Migraine and depression

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powertronn
New Member


Date Joined May 2007
Total Posts : 5
   Posted 5/13/2007 1:07 PM (GMT -6)   
Hi guys, glad I found this Forum, did'nt realize they existed.
 
Well, I have been suffering from severe migraines since I was 14y/o. I'm now 34 and they have'nt eased in intensity since the 1st one I had. My symptoms are in order of attack: Depression and irritability 1-2days before the attack, zigzag lines in my vision, numbness in my left hand and left side of face, speach like im talking backwards and slurred, dissorientation, sensitivity to light, severe head pain. All this last anything from 4-9hrs. Sometimes I can go a couple of months without an attack, but then it's like I get a cluster of them and get about 3 per week. These have seriously affected my work and social life. I have been sacked from every job I've ever had cause I've had attacks in work and had to go home, bosses are not that understanding, now I don't work and that is causing me serious depression. I have had medication for this in the past, Imigran injections, Propranolol etc but nothing worked, this was a while ago now. I went to visit my GP last week and explained everything to him, but he had the nerve to just offer me Paracetamol, I asked him was he taking the p!ss cause he obviously did'nt understand the effect this was having on me, and paracetamol for Migraine was just like taking a smartie, but he seemed unconcerned and did'nt understand the seriousness of my attacks and the effect it's having on me. Needless to say I walked of the practice in a huff and have'nt been back since.
 
Can someone please answer a few questions my GP could'nt:
 
Are migraines for life?
Are my symptoms common?
Have there been anyone with my symptoms cured?
Why do I get them?
Having these Migraines for years, will it (in time) leave a noticable mark on me? personality changes etc
Do my migraines have a name, have they been classified?
 
Thank you so much for taking the time to read this post, and if you've answered thanks again.

Post Edited (powertronn) : 5/13/2007 1:21:59 PM (GMT-6)


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 5/14/2007 12:15 PM (GMT -6)   
Hi powertronn,

Welcome to Healingwell. Sorry you are having such a tough time. I will try to answer your questions as best I can, but I would point out that I do not have any medical training and I am only commenting from my own observations and experience!

Before I do, I would suggest that you get yourself referred to a Neurologist who is a Headache Specialist! Are you in the UK by any chance?

Ok here goes! Are migraines for life? - Yes
Are your symptoms common? - yes
Has there been anyone with your symptoms cured? - no (sadly there is no cure)
Why do you get them? - as far as I know it is not known, research is ongoing!

The last two questions I would think even a Headache Specialist would have difficulty answering, although the last one they may be able to answer eventually!! Apparently there are 600 different types of headache!!!!

Answering your questions like that makes everything sound a bit negative, but there are new treatments coming out every now and then so there is always hope!!!

We all find our own way around this awful disease, our own way of coping and share it and hopefully in turn enable someone else to cope better. I have found being able to talk to others that understand what I am going through is the best medicine I can have!!!! We are here to support each other!

take care

Ann
Co-Moderator of the Migraine/Headache Forum


powertronn
New Member


Date Joined May 2007
Total Posts : 5
   Posted 5/17/2007 2:21 PM (GMT -6)   
Ann - Thank you so much for answering me. I understand that not all my questions are easy to answer, and thank you for your response. I have never really spoken to anyone about my migraines as no one seems to understand, my friends think it's just like a headache and that winds me up cause they don't understand the pain I go through. Not just the pain but the personallity changes also before and after an attack. I am not recieving any medication for them cause I got fed up trying all different kind of drugs and none of them working, I got disheartened and gave up. When I get an attack I goto bed, hold my head and cry for the next xxxx amount of hours until it goes, it's no way to live but I know no other way of dealing with them, I just put up with the pain cause I know it don't last forever. Then I get the nasty after affects like irritation and depression for a few days after the attack, so one migraine before and after lasts for about 3-4 days really. Sorry to rant on like this as I know you're probably busy, it's just I've never spoken of this to anyone, well, anyone who understands. I will go and see my GP (yes I'm in the Uk - Wales) and see if he will refere me to the neurologist .. Is there any medication out there that can stop my migraines or help so they don't hurt so much??  I mean so that I could perhaps carry on with day to day things with an attack ..
 
I can't thank you enough for answering me - These Forums are worth their weight in gold, invaluable, and you guys do this for free, I think thats excellent and very charitable of you to give up you're free time to help others, you don't have to do this, but you do it anyway, your an angel....
 
