Hemiplegic miagraines

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uk1980
New Member


Date Joined Feb 2007
Total Posts : 1
   Posted 2/12/2007 3:42 PM (GMT -6)   
Ive been diagnosed with this type of miagraine recently and i have been put on propanonol which i take daily. The first time i thought i was having a stroke, im just wondering how many others suffer from it apart from my family members.

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 2/13/2007 2:47 AM (GMT -6)   
Hi uk1980

Welcome to Healing Well. Sorry to hear that you are suffering with this type of migraine as it can be quite frightening until you know what it is. There are one or two members here who suffer with this type too who I am sure will come along at some point, but please be patient as most peeps check in every now and again!

take care

Ann
Co-Moderator of the Migraine/Headache Forum


catlou1
New Member


Date Joined Feb 2007
Total Posts : 13
   Posted 2/20/2007 8:40 AM (GMT -6)   
Hello!  Sorry to hear of your diagnosis, hope your medicine is helping.
 
I was diagnosed with hemiplegic migraines last year.  Last May I was at work and my entire right side went completely numb.  I was taken to the hospital where they diagnosed me with having a stroke.  I was only 29, I don't smoke, no hypertension, no diabetes, etc. so that dx was a little hard for me to swallow.  It ended up happening again the next day and after a complete battery of tests, they decided that it was probably hemiplegic migraines.  I was put on topamax and aspirin, which helped for a while, but then I started having the episodes daily again.  I would also have some periods of aphasia, where I couldn't talk or think clearly.   It was hard to work and just go about my day when I wasn't sure when the next bout of half-side paralysis would start.  I went to a neurologist who specializes in migraines and she made the official diagnosis and started me on verapamil.  The medication has been great.  She started me out on 40 mg and I have worked my way up to 180 mg, based on how the dosage was working.  I would still have occasional episodes while on the lower doseages, but they were extremely mild.  Just weakness in my right arm and cheek.  Definitely tolerable!
 
I still find it odd that I have a migraine disorder when I have never even had a typical migraine, with pain in my head.  My neurologist said that what I have experienced is the actual migraine aura and that at some point I may get the pain associated with migraines, but I haven't had that yet.  (thank goodness) My mother has typical migraines on occasion, but nobody else in my family suffers from them, much less the hemiplegic kind.  I'm worried about my children getting them when they get older, but I guess we'll cross that bridge when we get there and at least I'll know what we're dealing with.
 
Hope you're doing ok!

opie
Regular Member


Date Joined Jul 2006
Total Posts : 39
   Posted 2/20/2007 11:34 AM (GMT -6)   
I wish you didn't have to go through this.
I have had hemiplegic migraines for about 40 years. I am 45. Thankfully, they are not very frequent. I had gone 6 years without having one and now have had 2 in the last 7 months. They are pretty common in my extended family. I have a number of aunts and uncles and cousins who have similar headaches. My father and a brother also get them. Luckily, only 1 of my 3 children get them which has been shown to be the overall incidence.
I am not on medicine right now. I do see a neurologist in a couple of weeks because they are more frequent and a little more severe.
With in 10 seconds of feeling "funny", I could not walk. Both sides were affected, along with my hearing, speaking, and swallowing. That lasted about 3 hours and then a bad headache, confusion, unsteadiness and extreme tiredness for several days. I'm finally feeling back to normal but have felt a little tingling in my hands and nose which, looking back, signaled the last one.
My dad has been seen at Mayo for these and is very pleased with the advice from them. He has had several that have lasted for days with stroke-like symptoms.
I'll keep you posted on any updates.
Best of Luck.
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