I really don't like to take pain meds since they make me foggy and I was having way too many migraines to take Maxalt every time.

I don't know if Neurontin is a new drug but I am very happy with it.

Diane

hopefulmigrainer
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Date Joined Oct 2006
Total Posts : 902
   Posted 12/24/2006 4:46 PM (GMT -6)   
Hi Diane, This is very encouraging. I have been taking a Natural supplement that intercepts the hormones. It is called "Migraine Defense." I have noticed a BIG difference after taking it for at least 6 weeks. I take this along with 600mg Magnesium and 400iu E. I still have my Neurontin though and if it goes back to the near daily migraines, I am going to try it. I was fearful b/c I had such a bad experience with both Topamax and Lyrica. Oh, and weather changes are a giant trigger for me. I hate the Southern California weather now. One day it's cooooold and maybe raining and the next day it is hot and windy. Ughhh!
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
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seechell
Regular Member


Date Joined Sep 2006
Total Posts : 362
   Posted 12/25/2006 2:26 AM (GMT -6)   

Neurontin didn't work for me. I wish it had. I'm about out of options and ready to give in and give up. I've tried Topamax, Zonegran, Midrin, Imatrex, Maxalt, imiprimine (which I'm still on) and so many others I don't remember. Now I'm on Inderal LA. My neuro wants to increase the dosage from 120 mg twice a day to 120 mg 3 times a day. I don't understand how that will make a difference. I kinda want to wean off of it and see what happens by using abortives only.

Sorry to hijack your post, I didn't really mean to, it just sorta happened as I typed.


Take Care,
               Chelle
    "God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference."
  DX: ankylosing spondylitis, periferal neuropathy, chronic migraines/headaches, depression/panic attacks, bi-polar, hypothyroidism, hypoglycemia, sleep apnea
  RX: synthroid, estradiol, cymbalta, prozac, geodon, lamictal, inderal la, klonopin, seroquel, imiprimine, aspirin, (relpax, phenergan, esgic plus, xanax, PRN for migraine)
  Surgeries: hysterectomy 1997, tonsillectomy 2001, deviated septum 2005, cataracts (both eyes) 2006
 
 


hopefulmigrainer
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Date Joined Oct 2006
Total Posts : 902
   Posted 12/25/2006 1:49 PM (GMT -6)   
Hi Chelle, you are a "difficult" case. I am too!!!! I am a difficult case when it comes to both migraines and depression. I don't know why some of the good people in this world have to suffer so but I will keep you in my prayers. Do a google search on a product called "Migraine Defense." I have noticed a significant improvement while taking this product. It really kicked in after 4-5 weeks. I take it along with 600mg Magnesium, 400ie E and the multi vitamin/mineral of course. Do you drink? I don't drink whatsoever as I found alcohol (any kind) to be a major trigger. We can't control the weather and when people wear perfume but we can try to control our food sensitivities. Do you keep a headache journal? My State disability ended so I have to go to work with these horrible migraines and I used to get about 20/month. That's why I was taken off of the SSRI for my depression b/c it can be life threatening. Don't give up. Ask God to help you and never cease.
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


seechell
Regular Member


Date Joined Sep 2006
Total Posts : 362
   Posted 12/25/2006 4:59 PM (GMT -6)   

Thanks Hopeful-

I'm writing the info down right now. I'm willing to try anything. It eased a bit this morning but can feel it coming back right now and it's going to be at full force again. I may make hubby take me to the ER today. Something has to break this cycle!

BTW, no I don't drink alcohol at all. But I do drink 2-3 diet cokes a day. I went off of the caffeine about a year ago for an entire year and noticed no difference what-so-ever. So, since I love the tast of it, I'm drinking it again. I think the caffeine, for me, may be an inhibitor sorta. Who knows? The doctors sure don't sometimes! 



Take Care,
               Chelle
    "God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference."
  DX: ankylosing spondylitis, periferal neuropathy, chronic migraines/headaches, depression/panic attacks, bi-polar, hypothyroidism, hypoglycemia, sleep apnea
  RX: synthroid, estradiol, cymbalta, prozac, geodon, lamictal, inderal la, klonopin, seroquel, imiprimine, aspirin, (relpax, phenergan, esgic plus, xanax, PRN for migraine)
  Surgeries: hysterectomy 1997, tonsillectomy 2001, deviated septum 2005, cataracts (both eyes) 2006
 
 

Post Edited (seechell) : 12/25/2006 3:04:30 PM (GMT-7)


hopefulmigrainer
Veteran Member


Date Joined Oct 2006
Total Posts : 902
   Posted 12/25/2006 5:19 PM (GMT -6)   
Here is the link.  They are a husband and wife team.  The wife has tried everything under the sun since a little girl.  They are available to talk to via phone during the week.  I said a prayer for you.  I'm so sorry that you are having to suffer on Christmas day. 
http://www.christianbody.com/?gclid=CNmP09bSrokCFQLYYgod7hneVQ
"God grant me the serenity to accept the things I cannot change, to change the things I can and the wisdom to know the difference. Amen."
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


here3now
New Member


Date Joined Oct 2013
Total Posts : 3
   Posted 10/20/2013 10:55 AM (GMT -6)   
This is surely too late to help the original poster, but for anyone coming to this site for answers... I was on Topamax and it was HORRIBLE. My mind was all fuzzy, I couldn't think, had trouble coming up with the simplest words and suffered from extreme anxiety. I ended up having to call the paramedics and had to be off of work for over a week - this was after just two weeks of being on it. I still suffered from anxiety attacks for several weeks and months afterwards. I will NEVER forget how I felt on that med and never ever ever again will I take it and now have a deep fear of meds as I don't EVER want to feel like that again. I started taking a low dose of 100 mg of Neurontin (gabapentin) for another issue that I have. No migraines at all during the worst (humid rainy season) time of the year for migraines. I usually have 3 or more a week during this time period every year. I am now on a higher dose of Neurontin - mainly for the other issue... but the migraines went away with the really low dose. The first week on it I had mild anxiety. It went away after that initial week. I am amazed at how the migraines have stopped. I don't ever want to get off of this. Great stuff!

here3now
New Member


Date Joined Oct 2013
Total Posts : 3
   Posted 10/20/2013 11:01 AM (GMT -6)   
Also... about Neurontin... I haven't noticed any weight gain. Though, I am still on a relatively small dose 300mg - 2x. What I do notice is gas retention. Actually, the gas seemed to be worse on the lower dose... ??? I don't know if the other posters actually weighed themselves... but my belly was really bloated and stomach discomfort from gas. No weight gain.
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