I don’t know if my problem is unique, but I’ve been dealing with migraines since I was 16 years old. (I’m now 23, almost 24). The problem is that my migraines started somewhere between April and September went from being controllable to controlling me. I use to be able to just take Zomig (though it was starting to lose its affect) and sleep it off. These migraines would also only affect my neck and maybe my neck, but not my entire body and they would only last for a maximum of 1-2 days.
In April, I had the worst migraine in my life. On those famous doctor pain scales it was easily a 12. However, the Zomig worked, but it was the last time. July, I had a week long migraine that I was able to beat down with some Zomig and some OTC drugs, but then I realized that I need a neurologist. (I was only in the area for about a year at that point).
My next migraine lasted two weeks. During these two weeks, I visited my neurologist a couple of times, visited the ER got shots of who knows what types of medicine, got a MRI done, was able to work without drugs, but barely, started Topamax, tried barbiturates, Percocet, and Stadol and finally had to be hospitalized for 5 days to break the pain. Dilaudid was the only thing that actually took away the pain. This happened at the end of September beginning of October.
Next, my neurologist told me that I have three types of headaches: migraines, muscle headaches due to my neck, and TMJ and they all like to play off each other. Also over this time my Topamax dose kept being upped. Then in the beginning/middle of November I am hospitalized again for a migraine, but this time it is only 2 days. (I was also sent home from the ER because one of the doctors thought I was a junkie, but that is another story).
In the middle of December, I also went through this again, but this time I wasn’t hospitalized. I had two ER visits, a few days off of work and I was just on a lot of Dilaudid pills. I quit them cold turkey then experienced the withdrawal symptoms.
Overall, now I am more or less in some sort of chronic pain. My neurologist thinks and now includes rebound headaches into this it is all the heads playing off each other and he is not being proactive enough in finding a that missing X factor. I’ve been told in the past from dentists that I have TMJ and I know that I have had neck problems for ages, so what is this catalyst that we are missing? I don’t know how to approach him about this and I’ve attempted to say that we need to be more proactive and he said lets up your Tomapax and get a second opinion. (At this point my parents were afraid that they were never going to see me alive again). But the thing is that I actually like him a lot. He is a nice guy, we get along really well and when I call him through the answering service he calls me back quickly. I am troubled by that I’m not getting any better. If anything, I might be getting worst. And everything we try only works temporary. For example, we tried trigger-point injections, and it helped for a couple of weeks. The same with all of the other drugs we have tried. Plus, I’m always nauseous now (that might be the Topamax) and I can barely eat. To me, he is being proactive to a certain point, but is he being proactive enough? I have an appointment with him generally once a week (he is very close to work), so I am planning on talking to him. I just really don’t know what to say. I also have to admit that I am afraid that may never figure this out. My mom suffers pretty badly from migraines (not like this, or constantly) and her doctors could never figure out why.
Additionally, my quality of life has radically changed in the past few months and now I have to constantly fear if I am going to get a migraine. Plus my job is in jeopardy. I really just don’t know what to do anymore. Fortunately, I have parents and a significant other who are helping and a second opinion at one of the best places around. But I am really worried about why this sudden change and was really wondering if this has happened to anyone else?
These are the things that I can tell you. My triggers for sure are light, weather and possibly cheese. Sometimes highly emotionally charged situations will bring it on, but not always.
Things that are not are caffeine, and my cycles.
I appreciate y’all reading. I must tell you when I found this website yesterday I almost cried at work from relief and the comfort that there are people out there who understand.