Den..

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 5/18/2007 6:35 AM (GMT -6)   
Hi powertronn,

I am in the UK too, and if you email me I will put you in touch with a very good Headache Specialist who your GP should be able to refer you to. The waiting list is long, but the wait is well worth it!!!!

There are all sorts of meds out there, not everything suits everyone so it is a case of trying stuff which can be very long winded I'm afraid as you have already found out!!!

Hang in there, to email me just click on the envelope under my name, and I will let you have the details as soon as I can.

take care

Ann
Co-Moderator of the Migraine/Headache Forum


Needmylifeback
New Member


Date Joined May 2007
Total Posts : 6
   Posted 5/18/2007 1:02 PM (GMT -6)   
Powertronn,  Hi, bare with me, this is the first time on the message board.  I read your message and thought I'd share some things I've experience in my 30 years of migraines.  I saw that you asked if migraines are forever.  I guess some people would dispute my answer, but my neuroligist told me there was a chance I'd grow out of them the same as I grew into them.  They came out of nowhere.  I have a very bad case of migraines.  I have classic migraines that can lead to 3 days of severe, horrible, horrible pain (sometimes landed me in the ER, if I get dehyrated).  I also have cluster migraines.  The pain is worse, but don't last as long and the headaches go in and out.  Just as you think you are ok, BAM, there comes another one.  I had a job (administravie assistant) up until 6 years ago, barely able to hold onto it, because no one understood my headaches.  When I'd return to work, I looked normal, just really tierd.  If I'd gone in with my arm in sling, then they would understand.  It's like the public needs to see something wrong with you.  I'm on disablility now (I live in the USA).  I hate being disabled, but it's so much nicer now if I get sick, I am home and I don't have to explain to my boss.  Like I said, no one understands the headaches so it is hard for them to understand what you going through.  It has cost me almost all of my friendships.  My husband gets "mad" when I'm sick, not mad at me, but mad because they cannot find the exact cause.  I've been to several Speciality Migraine Clinics here in the US (even Chicago Diamond Headache Clinic in Chicago, I stayed three weeks).  I didn't get any good results.  They put me on MAO Inhibitors, and that was horrible, I won't ever take those again.  Migraines are different to a degree on each person.  Food is a big migraine trigger, you have to figure out what you can and can't eat.  MSG is in almost all canned and boxed foods.  That's a big NO NO for most sufferers.  I found out that bananas and oranges can be in the bad category too.  Thing is, most of the time you can have the so called bad migraine foods, but in small amounts.  For instance I love pizza, but can only get away with one slice.  If you do a search for foods bad for migraine sufferers, I'm sure you can find all of them.  That doesn't mean they are bad for you, just some of them.  You pretty much have to test yourself.  Some people go to an alergy doctor too.   I've also gone to a hyptomist (he helped me some, he could take me from a "9" migraine (one being the smallest migraine and 10 being the largest) and get me down to a 3.  It made me feel like I'd been running all day.  It drained me and I'd have to sit around the rest of the day.  I want to try acupuncture.  I've made several appointments, but would get sick and couldn't take myself.  I've heard good things about them.  My doctor recommends it, my physical therepist, and I read a lot about it on the internet.   My biggest enemy is light.  I can't be around any kind of flashing light, for instance candles, I had to get rid of.  Even something small as someone lighting up a cigerette.  I don't smoke, my doctor said it was bad for migraines.  Smells are beginning to trigger a lot of migraines, especially heavy perfume other people have on.  I had to quit wearing it, and I miss it.  I do get very depressed with the migraines.  I don't want to spend my life like this any longer, so I can understand the depression.  My neurolist says migraines and depression go hand in hand.  I use Imitrex for my migraines.  Currently I'm not taking any preventive meds, trying to rest my body.  I've been reading up on Topimax and I believe it would be a good preventive medicine.  It doesn't have a lot of side effects.  The best side effect, is no weight gain, or so it says.  A lot of the prevention medicines have so many side effects, it's not worth it in alot of cases.  I gained alot of weight on Inderal and then again when I took Calan (prevention).  I lost the weight, but it was hard.  I recently tried physical therepy.  I believe they could have helped me more if I could have made more of my appointments.  I get a WHOLE lot of tension in my neck, sometimes running down my right arm.  If I get the migraine with the horrible tention mixed with it, I can forget about taking Imitrex to get me out of it, because the tention (or muscle spasms, some people call it) has to subside or taking the imitrex is a waste.  Imitrex is not for everyone.  It can be hard on your heart.   I have migraines daily, which is rare.  I am constantly fighting them.  Ice packs help me a lot.  The physical Therapy place carries good ice bags (nice size), so if you need to get ice packs, that's the place to go.  I go no where without taking an eyepatch for my eye, my headaches end up 98% in my right eye.  I also have things that are made of wood.  this little animal like thing with legs and balls as paws.  I have to sleep on wood at night most of the time, to hold in a tension point (very hard to explain).  But if I don't sleep on it, it's important to go to sleep, because it take 2 or 3 points off of a "9" or "10" migraine.  Don't give up on your migraines, alway keep researching and depend on yourself more, not the doctors.  Doctors are wonderful, but they do not entirely understand your "unique" problems.  I know from having depression, you cannot ignore it.  Stay on the internet, finding the right "recepe" for you.  Trust me, I'm still looking.  I rarely get on here, because I am sick so much.  Not sure how I ended up here and saw your message, but I hope I could help some.  I know I said alot, and maybe not the right thing, but if I failed to answer anything tht you are wondering, feel free to write me back.  I've noticed I've become less social to, so you really have to push yourself.  Buy you sunglasses that wrap around to keep the sun out of the sides of your eyes.  It's small things that help.  I'm sorry for your suffering and if I can help, please let me know.   God bless.  :-)

Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 5/19/2007 8:58 PM (GMT -6)   

Hello needmylifeback,

Welcome to Healing Well. I am one of the forum co-moderators but I have been absent because my migraines got so bad.

If I might kindly offer a couple of suggestions about your posts. They are filled with interesting information that we would all like to read, however when you write in one long paragraph it is difficult to keep reading. Breaking your post into smaller paragraphs help others read your post without losing focus.

Thanks for submitting your posts, everyone's contributions are necessary to keep the forum going.

 


Nicky
Co-moderator Migraine Forum
 
"In life you can never be too kind or too fair; everyone you meet is carrying a heavy load. When you go through your day expressing kindness and courtesy to all you meet, you leave behind a feeling of warmth and good cheer, and you help alleviate the burdens everyone is struggling with." -- Brian Tracy
 
 


Nicky (coquitlam55)
Veteran Member


Date Joined Jul 2005
Total Posts : 505
   Posted 5/19/2007 9:06 PM (GMT -6)   

Hello powertronn,

Welcome to Healing Well. Reading your story was like reading my own a few years ago. I had not visited a neurologist and didn't feel any support from anyone. My neurologist has been very helpful and my doctor as well.

I have lost many jobs because of my migraines and am on my third bout of disability. I have always quit or gone on sick leave before I could be fired, but the result is the same I have a spotty job history that makes it look like I can't keep a job for very long.

Here in Canada we have legislation that states one cannot be discriminated against because of illness. We also have disability insurance either through work or the government. My company didn't have insurance so I am receiving disability from the government. I have learned in Canada that employers cannot fire you or refuse to hire you because you suffer from a chronic illness.

Migraine headaches are being viewed more seriously now, nut just like one has "headaches", and people who suffer chronically are able to get benefits often provided for other chronic illnesses. For example, cancer sufferers or people with MS, epilepsy, etc are entitled to help from the government and their insurance companies.

Annuk will know better than I what is available in the UK. Perhaps you can find out what you are entitled to and can get some help with your job history and / or disability payments.

Best of luck. Let us know how it goes.


Nicky
Co-moderator Migraine Forum
 
"In life you can never be too kind or too fair; everyone you meet is carrying a heavy load. When you go through your day expressing kindness and courtesy to all you meet, you leave behind a feeling of warmth and good cheer, and you help alleviate the burdens everyone is struggling with." -- Brian Tracy
 
 


powertronn
New Member


Date Joined May 2007
Total Posts : 5
   Posted 5/20/2007 4:46 AM (GMT -6)   
Needmylifeback - Hi and thank you for you're reply. I found you're post very helpfull to say the least. Thank you so much for sharing you're experience with me. I thought my migraines were bad, but to have them each and every day must be terrible for you, I'm so sorry you are suffering like this, atleast I get a break from my attacks. I also feel very humbled by you're post, theres you suffering each day yet you've offered to help me cope with my attacks, thats a rare thing in my experience and I would love to chat with you further if possible .. my e-mail: easy_listener_33@yahoo.com feel free to mail me any time as I would love to chat further with you .... you can e-mail me just to say hello, or even just to pass the time of day, I really dont mind .. But I'd like to get to know you more ..
 
