Hi Jenny -
I was so glad to see your post here on this weird thing. I actually searched on this feeling a week or so ago and couldn't find anything on it, I had the sensation for about 48 hours straight and it was really bugging me! Been having it again off and on for the last 24 hours, no headache, just the cold tingles around the scalp and numbness on the right side of my face. Good grief!
No, she (my neurologist) doesn't really know what's going on, I have a migraine history, but after the eeg showing minor seizure activity that was what made her put me on the topamax. I guess I really should not be having all these crazy symptoms on the Topamax if they were from a migraine, BUT she did state I may not be on a high enough dosage (50mg/day)... UGH.. As long as I can take all the Topamax dosage at night, I'm good to go, but if I have to try to function on this stuff during the day, holy cow, I better take a week off work to get accustomed to it again. I made a major blunder and had a probability/statistic final exam the week I had to bump up my dosage from 25mg to 50mg and bombed it majorly... I WAS a 4.0 student.. Not anymore... Oh well... My health is more important. :o)
I guess we'll see what the LP shows and go from there since the MRI came back with lesions it will backup possible MS if the LP is positive and if it's not positive, then we're looking at old stroke scars (didn't know I had one! :o) ) or severe migraine scars (didn't realize they were THAT bad, yeah I was in pain, but I have never had to go to the ER like most of the poor people on this forum have).
Keep me informed on if you find out anything more and I'll do the same! Hang in there!