My husband suffers from migraines and has anxiety about when and where the "attack" will happen. He does not leave the house without me and he hasn't driven since November 2006. It comes on so fast that if he is walking across the room, he can barely get to a chair to sit down before he falls down. We too have been to the ER and after an MRI/MRA and blood testing, they said he had vertigo! DUH! We knew he was dizzy. Luckily we have found a neurologist to work with getting some preventative mediciation going to help with the symptoms but it is slow going.
I suggest seeing a neurologist who may prescribe something for the anxiety that accompanies these attacks.
Good Luck! Hang in there!
thank-you guys for taking the time to share your experience with me. It makes me feel sooo much better to actually read real accounts of what other people are going through and how they are dealing with this.
Like I said I have found many sites explaining the symptoms but none of them really said anything about panic or extreme anxiety. I know in my head that I cant be the only one going through this, but emotionaly I am really starting starting to feel alone as I dont know anyone else that has ever experienced this.
It also seems logical that you would have this, as sudden lose of vision is terrifying, but I can not seem to get a grip and I am having a really hard time understanding any of this. It does seem to come at any time of day, relaxed or stressed, at home or out, and that is what the really freaky part is I think. I can feel myself on the edge of something terrifying and even though I am trying to be strong and rational, it seems like every time I feel that Im getting back to my old self, I get knocked for another loop and every time seems to be worse then the time before.
I keep hoping that this is just a phase that I am going through but thats another scary part to what is going on, there is absolutly no way to know when you are fixed. There seems to be no logical begining to this and there doesnt seem to be an end. My doctor also seems to think Ill never find what the trigger is because there is just way too many differences in my episodes.. time of day, situation, stress level..etc.
I have so many questions and unfortunatly there doesnt seem to be a lot of answers out there, so thanks again for sharing with me and finally making me feel that I'm not totally alone.
One key to avoiding the panic that happens when you start to have your "AURA" symptoms, i.e. vision problems, dizziness, tingling sensations, etc... Is to make sure you have a migraine abortive with you at all times. If you know you have medication with you that will abort your symptoms from going into a full migraine, a lot of the panic and anxiety will go away.
I've been in your shoes, more times than I would like to remember. What is really bad is knowing that you are far away from medication/relief. Just this week, I ran out of my new abortive, Migranal, and couldn't get it refilled for three days. Yesterday, I woke up with a raging migraine and no Migranal to take. Thus, I ended up at the ER for three hours waiting to get a pain shot. I always have to get a few Lortab, because after the pain shot wears off, my head is usually slamming again. Thank heavens my Dad could pick up my prescription this morning. It's just a lousy feeling knowing that you don't have your medication with you.
Just try to avoid getting in that situation.
thank-you guys so much for all the info and advice, I really appreciate it!!
Since I first wrote the post I was prescribed Amerge as an abortive medication for the migraines but unfortunatly it did absolutly nothing in regards to the vision disturbance, and as for the migraine, it lessened the pain to a dull ache for about six or seven hours but then I still ended up with the blinding headache and then I was too scared to take anything else for the pain because I was told the medication was supposed to last 24 hrs and to be carefull not to mix with any other medication.