Nicky - Thanks also for you're reply, it was most appreciated. Like I said, I too have lost countless jobs cause of attacks in work, ppl don't seen to understand the seriousness of migraine attacks, they seem to attribute it to simple headaches. Now it's got to the stage where I see it pointless to find work as I know sooner or later I will have an attack and get fired, and I find this very depressing. As for disability allowance, I did try to claim this once, but they told me cause I wasnt sick with attacks everyday I didnt qualify for the benefit. I went on the sick also with it once, was called in for a medical, the examiner asked me if I was sick there and then, I said no (as I wasnt having an attack there and then) because I was fit and well on that day I was taken off the sick, it's seems that not even doctors understand the full extent of migraines, needless to say I had a migraine attack the very next day.
For years I've felt icolated with my attacks as I've never met anyone who suffers from them, so I've never spoken of them cause if you're not a sufferer then you cant fully understand whats involved.
 
Annuk - Thank you also for you're post. Can you please (if you have time) email me those details, my e-mail addy is at the start of my post.
 
Thank you all so so much for talking with me, you have helped me more than you know .. thank you :)

oakley
Regular Member


Date Joined May 2007
Total Posts : 358
   Posted 5/21/2007 7:46 PM (GMT -6)   
God bless you all and know He loves you as do I.  Oakley 

bshep_wp
New Member


Date Joined Nov 2012
Total Posts : 1
   Posted 11/10/2012 6:49 PM (GMT -6)   
Hi all. I'm new. I have had 4 migraines in my life, but my fiance' was diagnosed with them last month. Our love story was quite literally ' at first sight'. we had SO much in common, same sense of humor, love of our kids, and loved cooking for each other. Today she yelled at me for hugging her. Is there ANY way of finding the woman I love? Her personality has changed so much that I wouldn't recognize her from a year ago. I DO NOT want to be a man that 'leaves' because that's cowardly. When I try to discuss how different her personality has become, she gets very defensive and sarcastic..seemingly not knowing I'm trying to heal our relationship. Has anyone had success with any method? I know she's in pain but I have done nothing but TRY to help. Cleaning, dishes, laundry, cooking, taking care of our little one, etc. I don't want to lose what we had. All opinions are welcome. I read some posts on personality changes but not sure she would go for a neurologist. I am in the Dallas area. Thank you so much.

deltaforce
Veteran Member


Date Joined Jun 2010
Total Posts : 2219
   Posted 11/11/2012 4:40 AM (GMT -6)   
@bshep_wp,

First of all, this thread is more than 5 years old, you should have started a new thread.

To your problem, you write the story but the information is useless to give you any suggestions. What is the diagnosis? what meds is she taking? Is she maintaining a diary? Has she figured out the triggers? Has she educated herself, in other words, has she helped herself to get out of this migraine problem? Unless, there is some basic ground work done, visiting a doc and getting prescription filled doesn't make sense at all.

Before posting on this thread, did you go through other threads? I have posted some useful information on few other threads that will give you guys some head start.

And before 'healing' your relationship, she needs to be pain free. I suspect that she doesn't stand touching or hugging when she has migraine (same with me). This has nothing to do with personality changes, unless she has depression. And this is not the problem that will be solved with a magic wand. Go to the neurologist as soon as possible. Sometimes it takes months to standardize the medication and to see the effect.

You have excellent headache centers in your neighborhood, like Baylorhealth, use the facility. This is the most sensible suggestion I can give you, from where I see it. Let me know if we on this forum can be of any more help.
Diagnosed March 2007 with left sided UC at the age of 30.
Currently on,
Colazal 9 daily, Imuran, 200mg daily, Vit. B12, 1mg, Multivitamin, 1 tablet daily, Fish oil 2400mg daily, Vit D 2000 IU daily.

Verapamil 320mg for migraine, Migraine episode now at least 4X a month,
Nabumetone 750mg as an abortive, so far so good with GI side effects.
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